Re: Post and some thoughts.. YOU ARE always my friends. Marti Snow

[Guest guest]

You also always are so positive with your posts. I hope the chemo has

settled down with causing any bad side effects, trying to reintroduce you to the

BR and stuff, it doesn't realize we already know it quite well with the Fibro at

times huh? haha, We got snow up here in ME also but less then they said 3 inch,

but sun out to, which is a tease as we are due for 12 inch Tues! I am really

wishing for warm weather because I am betting, or at least hoping some of this

pain will disappear!,or at least I will get some more energy? sun has always

been my relaxation, but who knows I have never been this bad for so long, time

will tell I can only say. I hope you are not expecting this snow if you already

got that much snow. I hope you can find away to bring is some income. Are u

lucky enough to be crafty in anything I am not but wish I were, as I don't know

what to do for income either while homebound. I have started the SSD paperwork

but have been quickly discouraged, it

is just exhausting, I have not been able to complete it and it has been 4 days,

to much, and then I keep thinking well maybe I will feel better and can go back

to work, but worry what if I do, and work, does what it did to me, and I work

and wake up and can't get out of bed. MInd is flip flopping on me. Well I hope

you stay warm, enjoy the sun while it is out though we are inside, and you

continue to keep your great attitude. I am thinking of you, and what you are

going through every day, and prayers are with you.

Sharon

Marti Boguski wrote:

Hi Debra,

You've probably already left for work. But it will be here when you get back.

You are the dearest, sweetest person. I just feel so happy when I see your name.

You always have something nice to say to whomever needs it. And you are always

so nice to me.

I wish you could get the rest you need before you enter the outside world. I

know what you mean about sitting on the couch just dozing on and off. I have

spent some days doing that and I don't go to work. Though I'm desperatly trying

to come up with some way to make some money. I still don't think I could do the

crueling job you do. You are such a trooper. And such a strong, positive person.

A role model for all of us.

I would like to get myself to go out in the world more. I seem to stay cooped up

in the house most of the time. Right now we have 8 to 10 " of snow on the ground

and it is very cold so I am glad I don't have to go out today. At least the sun

is peeping through. Haven't seen that in a long time.

I hope work wasn't too bad today.

Blessed be,

Marti

debra van ness wrote:

Well, just to let everyone know I could only look so far in my mail today. I

wish I could sit here and read everyone's mail. It would bring joy to my life to

be able to do that. I love you all in this common bond we have. It is kind of

like it is You and Me against the world here.

I believe someday that pandora's box will open and they will find THE culprit to

this curse of an illness. (hopefully in our lifetime). I believe they will once

and for all SEE the damn creature. Then and only then will it be understood.

Then the people who have treated us with such disbelief and uncaring will open

their eyes and say " Oh my gosh, it IS real " . They will realize what kind of

emotional pain they have given us with the uncaring suspicious attitudes. The

best news will be that medicine will find a way to deal with this monster face

to face. This will be when and only when they can see its ugly face. Hard to

fight something that cannot be seen, isn't it?????

Well, for now gotta go and get to work in a little bit. I will once again drag

my butt in there.

However, another part of me is glad that I am going. It is a reprieve from

sitting on the couch and napping on and off all day. (though that is what my

body needs, my mind needs some outside stimulation to keep the depression at

bay).

Love to you all,

YOU will ALWAYS be my friends no matter what,

Debra V.

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