Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Hot flashes and fatigue can be an early sign of hyperthyroidism: http://www.medicinenet.com/hyperthyroidism/page4.htm It might be worth having your doctor check for your blood thyroid stimulating hormone (TSH) level? There have been reports of an association between PSC and thyroid disease, and it is speculated that they might have a common pathogenesis; see for example: Janssen HL, Smelt AH, van Hoek B 1998 Graves' hyperthyroidism in a patient with primary sclerosing cholangitis. Coincidence or combined pathogenesis? Eur. J. Gastroenterol. Hepatol. 10: 269-271. http://www.ncbi.nlm.nih.gov/pubmed/9585034 I think we always have to keep in mind that PSC comes with an increased prevalence of autoimmune disorders (in addition to IBD): Saarinen S, Olerup O, Broome U 2000 Increased frequency of autoimmune diseases in patients with primary sclerosing cholangitis. Am. J. Gastroenterol. 95: 3195-3199. http://www.ncbi.nlm.nih.gov/pubmed/11095341 Recognizing their early signs and symptoms is a big challenge for us all. Best regards, Dave (father of (22); PSC 07/03; UC 08/03) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Oh Yeah I can relate. Hot flashes and night sweats where one of the reasons I want to my doc. I thought I might have been pre menopausal or something. I get them more if I am having nausea, someone suggested as while back to stay well hydrated and I have found this helps, also avoid hot showers, bathes and hot drinks seems to help too. Cotton clothes and layers to I can peel them off as needed. I go from Hot to freezing in a matter of minutes. Placing a cool cloth on the back of my neck helps too. PSC5/2007 Listed > > > > Just curious if there is a high percentage of PSCers on Anti > > Depressants and what you have tried, what works and what doesn't and > > especially what to avoid due to liver interactions. I'd like to > know > > if anyone has oppinions one way or another on Effexor. > > > > I'd also love to talk to anyone who has had PSC for over 15 years > with > > no threat of a liver transplant in the near future. I have had PSC > for > > at least 23 years with only one itching episode and a few episodes > of > > hot flashes and then chills, but other than an elevated Alk Phos (on > > ursidol it's in the mid to high 160s)and being tired, cold and > > depressed, I've shown no other signs of PSC. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 I'm not sure about hot flashes (don't have the equipment), but night sweats are not at all uncommon in active PSC (cholangitis). Maybe TMI, but until I had a CBD balloon dilatation and associated stent, the sheets and pillows were noticeably yellow! I also got quite flushed (rosy all over) after a normal 3-mile run, but I can't say I was abnormally hot/warm. Arne 56 - UC 1977, PSC 2000 Alive and (mostly) well in Minnesota ________________________________ From: [mailto: ] On Behalf Of sikeea_graham ....Does anybody else get warm or hot and tired instead of cold and tired?... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 I also get the nausea when I feel warm or hot. And the crazy thing is, when I take my temperature, it doesn't reflect how warm I feel. If anything, it'll read a bit below normal, like 96.7 or something. Does that happen to you? Lightheadedness and weakness? wrote: Oh Yeah I can relate. Hot flashes and night sweats where one of the reasons I want to my doc. I thought I might have been pre menopausal or something. I get them more if I am having nausea, someone suggested as while back to stay well hydrated and I have found this helps, also avoid hot showers, bathes and hot drinks seems to help too. Cotton clothes and layers to I can peel them off as needed. I go from Hot to freezing in a matter of minutes. Placing a cool cloth on the back of my neck helps too. PSC5/2007 Listed> >> > Just curious if there is a high percentage of PSCers on Anti > > Depressants and what you have tried, what works and what doesn't and > > especially what to avoid due to liver interactions. I'd like to > know > > if anyone has oppinions one way or another on Effexor. > > > > I'd also love to talk to anyone who has had PSC for over 15 years > with > > no threat of a liver transplant in the near future. I have had PSC > for > > at least 23 years with only one itching episode and a few episodes > of > > hot flashes and then chills, but other than an elevated Alk Phos (on > > ursidol it's in the mid to high 160s)and being tired, cold and > > depressed, I've shown no other signs of PSC.> >> Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 Thanks, I will ask my doctor about that next time I see him. About TSH levels. I had some bloodwork done on Friday to find out why I feel the way I do, so I'll see if TSH levels were ordered as a default with that, or if I can have more work done to determine if my TSH levels are out pf whack. Thanks again! > > Hot flashes and fatigue can be an early sign of hyperthyroidism: > > http://www.medicinenet.com/hyperthyroidism/page4.htm > > It might be worth having your doctor check for your blood thyroid > stimulating hormone (TSH) level? > > There have been reports of an association between PSC and thyroid > disease, and it is speculated that they might have a common > pathogenesis; see for example: > > Janssen HL, Smelt AH, van Hoek B 1998 Graves' hyperthyroidism in a > patient with primary sclerosing cholangitis. Coincidence or combined > pathogenesis? Eur. J. Gastroenterol. Hepatol. 10: 269-271. > > http://www.ncbi.nlm.nih.gov/pubmed/9585034 > > I think we always have to keep in mind that PSC comes with an > increased prevalence of autoimmune disorders (in addition to IBD): > > Saarinen S, Olerup O, Broome U 2000 Increased frequency of autoimmune > diseases in patients with primary sclerosing cholangitis. Am. J. > Gastroenterol. 95: 3195-3199. > > http://www.ncbi.nlm.nih.gov/pubmed/11095341 > > Recognizing their early signs and symptoms is a big challenge for us > all. > > Best regards, > > Dave > (father of (22); PSC 07/03; UC 08/03) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 I was waiting one year for someone who has hot flashes. Last year I went thru all kind of tests in NY, Boston and Mayo in Rochester but without any success. I still do not know what is causing them and how they are related to PCS. I will send you a mail with some details. Rich > > You mention hot flashes. For almost 2 weeks now, I have had what I > guess you could call hot flashes, but I'm in my 20s. Does anybody else > get warm or hot and tired instead of cold and tired? I just need to > know if this is normal. I was only diagnosed in May of 2007. Also, any > advice about what to do when these " hot flashes " hit? Does anybody > else get them with nausea and fatigue? I really need some advice. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 My sister is 27 years old and has PSC and Crohn's. She just went off a 5 month round of Prednisone and is having " tired " attacks. She said she feels ok and then BAM! she gets extremely tired, eyes rolling back in her head. After about 15-20 minutes she feels fine. She had these attacks before Prednisone but not many while she was on it. Could these be more related to her PSC which has mainly been asymptomatic? She has two young children at home and I know this does not help related to her stress/energy level. Any thoughts/ideas on how to deal with these would be appreciated. > > I was waiting one year for someone who has hot flashes. Last year I > went thru all kind of tests in NY, Boston and Mayo in Rochester but > without any success. I still do not know what is causing them and > how they are related to PCS. I will send you a mail with some > details. > > Rich > > Quote Link to comment Share on other sites More sharing options...
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