Guest guest Posted February 25, 2008 Report Share Posted February 25, 2008 Hi Patsy I am sorry to hear you feel so isolated. I have been since Nov. having to give into not being able to work anymore, but beside myself being home all the time, and the disease has been resentless. I always pushed through it all by throwing myself into several hrs a wk as many as I could 60+ night and day, from job to job, I thought that was the answer despite my great Dr " s I am lucky to have I guess telling me I was going to burn out if I did not stop. I did not listen. Well here I sit, basically from bed-couch mostly don't know what street clothes are anymore! I have a supporting husband, but other than that no one except phone and now p.c friends. I moved away from my family. I only keep hoping that warmer weather brings relief. You have a very tough job, and do be carefull, I had limited my driving before I got this sick, because I was driving, either spacing out of feeling like I could not stay still because I hurt so bad I was squirming like I had ADD and felt unsafe, would drive right past my own home at times. I hope you find this group helpful in meeting your emptyiness of being cut off from others near you. I think you should not have to put up that sheild sometimes it can just cause more fuel for the disease, as we are what we are, we have what we have and whether anyone chooses to believe it, not try and understand it, or have the compassion to go lightly like they would with any other who was sick with outside syptoms that is there problem and it is to bad they are to selfish, close-minded and selfish to look into the disease, and only hope if they were to get ill that they remember we all need someone when we don't feel well, and they don't get the treatment we sometimes do. Welcome and hope things get a bit better for you, with being able to communicate your feelings here. Sharon Jeanne and Dave wrote: Welcome Patsy. We truly understand what you are going through. I hope that venting helped and that by reading through other posts you'll realize you're not alone. Take care. Jeanne in WI Hi Everyone, My name is Patsy, I am 53 years old and was diagnosed with fibro seven years ago. I am single and have no option but to work everyday no matter what. I am a industrial electrician/mechanic and have a very physical job. I do alright as long as I keep moving but I have no life outside of my job. I am always too tired, or hurt too bad to do anything that would be considered " fun " . I get so depressed because it is impossible to have " joy " . Life is just a never-ending butt kicking. I too find a good night sleep is hard to come by. I have a really bad reaction to any of the seratonin inhibitors. I take lunesta for sleep, xanax for depression, anxiety, and vicodin for pain. I am really curious about the lyrica. The side effects sound as bad as the fibro. I know the world percieves me as a hateful, old hermit. I have a horrible time remembering things and walk around in a fog. I'm scared to death I am going to do something fooling working on heavy machinery and get myself seriously injured. I have told no one at my job about the fibro, even with family, and doctors think it's all in your head. I work mostly with men and I feel like I can show no weakness around them. I thank you for this opprotunity to VENT!!!! I HATE BEING SICK !!!!! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.