Re: twisted/rotated pelvis ?

[Guest guest]

Great assumptions. I too have wondered, because I have one side of my body higher than the other and a slight curviture of the spine (scoliosis) but didn't think much of it till you posted this.....hmmmm....

Thanks for your insight.

Tina.

twisted/rotated pelvis ?

Hello! I've been a member for a while but this is my first post.I wanted to ask if anyone else has been connecting vaginal pain with atwisted/rotated pelvis.I'm 23 and I've had vulvar vestibulitis for about three years.I'm currently in physical therapy, and I've tried other things too like modifieddiets, yoga, estrogen cream, and acupuncture.I just started seeing a new acupuncturist. She has a different approach, sheseems to combine acupuncture with orthopedics/chiropracty. There's a lot of manipulation, she uses her hands and inserts needles into the ligaments. She is working to release certain muscles in my lower back (which run directly to the perineum) and also to correct the alignment of my pelvis, which is quite tilted and rotated. She thinks this could have a lot to do with the pain I'm experiencing...since all the muscles in that area are so intertwined.She is not an expert on vulvodynia, but she is a well respected acupuncturistand she seems to have a very good sense of the body.I've never heard very much about twisted pelvises in the vulvodynia community.The odd thing is physical therapist told me that there was nothing wrong with myalignment. I also saw a vulvodynia specialist (Dr. Tu) who told me that there is*sometimes* a connection between vulvodynia and pelvis alignment, but that most people have pelvic problems anyway. He seemed vague...and dubious about the connection.It is too early in my new treatment for me to really have a solid understandingof how much these things relate to each other,But I was wondering if anyone else sees a correlation?I also know that many people with vaginal pain also suffer from IBS. It couldmake sense that you would also suffer from digestive troubles if your body in that area issomehow twisted and different things are being pulled on.

[Guest guest]

Hi,I have issues with a misaligned pelvis and I know beyond a shadow of a doubt it has contributed to my pain. I am actually traveling to Ohio tomorrow to see the PT that posts on this group. His name is Tom Ockler. He is very knowledgeable about the connection of misalignment's and pelvic pain. My situation has become from very involved. I'll see if we can Tom's input on this...Glad you posted...ChelleSubject: twisted/rotated pelvis ?To: VulvarDisorders Date: Thursday, August 14, 2008, 1:58 PMHello! I've been a member

for a while but this is my first post. I wanted to ask if anyone else has been connecting vaginal pain with atwisted/rotated pelvis. I'm 23 and I've had vulvar vestibulitis for about three years. I'm currently in physical therapy, and I've tried other things too likemodified diets, yoga, estrogen cream, and acupuncture. I just started seeing a new acupuncturist. She has a different approach, sheseems to combine acupuncture with orthopedics/chiropracty. There's a lot ofmanipulation, she uses her hands and inserts needles into the ligaments. She is working torelease certain muscles in my lower back (which run directly to the perineum) and also tocorrect the alignment of my pelvis, which is quite tilted and rotated. She thinks thiscould have a lot to do with the pain I'm experiencing...since all the muscles in that area areso intertwined. She is not an expert

on vulvodynia, but she is a well respected acupuncturistand she seems to have a very good sense of the body. I've never heard very much about twisted pelvises in the vulvodyniacommunity. The odd thing is physical therapist told me that there was nothing wrong withmy alignment. I also saw a vulvodynia specialist (Dr. Tu) who told me that there is*sometimes* a connection between vulvodynia and pelvis alignment, but that most people havepelvic problems anyway. He seemed vague...and dubious about the connection. It is too early in my new treatment for me to really have a solid understandingof how much these things relate to each other, But I was wondering if anyone else sees a correlation? I also know that many people with vaginal pain also suffer from IBS. It couldmake sense that you would also suffer from digestive troubles if your body in that area issomehow

twisted and different things are being pulled on

[Guest guest]

Ramonamittle, Hey there, I'm not new either. It's just taken this long to actually post and interact. Don't really have a good reason or excuse. Maybe it is the daily depression of VV. I am 10 years older than you. Great to meet you.

Tina.

twisted/rotated pelvis ?

Hello! I've been a member for a while but this is my first post.I wanted to ask if anyone else has been connecting vaginal pain with atwisted/rotated pelvis.I'm 23 and I've had vulvar vestibulitis for about three years.I'm currently in physical therapy, and I've tried other things too like modifieddiets, yoga, estrogen cream, and acupuncture.I just started seeing a new acupuncturist. She has a different approach, sheseems to combine acupuncture with orthopedics/chiropracty. There's a lot of manipulation, she uses her hands and inserts needles into the ligaments. She is working to release certain muscles in my lower back (which run directly to the perineum) and also to correct the alignment of my pelvis, which is quite tilted and rotated. She thinks this could have a lot to do with the pain I'm experiencing...since all the muscles in that area are so intertwined.She is not an expert on vulvodynia, but she is a well respected acupuncturistand she seems to have a very good sense of the body.I've never heard very much about twisted pelvises in the vulvodynia community.The odd thing is physical therapist told me that there was nothing wrong with myalignment. I also saw a vulvodynia specialist (Dr. Tu) who told me that there is*sometimes* a connection between vulvodynia and pelvis alignment, but that most people have pelvic problems anyway. He seemed vague...and dubious about the connection.It is too early in my new treatment for me to really have a solid understandingof how much these things relate to each other,But I was wondering if anyone else sees a correlation?I also know that many people with vaginal pain also suffer from IBS. It couldmake sense that you would also suffer from digestive troubles if your body in that area issomehow twisted and different things are being pulled on.

[Guest guest]

It's me Tina again. I have and do yoga 2x's a month and have taken both oral and topical approaches and even compounds. I have had it for four years. It came on not even a year after my marriage, and my husband is suffering too in his own way.

twisted/rotated pelvis ?

Hello! I've been a member for a while but this is my first post.I wanted to ask if anyone else has been connecting vaginal pain with atwisted/rotated pelvis.I'm 23 and I've had vulvar vestibulitis for about three years.I'm currently in physical therapy, and I've tried other things too like modifieddiets, yoga, estrogen cream, and acupuncture.I just started seeing a new acupuncturist. She has a different approach, sheseems to combine acupuncture with orthopedics/chiropracty. There's a lot of manipulation, she uses her hands and inserts needles into the ligaments. She is working to release certain muscles in my lower back (which run directly to the perineum) and also to correct the alignment of my pelvis, which is quite tilted and rotated. She thinks this could have a lot to do with the pain I'm experiencing...since all the muscles in that area are so intertwined.She is not an expert on vulvodynia, but she is a well respected acupuncturistand she seems to have a very good sense of the body.I've never heard very much about twisted pelvises in the vulvodynia community.The odd thing is physical therapist told me that there was nothing wrong with myalignment. I also saw a vulvodynia specialist (Dr. Tu) who told me that there is*sometimes* a connection between vulvodynia and pelvis alignment, but that most people have pelvic problems anyway. He seemed vague...and dubious about the connection.It is too early in my new treatment for me to really have a solid understandingof how much these things relate to each other,But I was wondering if anyone else sees a correlation?I also know that many people with vaginal pain also suffer from IBS. It couldmake sense that you would also suffer from digestive troubles if your body in that area issomehow twisted and different things are being pulled on.

[Guest guest]

While it's odd that your acupunturist noticed a misaligned pelvis and

your PT didn't, I'm not going to dispute her claim. I have scoliosis,

and I know that was the direct cause of my problems (that and

bellydancing too much...i'm not a fan of pacing myself, lol). Before

I started PT, my hips were badly tilted so my L hip was higher than my

R, and the internal muscles were actually tilting my vaginal canal!

Have you mentioned your acupunturist's theory to your PT yet? There

could be some merit.

It has also been suggested to be that I have IBS, though I've heard

it's mostly a catch-all term for " your tummy's mean to you and we

don't know why " . Not discrediting the diagnosis, but yeah, I've been

told I have it, if that helps you any.

For the record, PT helped me with my alignment, which effectively took

my pain from 98% of a day to less than 2%...I can even have sex now!

So if this is the problem, there is hope (not to say there isn't if

this isn't the problem, obviously)!

Beth

p.s. I'm 22, and have been suffering for almost 2 years. It's neat to

find someone else close to my age!

>

> Hello! I've been a member for a while but this is my first post.

>

> I wanted to ask if anyone else has been connecting vaginal pain with a

> twisted/rotated pelvis.

>

> I'm 23 and I've had vulvar vestibulitis for about three years.

> I'm currently in physical therapy, and I've tried other things too

like modified

> diets, yoga, estrogen cream, and acupuncture.

>

> I just started seeing a new acupuncturist. She has a different

approach, she

> seems to combine acupuncture with orthopedics/chiropracty. There's a

lot of

> manipulation, she uses her hands and inserts needles into the

ligaments.

> She is working to release certain muscles in my lower back (which

run directly to the

> perineum) and also to correct the alignment of my pelvis, which is

quite tilted and

> rotated. She thinks this could have a lot to do with the pain I'm

experiencing...since

> all the muscles in that area are so intertwined.

>

> She is not an expert on vulvodynia, but she is a well respected

acupuncturist

> and she seems to have a very good sense of the body.

>

> I've never heard very much about twisted pelvises in the vulvodynia

community.

> The odd thing is physical therapist told me that there was nothing

wrong with my

> alignment. I also saw a vulvodynia specialist (Dr. Tu) who

told me that there is

> *sometimes* a connection between vulvodynia and pelvis alignment,

but that most people

> have pelvic problems anyway. He seemed vague...and dubious about the

connection.

>

> It is too early in my new treatment for me to really have a solid

understanding

> of how much these things relate to each other,

> But I was wondering if anyone else sees a correlation?

>

> I also know that many people with vaginal pain also suffer from IBS.

It could

> make sense that you would also suffer from digestive troubles if

your body in that area is

> somehow twisted and different things are being pulled on.

>

[Guest guest]

Hi Beth,

I know what you mean about IBS being a catch all term. I haven't actually been

diagnosed

with it myself, I just have a lot of the symptoms.

My acupuncturist also made a great suggestion for digestive troubles - chewing!

It sounds really obvious but I don't think I was chewing my food enough.

Her suggestion was 40 chews per bite, and I am actually doing much better

digestive wise.

Not that this would instantly solve everyone's digestive problems, but I'm

guessing most

people don't chew their food enough, and if you are already having issues in

that area of

the body, that could just be overwhelming to your system.

If you don't mind my asking, I am curious what part of PT do you think helped

with your

alignment?

I don't feel like my PT has really touched on that at all. The main thing I have

gotten out of

PT was being introduced to the dilators and how to work with them slowly etc

(which has

definitely helped)

Other than that she has done internal work (mainly seems to be a checking of

where I am

at) and occasionally some forms of massage/pressure.

My left hip is also higher and more forward than my right!

My pain is very localized at the 6 o'clock position of the vaginal opening, it

seems very

surface-y, more to do with the perineal muscle than with anything in the vaginal

canal.

That's really wonderful that you are doing so well pain wise! Congrats. It's

encouraging to

hear.

Thanks to the others who responded as well.

I'm curious to know more about Tom Ockler.

[Guest guest]

My pain was also primarily at the 6:00 position, and didn't have as

much to do with the canal as the vestibule (though there was deeper

pain, but that's from the PFD). The dilators helped me, but it was

mostly manual stretching that took that pain away-the dilators

loosened it up, then I stretched it further myself. Not the most

pleasant thing in the world, but I can't argue with the results! But

I have my own issues with dilators that aren't necessarily relevant.

The thing that helped the most with my alignment was the stretching

that my PT had me do with my hip muscles. She would work on them

herself, loosening tight muscles in my inner thighs/butt, and then

gave me funky stretches to help promote the looseness. She said that

stretching for more than 90 seconds would yield the best results, and

it definitely has for me! She also gave me a shoe insert to put in my

right shoe to lift my heel to help with my balance, and told me to

lean to the right when I'm standing and feel the need to lean

(obviously not leaning is the best, but I'm not the most fit person,

and leaning's more comfortable for me). At this point, I'm done with

the lift (it's summer, so I'm wearing sandals most of the time), but

stick with the right-leaning.

Any other questions you have for me, please don't hesitate!

Beth

>

> Hi Beth,

>

> I know what you mean about IBS being a catch all term. I haven't

actually been diagnosed

> with it myself, I just have a lot of the symptoms.

>

> My acupuncturist also made a great suggestion for digestive troubles

- chewing!

> It sounds really obvious but I don't think I was chewing my food

enough.

> Her suggestion was 40 chews per bite, and I am actually doing much

better digestive wise.

> Not that this would instantly solve everyone's digestive problems,

but I'm guessing most

> people don't chew their food enough, and if you are already having

issues in that area of

> the body, that could just be overwhelming to your system.

>

> If you don't mind my asking, I am curious what part of PT do you

think helped with your

> alignment?

> I don't feel like my PT has really touched on that at all. The main

thing I have gotten out of

> PT was being introduced to the dilators and how to work with them

slowly etc (which has

> definitely helped)

> Other than that she has done internal work (mainly seems to be a

checking of where I am

> at) and occasionally some forms of massage/pressure.

>

> My left hip is also higher and more forward than my right!

> My pain is very localized at the 6 o'clock position of the vaginal

opening, it seems very

> surface-y, more to do with the perineal muscle than with anything in

the vaginal canal.

>

> That's really wonderful that you are doing so well pain wise!

Congrats. It's encouraging to

> hear.

>

> Thanks to the others who responded as well.

> I'm curious to know more about Tom Ockler.

>