Re: How to make family understand? Debra

[Guest guest]

Just read your post and it is weird, yesterday I laid here thinking the same

thing which I have explained to my Dr. before, I look around and I feel neither

here or there in some out of space type world. I to don't sleep, and when I do

I wake worse than when awake, it takes me about 2-3hrs to get up now. Most

morns, I have to have help moving position to sit up in bed, and each movement

is tremdous pain, I to take vicodin and before I can even think of moving I have

to have some yoguart, pain med, musle relaxor, I take Soma which has been the

only one that has not dropped my b/p so feel like fainting all the time. I

tried the amitriptyline and that was really bad, lightheaded, and carried way

over into late morn. I now have ambien p.r.n for HS but don't use it much as it

doesn't put me to sleep for more than 3 hrs if that. I am sick of pills, but

take them because they take the edge of, and that is all they do, my insides

feel screwed up, and I know the damage that can

be done with the pain med to the liver, and my family have not been dealt

healthy livers to begin with, but I keep taking them, and as you do not get

buzzed, as alot of people think,I to also worked in the heathfield as a med

tech/ CNA and know what alot of these drugs are, I have tried every possible TX

before having to go on script meds., it has been on and off and now on steady

for 4 yrs. I have them check my liver emzymes all the time as I get nervous and

they do it more often, yet I can not not take them I tried going without for 2

mo's and only threw myself in such a state of pain I was getting shots and Dr.

had suggested putting me in Hosp. for pain control. I hope the best to you

all who don't have to use meds. Debra I know your job as a nurse is very

stressfull and hope you are able to feel better soon for longer periods of time.

Sharon

debra van ness wrote: Charlotte, I think Judy

has the right idea. It seems so unbelievable to others that we can feel this bad

all the time. It does feel like someone has beaten us. It feels like bruises

that are trying heal. (or fresh bruises). On top of that it feels like we have

not slept in a week even after a night of " sleep " . A night of sleep to us does

no good. It refreshes normal people and they wake up with some energy. We wake

up just as drained as we were before going to bed. Actually, I feel worse after

I have slept all night. The pain is worse in the mornings just from the pressure

of the bed on my body all night.

I have been in a constant state of fog lately. It feels as if I am not really

here. Kind of like some dream state half between sleep and reality. It is not

always just pain that does this. I don't have to be in pain to be exhausted. (of

course the pain gets worse with the exhaustion). For a very few hours of the day

once in a while I feel almost " normal " . I take hydrocodone for pain. NO it does

not drug me up. Most would think so. It does the opposite to me and relieves

some of the pain and fatigue for a short while.

Amitriptyline is not usually much relief for most of us. This med does make most

people very sleepy and tired. It may help you, I don't know. Try it. But it is

in my thoughts just a poor attempt at relief. I have heard that it is of some

help for nerve pain.

hugs,

Debra V. (R.N.)

loveit1@... wrote:

Tell him to stay awake 24/7 for 4days and do constand phsicalwork and then

wright out the monthly bills and write the grocery list and from memory all the

family members and close friends birthdays and what you should get for them and

what sizes thet wear. Oh yeah don't forget to add the clothes pins on the

fingers. I think that might be a starter. Maybe he could do the heavey spring

cleaning and clean the yard and plan a new pay area for the kids. Yes I have

thought about it. I usually remind them when they are sick as dogs that that is

how I feel on a good day.

Sorry for enjoying that happy moment of inflicting fibro on the

nonunderstanding.

JudyMer

---- austin_mom_2000 wrote:

> Hi,

> I was just wondering if anyone had any good ideas as to how to make

> family members understand exactly what we are going through. My

> husband says that he belives there is " something " wrong with me even

> after my many attempts to explain to him that I have been diagnosed

> both by my family physician and rheumatologist. I still believe that

> he thinks it's " all in my head " and doesn't realize what a struggle

> it is to get through the day with our 6 month old daughter who I

> can't sit on the floor with for more than 5 minutes as well as our 9

> year old son. My doctor has just prescribed amitriptilyne? and I

> haven't started taking it yet because I am scared that I will be too

> tired to look after the baby and I don't want that to happen. To

> those of you who are on this drug, how does it make you feel? do you

> feel sleepy all the time? and does it help with the pain or just the

> sleep? I have been suffering with this for 6 years and am longing

> for just 1 day without pain, hopefully that will be possible. I told

> my husband to just let me beat him everywhere with a baseball bat

> before he goes to bed so that he might have an idea of how I feel all

> the time and he just laughs, I don't think he realized that I wasn't

> joking when i told him that's exactly how I feel. Anyways sorry for

> rambling I just need him to understand somehow. Thanks for listening

>

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