So uncomfortable

[Guest guest]

I am new to this site. I would like to share my story.

I am almost 50 and for the last several years at least 6, I have had terrible

pain while

having sex. It has felt like someone was stabbing, tearing my tissue while my

husband

was entering me. I have been to several doctors and no one really seemed to be

too

concerned. About 4 years ago I had a hysterectomy ( my ovaries were not taken)

and my

doctor at the time did try to excise and correct tisse where my epesiotomy site

was. That

seemed to be my main problem. I did great with the hysterectomy but the

tissue that

was another story. I was given lidocain to help when I had sex. I just endured

the pain. It

would bleed, swell, throb and would take a good week or so to feel better.

Luckily my

husband doesn't have the strongest sex drive. We didn't have sex much. Fast

forward to

earlier this year. I had been going to a female gyn and really loved her. She

did a biopsy

on my tissue because she said it didn't look right. I had been having alot of

cycst coming

up on my ovaries which I had never had before. The last 2 times going to see my

gyn she

acted weird like she was confused on what I was there for, what what bothering

me. I

thought that is it I am not coming to see her anymore. She referred me to a

pelvic pain

specialist (the best thing she ever did for me!!!!!!) When I finally went to

see him I

explained everything to him. He listened and then did his exam. He finally

diagnosed me

with interstitial cystitis, vulvodynia and pelvic congestion syndrome.

Finally!!!! a diagnosis.

I finally felt validated. He has helped me tremendously. He started giving me

trigger

point injections(no fun but well worth it) He also prescribed some testosterone

2% lanolin

cream that I would run on my tissue morning and night. I finally wanted to have

sex again

plus the injections finally helped and for the first time in years it did not

hurt when my

husband entered me!! I couldn't beleive it. I was actually asking for sex!1

LoL!! It would

still hurt though towards the end of sex but the pain was not near as bad as it

had been

but it was still there. I was still having cycst pop up on my ovaries. the

decision was

made to go ahead and remove my ovaries, look in my bladder and then do a

surgical

excision of the minor vestibular glands with a posterior perineoplasty to excise

the

posterior web. It took a while to get all the insurance stuff together but I

finally had my

surgery on the 11th of August and spent one night in the hospital. He also

found that I

had hernias behind my ovaries. I was put on vivelle- dot 0.05mg. I was

scheduled for a 2

week post op and 6 week post op. After 1 1/2 weeks something was wrong. I went

back

to the doctor and he was disappointed because the stitches had pulled out. He

had to

numb me up and place 3 new stitchess (ouch). Went back the following monday and

1

stitch had pulled loose but he thought it would be ok. Because of the pain he

prescribed

me some numbing cream. I have consistenly done the sitz baths and am trying all

kinds

of things to help with the awful itching on the outside of my vagina! It is

unbearable. I

am also having the same pain as before as far and wher my ovaries were. My legs

are

aching so much I can't stand it. Thank God I go in today at 3. I am so

disappointed. I

want to cry. I haven't taken any pain medicine because I am scared I will

become

dependent on it. I try not to complain about it because who wants to hear it,

I could

understand how this could cause you to go over the edge and lose your mind. I

just want

to have sex and have no pain.

anyway that is my story and I am so grateful to have found this website. I have

tried and

tried to research all my issues and thre is just not much info out there and

unless you are

living this no one can really understand what you are going through. Thanks for

taking

the time to read and offer help.