To Debra B. --- Anger and misery... hugs from me

[Guest guest]

In a message dated 2/24/08 12:53:11 P.M. Eastern Standard Time,

ladybug75901@... writes:

Most of us have been very accomplished and strong people before the beast

grabbed us.

When I read this I thought " Could that be a clue? Could it attack this type

of person more than another? " It's an interesting thought. When I stop and

think about it-it is fact-at least for all those that I know have this

disease. All very accomplished, active people with lots to do in life. Hmmmm.

~Jennie

**************Ideas to please picky eaters. Watch video on AOL Living.

(http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/

2050827?NCID=aolcmp00300000002598)

[Guest guest]

Debra,

So sorry to hear of all the miseries you are suffering. I understand

completely why we have not seen you here much. I have fallen so far behind here

I will never catch up. But I try to pick a few posts each day I can respond to.

I believe that the Lyrica may be causing the swelling. I think that is one of

the side effects. You are on a mega dose too. BUT,,,, if it is helping you any

then the doctor might feel the benefits outweigh the side effects.

Ok... the anger. I am with you on that. I went through weeks and weeks of

pure anger. It finally let up some the last 2 weeks. I get so mad at this

illness, its invisibility, its way of taking our lives away from us and turning

us to some mere existence of a shell of what we once were or wanted to be.

Anger is so normal for us. I also get even more anger with the disbelief I hear

from others sometimes.

Really, people that don't believe us need to read letters like the one you

wrote. An accomplished woman that has dreams and once had energy to reach for

them who was taken to the limit by fibro. This is proof in itself we are not a

bunch of lazy ass people who want sympathy. Most of us have been very

accomplished and strong people before the beast grabbed us. We lose what we

wanted to become in life, we lose time with our children and grandchildren, some

us lose relationships and everything that ever made our lives worth while.

And the disability thing. Honey, I say take whatever you can get and NEVER

feel guilty about it. If anyone with the power to hand disability money to us

had this crap for even ONE day, they would never hesitate to hand it over. But

I understand the anger that you feel so incapicitated and cannot pursue the

dream of teaching.

Weight gain? I have gained weight simply because my life has become so

sedentary. I do not do a thing but lay on the couch on my days off from work.

I still work out of pure necessity. But the beast has me so tightly wrapped

that it takes away the little things I would do with my off time. I don't ever

clean the house, don't take my children anywhere, and hardly move around anymore

at all when I am home. But I have decided that I except my body for what it is

when it comes to weight. I really don't care anymore or think I can strive to

look like I once did. I accept it because this body goes through hell everyday.

So I will love it with the extra fat I have. It is all a gift from the lovely

beast called " fibromyalgia " .

Well, this is long. But I wanted to answer you because I understand

everything you are feeling.

love and hugs,

Debra V.

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