Guest guest Posted November 20, 2011 Report Share Posted November 20, 2011 Sherry and GroupOur kids need a lot more than a PCA for 2 to 4 hours so we can live a normal life. Personal Care Assistants are designed for individuals who require limited assistance with bathing and so forth. Personal Care workers provide assistance with everyday activities, such as bathing, grooming, toileting, shopping, cooking, laundry and other daily errands, in order to help an individual stay as healthy as possible. Duties do not include medical activities, such as catheterization or cleaning of medical instruments.Read more: The Medicaid Standards & Training for Personal Care Assistants | eHow.com http://www.ehow.com/facts_7321292_medicaid-training-personal-care-assistants.html#ixzz1eGas0eVIThis PCA title is not designed for an autistic child. Its designed for a disabled person who requires help with Activities of Daily Living that require limited help. Our kids low functioning or High functioning require more than what the state can provide. Sherry we love our kids and this is why we want to fight. We are angry because we try our hardest to maintain a family and we see others who can't imagine what we go through. If the education system says everyone has the right to an equal education. Then everyone should have the right to be admitted to an equal opportunity after school program as well. Then we wouldn't have to rely on PCA so much. Thats the problem right? Where do we place our kids after school so we can work and provide for our families. this is what we need. For the community we live in to accept our children. I don't think I ever meet you Sherry but the government needs a new law. Don't you think? Milian aka Enzo's mom The local FCC's have the knowledge of what your areas needs are... the chair or someone appointed goes to the state meeting every other month. The next one is January. It is near the Orlando airport. Right now your chair fly's up to the meeting and back; airport. Shuttles to hotel. You can stay one or two nights...this is paid out of your budget...you get $9,000 locally to vote how you choose to spend it. The decisions being made in Tallahassee need family voices... lots of changes are being made and the families attending are families who have older children so the older voice needs are being heard. Right now Tally hears that the school system is fulfilling all the people with disabilities needs under age 22... if this is not true they need your voices.. the voices from families come from FCC's Also from my friend , who is an FCC-chair and also travels to the state meetings. . . . yes you can... The child care staff that does the special needs unit at the park district watches the kids.. your park district should have a special needs contact person... check with special Olympics too see if they want to offer some of their volunteers because they are already screened..also some of your support companies might want to volunteer so they can PR with families for business...respite company support in home company... EVERY FAMILY on the wait list who has a child on Medicaid should be getting PCA 2 to 4 hours of support a day. DID ANYONE ELSE KNOW THIS? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2011 Report Share Posted November 21, 2011 There should also be eqaul access to the med waiver program for our kids as well. I have been waitlisted for a long while and I can't imagine how wonderful my life would be if I had assitance from a PCM even for just an hour a day. I believe that it is blatant discrimination that some should be able to get services through the med waiver program while others of us struggle with our everyday existence doing it ALL on our own. That should be the first priority for our community. Re: FCC-10 Sherry and Group Our kids need a lot more than a PCA for 2 to 4 hours so we can live a normal life. Personal Care Assistants are designed for individuals who require limited assistance with bathing and so forth. Personal Care workers provide assistance with everyday activities, such as bathing, grooming, toileting, shopping, cooking, laundry and other daily errands, in order to help an individual stay as healthy as possible. Duties do not include medical activities, such as catheterization or cleaning of medical instruments. Read more: The Medicaid Standards & Training for Personal Care Assistants | eHow.com http://www.ehow.com/facts_7321292_medicaid-training-personal-care-assistants.html#ixzz1eGas0eVI This PCA title is not designed for an autistic child. Its designed for a disabled person who requires help with Activities of Daily Living that require limited help. Our kids low functioning or High functioning require more than what the state can provide. Sherry we love our kids and this is why we want to fight. We are angry because we try our hardest to maintain a family and we see others who can't imagine what we go through. If the education system says everyone has the right to an equal education. Then everyone should have the right to be admitted to an equal opportunity after school program as well. Then we wouldn't have to r ely on PCA so much. Thats the problem right? Where do we place our kids after school so we can work and provide for our families. this is what we need. For the community we live in to accept our children. I don't think I ever meet you Sherry but the government needs a new law. Don't you think? Milian aka Enzo's mom The local FCC's have the knowledge of what your areas needs are... the chair or someone appointed goes to the state meeting every other month. The next one is January. It is near the Orlando airport. Right now your chair fly's up to the meeting and back; airport. Shuttles to hotel. You can stay one or two nights...this is paid out of your budget...you get $9,000 locally to vote how you choose to spend it. The decisions being made in Tallahassee need family voices... lots of changes are being made and the families attending are families who have older children so the older voice needs are being heard. Right now Tally hears that the school system is fulfilling all the people with disabilities needs under age 22... if this is not true they need your voices.. the voices from families come from FCC's Also from my friend , who is an FCC-chair and also travels to the state meetings. . . . yes you can... The child care staff that does the special needs unit at the park district watches the kids.. your park district should have a special needs contact person... check with special Olympics too see if they want to offer some of their volunteers because they are already screened..also some of your support companies might want to volunteer so they can PR with families for business...respite company support in home company... EVERY FAMILY on the wait list who has a child on Medicaid should be getting PCA 2 to 4 hours of support a day. DID ANYONE ELSE KNOW THIS? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2011 Report Share Posted November 21, 2011 If you want to change things, get involved-especially with this group. None of us can complain from the sidelines. It is a direct line to what is going on at the state level, and that concerns all of us. PCA’s can be for anyone who qualifies for the med waiver-why wouldn’t you think it wouldn’t be for kids with Autism? What gets me is why wasn’t the information disseminated to the families that wait list kids who are on Medicaid get this service. Something is better than nothing, and I don’t know who wouldn’t benefit from access to this change.Sherry Quote Link to comment Share on other sites More sharing options...
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