Re: I HAVE BEEN SICK FOR 2 YEARS WITH NO IMPROVEMENT.......

[Guest guest]

Have you been checked for Interstatial Cystitis? That is the first

thing that came to mind when I read your post.

Have you made any dietary changes?

I'm sure the other ladies will have ideas, too.

I hope for some relief for you soon.

>

> I have horrible burning in my vulva, pain and frequent urine

urgency. I

> have seen many specialist , took various meds but still no

improvement..

> I noticed that skin around my clit and urethra gets very puffy and

> inflamed ....Perhaps I have something stuck under my skin that

makes me

> so sick I can't even exercise....Please advice ((

>

> Desperate Girl

>

[Guest guest]

do you have lower back pain? you could have a structual problem and

tight muscles referring pain and restricting blood flow causing pain in

that area and skin conditon for lack of blood going to the area and

entrapping nerves!!

[Guest guest]

I think it could be the case with blood flow because as soon as my feet

get a bit cold my vulva hurts much more...generally cold makes me feel

even worse.Please let me know what kind of doctor should I see for it

or if there is anything I could do? This condition made my life a

nightmare....

Desperate Girl.....

-- In VulvarDisorders , " ciallf " wrote:

>

> do you have lower back pain? you could have a structual problem and

> tight muscles referring pain and restricting blood flow causing pain

in

> that area and skin conditon for lack of blood going to the area and

> entrapping nerves!!

>

[Guest guest]

I think it could be the case with blood flow because as soon as my feet

get a bit cold my vulva hurts much more...generally cold makes me feel

even worse.Please let me know what kind of doctor should I see for it

or if there is anything I could do? This condition made my life a

nightmare....

Desperate Girl.....

-- In VulvarDisorders , " ciallf " wrote:

>

> do you have lower back pain? you could have a structual problem and

> tight muscles referring pain and restricting blood flow causing pain

in

> that area and skin conditon for lack of blood going to the area and

> entrapping nerves!!

>

[Guest guest]

i would see a physical therapist that works with pelvic floor

dysfunction..

[Guest guest]

>I have seen two of them but there is no improvement.

> i would see a physical therapist that works with pelvic floor

> dysfunction..

>

[Guest guest]

Hi,

What have you done thus far? What types of docs or physical therapists, etc., have you seen? Which meds have you tried? That way we're not telling you to try things you've already tried. Also, are you on hormonal bc?

Lindsey

[Guest guest]

>

> I have horrible burning in my vulva, pain and frequent urine urgency.

I

> have seen many specialist , took various meds but still no

improvement..

> I noticed that skin around my clit and urethra gets very puffy and

> inflamed ....Perhaps I have something stuck under my skin that makes

me

> so sick I can't even exercise....Please advice ((

>

> Desperate Girl

I am so sorry you are going through this. Have your doctor or a vaginal

specialist check you out and do a biopsy of the area. It sounds like

you could have Lichen Planus which is a skin condition and rare, but can

be treated! I have been going through the same thing for over 30 yrs.

until I found a specialist who once the biopsy results came it, showed

me what I have.

I treat it with a steroid ointment called clobetasol and also with

lidocaine 5% compounded by a pharmacy. There is no cure for this, but

it can be controlled. No one seems to know what the cause is and they

think it may be an auto immune condition. Go see a specialist and have

the biopsy, which for me was painless.

Good Luck.

>

[Guest guest]

My best advice is not to go to a doctor..I did a biopsy and it caused

much worse damage..even though the biopsy came back as completely

normal..over the years I was told that I had Lichens Sclerosis, pre

cancerous cells, auto immuno disease, u name it I was told i had

it..doctors know how to treat with meds as they should as that is

what they are taught..I wanted to heal, so I contacted everyone I

could that healed and right now I am about 95% normal..I was told to

take steroids after being told that I had Lichens Sclerosis and read

about others and how they began spliting, etc I chose not to..I got

my doc to write a prescrption for compunded testosterone, and

estrogen, and took an antifungal for a rare yeast that I never tested

postive for nor did I test positive for anything including LS.

What I did and saw improvements in a week was to follow the

Acid/Alkaline diet that I posted in the past on this website. I have

been eating fruit thinking that it was alkaline which it is to many

but not with people with compromised immune systems which we have

with this..I realized, the same lacerations that were on my vulva

looked like the canker sore on my lips when I ate fruit..it all makes

sense but if you want to heal, u have to really educate yourself..I

have been dealing with this for 4 years and just now seeing huge

improvemnt the past 2 weeks by following the plan I have mentioned..I

really think it is diet and yeast realted even if your cultire comes

back negative..that is my advice for what it is with if u want to

heal..go to a doctor if you want to be treated and I would be very

careful of what ypu put down there!!