Re: Cheryl

[Guest guest]

Thanks Cheryl,

But I may have spoken to soon again. My computer has frozen on me twice already this morning and I get this black screen with lines that look like this across the top of the my screen IIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIII Then I have to hit ctrl, alt, delete to restart. This is getting frustrating. Don't think I'm gonna get my DSL just yet How you doin, Cheryl?

Hugs.....

Karol

Karol's back

Glad your back in business. Cheryl in CA

[Guest guest]

Hi Cheryl and thanks for the warm welcome. I have told Sandy about this

group but she does not feel she needs a support group. She just wants

the Lupus to go away. At times she does admit she is still in denial

stage. But I do send her some of the groups email. Deanna had some good

info that I had sent to Sandy. One of the questions she has is if the

weather has anything to with her joint pains. I also sent her the " cafe

press " site and how to love your dust bunnies (she is a clean freak).

This is one of the best Lupus support groups I have been able to find.

I have learned so much about Lupus and what its like to live with it

everyday. I know now how Sandy is feeling every day. She emailed me the

other day to tell me that lesions on her face are recuring and is not

happy about it. For meds she is talking Plaquenil and celebrx (sp???)

for now. Thank you and all the other members for putting up with me and

for Letting me into your lives and for all the wealth of information I

have received. Its a pleasure to getting to know you all.

xoxoxo, natalie from boston

[Guest guest]

Cheryl,

I'm glad that it sounds like you guys will have some " roots " down

soon, even if DH is still going to do long-distance driving. That

will allow you to hopefully find a good rheum, start some sort of

fibro meds/therapy and gain some relief! Plus, that SSI process is a

pita - my attorney and I are now waiting on a hearing date, anywhere

from 12-15 months from now, although my chances have increased

exponentially since I started as I have added fibro, COPD, congestive

heart failure and vascular blockages, as well as my asthma and

diabetes.

You know we're just a " click " away in cyberspace and once you get

settled, you should check to see who else is in your region who may

have recommendations on docs, etc.

(((Hugs))) Hope you feel better soon!

Darlene

> It's 6:23 here and we have a beautiful sunrise coming up. I've

never been

> much of a sunrise person...always liked sunsets better and still

do...but, I

> must say that since we moved here to the Mojave Desert, there have

been some

> beautiful sunrises. I'm not a morning person either, but the change

in the

> weather here has changed my sleep schedule and fibro pain...to

worse, of

> course. Who would have ever thought that you could live in the

desert and get

> freezing temperatures and the mountains that are only a few miles

to the west of

> us have snow on them!!

>

> Love and gentle hugs,

> Debi/Central Cal.-55

>

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> 2050827?NCID=aolcmp00300000002598)

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