Re: New Here Patti

[Guest guest]

HI Patti I am newer to the group, but wanted to say hope you find solace,

info., and good with the bad here as I have. I find time to get on every day as

it has been my hope to keep me going as I recently have not been able to work

and have been housebound pretty much since Nov. I have no energy, pain all the

time and whatever else feels like acting up each morn., that I don't expect.

But for you, boy you have your plate full, as you'll find there are a few others

here that also have alot more than the Fibro they are dealing with. Me I am

begining to feel I have it minor to some most are going through here. I am

sorry to hear about your husband, and so young!, my Aunt had that, and I took

care of a gentleman some years ago who was 50 yrs old, and another man also who

was older, it is a awfull disease, and I hope he is able to hold it off for some

time. But his and your daily struggles are unbelievable and yet you keep going

that is great. I can only say I get

empowered by people like you, and If I were you I would be shedding alot of

tears behind closed doors, as it is a relif I find myself doing now, as I get so

mad, that the chose is that or go out the door and look like a nut hollering at

the world. I hope you have help as your husband's disease progesses, and u take

time for youself to rest, unwind, and try and find enjoyment in something each

day. Sharon

Patti wrote:

Good Morning,

I am new to your group. My name is Patti and I am from Liverpool,NY.

I have fms/myofascial pain complex. It has been about 10 years for

me. I am 55 years old. I take skalaxin for muscle spasms. I take

celebrex for my all over body arthritis. I have had cervical spine

surgery for the stenosis. I also have a plate in my front neck that

covers 3 levels. I also go to water therapy and message therapy. I

also use Sombra, a message lotion that has a anti-inflammatory and it

is all natural herbs. The PT people use it in their office so they

let me buy it from them. It isn't sold in stores. They sell the jar

for $11. It last quite awhile.

My hardest thing is I have to do everything around our home becasue my

hubby has ALS, Lou Gehrigs disease. He is 43 and has upper limb

weakness. He doesn't have the strength to even lift his arms pat his

waist. HIs legs are weakening also. He is still amazingly working

full time. He works in a office with many wonderful people that help

him. He uses a bluetooth for phones and a voice activator software

for typing. He won't be able to work at the office to much longer.

Once he can no longer go to the mens room on his own. Then he can

work from home until the disease stops him. It has been 3 years. I

am telling you this so you'll know why I do it all even when I just

want to sit down and cry of pain. I have no choice. I take ambien

for sleep. If I don't sleep at least 5 good hours I suffer all day.

I have read many of the post and see that I am not alone!!

I hope you all have a wonderful day

Patti

[Guest guest]

Hello Patti!

I used to live in New York (upstate) as a kid, but moved to Georgia

as a teenager and haven't gone back.

I am so sorry to hear that your DH is also afflicted with such a

horrid disease. You both will be on my prayer list. I think that it

is extremely courageous for him to keep on working; a lot of folks

wouldn't, you know? I know there'll come a time when he can't, but

that's not here yet!

I thought of one possibility for help for you and you guys may

qualify - can you get someone to come in and clean for you and

perhaps make at least 1 meal (dinner)? That would take some stress

off of you both. Looking around and seeing what has to be done and

being unable to do it, well......it can be depressing! Just a

thought! Or, if you belong to a church family, why not see if some

of the youth girls would like to earn a little extra cash? Most do.

As for the yard stuff, the youth guys could do it as a service

project. I am a big believer of utilizing your resources!!!!!

Patti, you are NOT alone. Feel free to put your questions out there,

vent, cry, whatever. Someone will answer.

(((Hugs))))

Darlene

>

> Patti wrote:

> Good Morning,

> I am new to your group. My name is Patti and I am from Liverpool,NY.

> I have fms/myofascial pain complex. It has been about 10 years for

> me. I am 55 years old. I take skalaxin for muscle spasms. I take

> celebrex for my all over body arthritis. I have had cervical spine

> surgery for the stenosis. I also have a plate in my front neck that

> covers 3 levels. I also go to water therapy and message therapy. I

> also use Sombra, a message lotion that has a anti-inflammatory and

it

> is all natural herbs. The PT people use it in their office so they

> let me buy it from them. It isn't sold in stores. They sell the jar

> for $11. It last quite awhile.

> My hardest thing is I have to do everything around our home becasue

my

> hubby has ALS, Lou Gehrigs disease. He is 43 and has upper limb

> weakness. He doesn't have the strength to even lift his arms pat his

> waist. HIs legs are weakening also. He is still amazingly working

> full time. He works in a office with many wonderful people that help

> him. He uses a bluetooth for phones and a voice activator software

> for typing. He won't be able to work at the office to much longer.

> Once he can no longer go to the mens room on his own. Then he can

> work from home until the disease stops him. It has been 3 years. I

> am telling you this so you'll know why I do it all even when I just

> want to sit down and cry of pain. I have no choice. I take ambien

> for sleep. If I don't sleep at least 5 good hours I suffer all day.

> I have read many of the post and see that I am not alone!!

>

> I hope you all have a wonderful day

> Patti

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