Guest guest Posted March 5, 2001 Report Share Posted March 5, 2001 Ruth, For the itching have you tried the Demodicidin (sic) Soap or the Chinese Herbal Soap By Chang Shen? They can be found at www.lifestylefascination.com If the itching is caused by the demodex mite, this soap reportedly kills it. I tried the Demodicidin and found it drying but others have had success in relieving their symptoms. It may be worth a try for you. Beth Itching > > > Yes we are the researchers...The last time I saw my derm I asked him if > > there's been any head way into roseacea and sub derm, and abrubtly cut > > me off and said " Nobody knows what causes these things " I got the > > impression that he didn't much care and for me to live with it. > > Which is why so few of us have responded to a database of " good " derms. > > Here's my current problem. I've decided that I can handle everything but > the itching. Once I scratch, I'm going to be broken out for a week or two. > The only thing that has helped it at all is Elocon, which I inderstand is a > huge mistake. I only use it a couple of times a month but it zaps the > itching and swelling instantly. What can I use that isn't harmful? Over > the counter is preferred. > > Ruth > > > > > > ----------------------------------------------------------------- > Please read the list highlights thoroughly before posting to the whole group. See http://rosacea.ii.net/toc.html > > When replying, please delete all text at the end of your email that isn't necessary for your message. > > To leave the list send an email to rosacea-support-unsubscribe > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 Hi --you are definitely not alone in this. There are a number of us with horrible itching. Is your skin dry as well as bumpy? Do you have dermatitis? It probably makes a difference as to how you go about treating this. Are you undergoing photoderm? I have been controlling mine by washing with the demodicidin soap, which works against the demodex mite. I then moisturize with a mix of vitamin E oil and aloe gel. This helps immensely. However, I have very dry skin with no bumps. I've undergone 2 photoderm treatments so far, the last being just this past Thursday. It has really set me back as far as the dryness goes, but I am now recovering with the above regime. I hope this is of some help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 , I definitely got the itching with bumps. It was as if I had two kinds: bumps on my upper cheeks that were small, not itchy, and would go away with sulfacet, and larger ones that would appear so spontaneously either before or after feeling itchy in that spot, mostly on my lower cheeks and chin. (sometimes high on the cheekbone though) Sulfacet or topicals on these would just make them worse - at one point, two turned into a patch of eczema. I think these are hives, and/or also reactions that my skin has when it gets too dry. The eczema certainly showed that (it became this small dime sized patch that was rough, then blistered, oozed, scabbed and finally healed) Taking regular doses of Vitamin C and grapeseed or pycogenol extract has almost cleared me completely of spontaneous hives. I would not even have eaten anything and they would just pop up, though an antihistamine would get rid of them pretty fast. Id just rather take preemptive vitamins then antihistamines. Im pretty sure I carry too much histamine in my blood and/or my capillaries are weak and release it too easily, since a small bump to the forehead results in a large hive-like welt. The itchy dry patches (more like eczema) that sometimes are bumps have cleared as long as I dont forget to moisturize. I used to use Aveeno (which I do still like) but after the Complex 15 suggestion, I went and tried it, and it is great! It goes on so light, but really works, gets rid of the flakiness, etc. Ive noticed that I flare if I shower and forget to moisturize. I go about my business, feel itchy, look in the mirror, and my face is all dry and also red, even in places that aren't dry. Moisture is key to my rosacea control. Ive been able to step down to one every other day with the antibiotics since ive been using moisturizer, vitamin C, sulfacet (not on dry parts!) and grapeseed extract. hope that helps. > Message: 3 > Date: Tue, 17 Apr 2001 12:58:22 -0000 > From: apricotpapaya@... > Subject: itching > > I've been looking through the archives and reading the messages, but I > don't see much about my number one unbearable symptom: facial > itching. My face absolutely crawls at times; it's not a burning, but > rather an itch. It itches only where bumps have appeared on the red > blotchy part of my cheeks and chin. I don't want to scratch, but it > brings such sweet relief. My derm diagnosed me with rosacea, but > sometimes I wonder if that's correct, since my experience is different > than the majority of cases I read about here, at least so it seems. > > I used topical hydrocortisone for 5 days (which was heavenly) but of > course then I had to stop. I am currently using Klaron, along with > Mark's diet (trying to avoid oral antibiotics) and don't yet know what > triggers the itchy bumps. It seems so frustratingly arbitrary when I > get them! > > Does anyone have any feedback on the itching? What is triggering it > and how to stop it? Thanks so much for your help! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 , I, too, have facial itching. That is my first indication that I'm about to have a break out. The first dermatologist I went to (who didn't diagnose cea) perscribed hydrocortisone, as well. However, the second dermatologist who diagnosed rosacea told me not to use hydrocortisone. She put me on a course of antibiotics and Metrogel and that seemed to be the ticket. I still itch from time to time (especially in the spring, go figure) but Metrogel and avoiding those trigger foods gets me back on track. Oh, and sun exposure and heat in general will really make my skin crawl. Good luck. itching I've been looking through the archives and reading the messages, but I don't see much about my number one unbearable symptom: facial itching. My face absolutely crawls at times; it's not a burning, but rather an itch. It itches only where bumps have appeared on the red blotchy part of my cheeks and chin. I don't want to scratch, but it brings such sweet relief. My derm diagnosed me with rosacea, but sometimes I wonder if that's correct, since my experience is different than the majority of cases I read about here, at least so it seems. I used topical hydrocortisone for 5 days (which was heavenly) but of course then I had to stop. I am currently using Klaron, along with Mark's diet (trying to avoid oral antibiotics) and don't yet know what triggers the itchy bumps. It seems so frustratingly arbitrary when I get them! Does anyone have any feedback on the itching? What is triggering it and how to stop it? Thanks so much for your help! ----------------------------------------------------------------- Please read the list highlights before posting to the whole group. See http://rosacea.ii.net/toc.html To leave the list send any email to rosacea-support-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2001 Report Share Posted April 20, 2001 In a message dated 04/20/2001 6:38:52 PM Central Daylight Time, APetty@... writes: > Its seems to be internal > itching. Exactly. Its not on the skin.. almost feels like its on the bone, itself. Wonder what the heck that could be?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 Kristie, I posted a message last week with the same subject line because I have the exact same problem! You should search the archive for it. The responses I got were really helpful! I have things that look and feel like hives, especially under my eyes and on my cheeks. They itch madly, but the skin is neither dry nor oily. I am only using Klaron since I am trying to do without antibiotics. These are the changes I've made since the itching has abated a ton: (I'm not sure which part of this helped me; I'm not very patient with introducing one change at a time, unfortunately!) I wash with Oil of Olay sensitive skin wash. I use Purpose moisturizer. I have started with supplements of Ester C, Grapeseed extract, Flax oil and Evening Primrose oil and I think that has helped a whole lot. Funny you ask this today; I left in a rush and didn't take my supplements for the first time in a while and I have three of those hives as I write! Truly an effect of the supplements? Psychological? Who knows, who cares, I just want to stop itching! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 I have the same problem with hives . I've had this problem for almost 2 years now. It feels like and looks like misquito bites. Is that what yours is like? So do you think its the grapeseed extract thats helping. I though someone had posted before saying they thought that taking grapeseed extract helped. I'm planing on starting to take grapeseed extract and ester c. I hope it helps me. Sheila I > Kristie, > > I posted a message last week with the same subject > line because I have the exact same problem! You > should search the archive for it. The responses I got > were really helpful! > > I have things that look and feel like hives, > especially under my eyes and on my cheeks. They itch > madly, but the skin is neither dry nor oily. > > I am only using Klaron since I am trying to do without > antibiotics. These are the changes I've made since > the itching has abated a ton: (I'm not sure which > part of this helped me; I'm not very patient with > introducing one change at a time, unfortunately!) I > wash with Oil of Olay sensitive skin wash. I use > Purpose moisturizer. I have started with supplements > of Ester C, Grapeseed extract, Flax oil and Evening > Primrose oil and I think that has helped a whole lot. > Funny you ask this today; I left in a rush and didn't > take my supplements for the first time in a while and > I have three of those hives as I write! Truly an > effect of the supplements? Psychological? Who knows, > who cares, I just want to stop itching! > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 Hello, Kristie, and all. Sorry, -- I meant to respond to your email earlier, and seeing this post from Kristie reminded me! Anyway, I used to have itching along the base of my jawline (like, drive you nuts itching), and still have it on my throat. However, I no longer have the itching on my jawline, and the itching on my neck is controlled by an antihistamine gel called Dermarest Plus. (NOT the dermarest that has cortisone in it). It has the same antihistamine as benedryl, but for some reason it works better. Benadryl topical does nothing for my itching. I've also changed my regime to cea Care cleanser, A/R Lite Creme, sometimes preceded with a light layer of Purple Emu emu oil on my wet face, and then sunscreen (Ombrelle for kids SPF45) during the day. I am sun-sensitive aside from the rosacea condition, so I've found that since I've used the sunscreen on my throat also, the itching has reduced. I pretty much always have to use the anti-itch thing on my throat, in conjuction with the sunscreen. But, any purely facial itching has gone. There's my 2 cents! (only 1.3 cents US -- I'm Canadian!! ;-))\ Chantal > Date: Wed, 25 Apr 2001 19:14:47 -0000 > >Subject: Itching > >Hi Group, > >I'm wondering if any of you have itching with your rosacea. At >times I have itching and it about drives me nuts, but it's not all >the time. My dermatologist prescribed Allegra, which is an >antihistamine, but sometimes that doesn't even help. I've tried >benadryl cream, but it only aggravates the problem. Does anyone >have some advice? > >Thanks, >Kristie > > > >________________________________________________________________________ >________________________________________________________________________> > >Message: 25 > Date: Wed, 25 Apr 2001 12:34:35 -0700 (PDT) > >Subject: Re: Itching > >Kristie, > >I posted a message last week with the same subject >line because I have the exact same problem! You >should search the archive for it. The responses I got >were really helpful! > >I have things that look and feel like hives, >especially under my eyes and on my cheeks. They itch >madly, but the skin is neither dry nor oily. > >I am only using Klaron since I am trying to do without >antibiotics. These are the changes I've made since >the itching has abated a ton: (I'm not sure which >part of this helped me; I'm not very patient with >introducing one change at a time, unfortunately!) I >wash with Oil of Olay sensitive skin wash. I use >Purpose moisturizer. I have started with supplements >of Ester C, Grapeseed extract, Flax oil and Evening >Primrose oil and I think that has helped a whole lot. >Funny you ask this today; I left in a rush and didn't >take my supplements for the first time in a while and >I have three of those hives as I write! Truly an >effect of the supplements? Psychological? Who knows, >who cares, I just want to stop itching! > > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 In response to your itching my doc told me to use a toppable anti itch cream. It has worked for me. LEE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 I have seen many questions for help with the intense itching of pruritis. My husband experienced this last year for the first time and after trying a few topical creams and Benadryl recommended by his doctors(transplant team at Tufts-NEMC) - who also admitted there really is nothing they can give him for it - he gave up on that route. He went to an acupuncturist on the theory that relaxing might help, since stress aggravates the itch. That did help. She recommended he also see a naturopath. The naturopath told him to get Sulphur 30 c tablets from the health food store and take them under his tongue whenever he was having a bout of itching. He finally got some relief! He was able to sleep through the night without waking to scratch himself raw. He continues to use the sulphur tablets. The pruritis has not disappeared, but it is much better and he has been able to subdue the itching with the sulphur. I realize everyone is different, but this may help those of you who are not finding relief any other way and it certainly beats taking another drug. Lois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 Hi All, I recently began to take Urso, and noticed I am itching more than usual. Is there any relationship between itching and taking Urso? Thanks, -Mark ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 I don't know if there is any proven relationship between taking Urso and itching, but I do know that itching is one of those things that happens as this disease progresses and your bilirubin levels go up. I tried a bunch of different remedies, all of which were only mildly successful at best. I finally got relief when I took Rifampin, a prescription antibiotic. The downside there is that use of that drug can cause your LFTs to deteriorate, which is what happened to me. Now, I only take it when the itching becomes intolerable. A couple days worth of Rifampin and I'm fine for a couple weeks. Tom PSC 1999, Crohns 2004 > > Hi All, > > I recently began to take Urso, and noticed I am > itching more than usual. > Is there any relationship between itching and taking > Urso? > > Thanks, > > -Mark > > > ________________________________________________________________________________\ ____ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2008 Report Share Posted January 10, 2008 I have mentioned before that UV/B light therapy stopped my itch after several weeks of treatment. A Dermatologist prescribed it so my exposure was well monitored and was covered by insurance. Skin cancer is always a concern. I also recommend getting a good, stiff bath brush with a long handle. It reaches all the difficult spots, especially the upper back, and it stops the scratches and cuts in the skin which only make life worse. I also used petroleum jelly to keep skin soft. It is inexpensive, and has no alchohol to dry out skin like many lotions, the dermatologist also recommended it for some other issues. It doesn't really moisturize, but it keeps the bodies natural moisture from evaporating so the skin heals itself. I don't think it stops the itch but just keeps skin healthy. My liver docs never offered any meds to stop the itch, I don't know why, but ask yours for the pills mentioned and be insistent. Most people do not understand that the ITCH affects your life just as much as pain does. They would never expect you to live with constant pain, so if you need to let the tears fall to convince them you need help---well, whatever it takes. Take Care MizKitStart the year off right. Easy ways to stay in shape in the new year. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 My husband was diagnosed with psc some months ago.He has terrible itching especially at night.He has tried stop itch,ice packs etc but nothing gives him much relief.i have heard about Questron powder and Actigall.Does anyone know if these are available in Oz and if they help with itching. Thanks Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 Pat, There are many different medications that can be tried for itching (the worst is trying nothing). The important thing to remember is to keep trying different things until your husband gets some relief. Over the past 6 years pruritus/itching has been my son’s #1 symptom before transplant and also since his re-diagnosis of PSC 2 years ago…it has caused him MUCH discomfort. We have tried many different therapies…some have worked great for awhile (Rifampin, Flagyl, UV light therapy) while others did nothing (Questron, Actigal, different anti-itch topical ointments). It all depends on the patient…everyone is different and responds differently. My son now takes Zoloft (100mg) and Flagyl (500mg)…he has good days/nights and bad. Talk to your husband’s doctor and have him start trying things. I wish you and your husband the best of luck and success in finding the right treatment. Joanne (mom of Todd, 21, PSC 01, Crohns 02, TX Twice 03, rPSC 05, Diabetes 06, living life to the fullest 08) No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.9/1237 - Release Date: 01/22/08 11:04 AM No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.9/1237 - Release Date: 01/22/08 11:04 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 Pat, Actigall is the same as Urso, so if he's already on Urso it would be redundant. Plus, I don't know of anyone off the top of my head that has gotten itching relief from Urso alone. I personally have used Questran (Cholestyramine), Hydroxizine (industrial strength Benadryl), and ice packs. Typically, I'll mix up the Questran and take it, chill (no pun intended) with the ice packs for a while to take the edge off, and then pop a Hydroxizine to make me drowsy. I can at least get a few hours of sleep that way. Others here I know have had good luck with Rifampin, but the best method I've found for reducing my suffering is to reduce the fat intake in my diet. Hope he can get some relief soon. Peace, Bill Wise PSC '00, Listed Tx '04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 > Does anyone know if these are available in Oz and if they help > with itching. > Thanks > Pat Hi Pat Just checking the Oz you are in is Australia? from the bottom of the world in New Zealand Quote Link to comment Share on other sites More sharing options...
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