Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 Hi , First, I'd like to transmit support to you in your worry and grief. Don't quite know how to do that on line, except to say it's courageous to ask for the help you need, and to open up here to your friends and fellow PSCers. You are a strong person, under a lot of stress. In dealing with the new physician, it might be best to acknowledge your other issues, and then ask him to hold them separate from PSC. Even if that goes against your instinct to hide what you feel. You can disarm him by talking about how you wish it would all go away, but you want to work together with him. By making the two of you partners in the project of improving your health, you'll gain his respect by being actively engaged. I'd like to recommend Jerome Groopman's book again, and the New Yorker excerpt, which is available free. He talks about techniques for patients to do this. I wish you the best tomorrow. Martha (MA) UC 1979, PSC 1992 > I don't normally go into all of this but I know that at the moment, I'm struggling. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 Hi , First, I'd like to transmit support to you in your worry and grief. Don't quite know how to do that on line, except to say it's courageous to ask for the help you need, and to open up here to your friends and fellow PSCers. You are a strong person, under a lot of stress. In dealing with the new physician, it might be best to acknowledge your other issues, and then ask him to hold them separate from PSC. Even if that goes against your instinct to hide what you feel. You can disarm him by talking about how you wish it would all go away, but you want to work together with him. By making the two of you partners in the project of improving your health, you'll gain his respect by being actively engaged. I'd like to recommend Jerome Groopman's book again, and the New Yorker excerpt, which is available free. He talks about techniques for patients to do this. I wish you the best tomorrow. Martha (MA) UC 1979, PSC 1992 > I don't normally go into all of this but I know that at the moment, I'm struggling. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 I would like to thank everyone for taking time to respond to my e-mail. It touches me very deeply. Today is a better day. Sometimes things just pile up and get the best of you. I am not certain that I am going to acknowledge the eating disorder today, simply because I want to hear what he has to say about this ultrasound. He is a very nice guy but I am concerned about the extent of his knowledge on PSC. I just sort of feel like his staff should know about the condition if he has 4 or 5 patients with it. The things that he has told me so far and the test that he ordered have left me a little confused. Of course, I am not a doctor and would never assume to think that I knew more than he does. Things just don't seem to match up. If I am not comfortable with what he has to say today then I am just going to have to not worry about the additional money that I will have to pay at my former doc's hospital and go back to where I am comfortable and confident. I want to give this new guy a chance tho. The PPO discount at my hospital is 88%. At the other hospital, it is only 25% and I have the benefit of payroll deduct through my hospital. I'm just not sure that any of that measures up to be worth my own peace of mind. Thanks again and God bless. PSC '01 >>> Martha 1/22/2008 8:50 PM >>> Hi , First, I'd like to transmit support to you in your worry and grief. Don't quite know how to do that on line, except to say it's courageous to ask for the help you need, and to open up here to your friends and fellow PSCers. You are a strong person, under a lot of stress. In dealing with the new physician, it might be best to acknowledge your other issues, and then ask him to hold them separate from PSC. Even if that goes against your instinct to hide what you feel. You can disarm him by talking about how you wish it would all go away, but you want to work together with him. By making the two of you partners in the project of improving your health, you'll gain his respect by being actively engaged. I'd like to recommend Jerome Groopman's book again, and the New Yorker excerpt, which is available free. He talks about techniques for patients to do this. I wish you the best tomorrow. Martha (MA) UC 1979, PSC 1992 > I don't normally go into all of this but I know that at the moment, I'm struggling. =========================================================== This message is confidential, intended only for the named recipient(s) and may contain information that is privileged or exempt from disclosure under applicable law. If you are not the intended recipient(s), you are notified that the dissemination, distribution or copying of this message is strictly prohibited. If you received this message in error, or are not the named recipient(s), please notify the sender and delete this e-mail from your computer. ETMC has implemented secure messaging for certain types of messages. For more information about our secure messaging system, go to: http://www.etmc.org/mail/ Thank you. =========================================================== BEGIN:VCARD VERSION:2.1 X-GWTYPE:USER FN:Wilkinson, ORG:;Human Resources EMAIL;WORK;PREF;NGW:lindawilkinson@... N:Wilkinson; END:VCARD Quote Link to comment Share on other sites More sharing options...
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