Tush Fire extinguisher

[Guest guest]

I'm posting this at more than one site, simply because I have found help from

many of you

and want to pass it on.

Tonight I went to the movies in capri pants. Not even real baggy capri pants.

And hey, I

was fine! I still have some pelvic floor issues, but next to zero vulvar

burning.

First, let me say that the remedy I'm suggesting might not work for everyone,

and second,

for all I know it would not work for me if I had not done a lot of other things

over the last

three years that got me to this point. I won't go into all of those things, just

summarized

by saying the spot of dermatitis is long since healed and the spot where they

did a biopsy

also, meaning my vulvar area tissue is in good shape. I have been on Lyrica (1

year) and

now on Amitriptyline for a year, use a " butt pan " to rinse, but with much less

frequency

now, and have used a topical Amitriptyline/Baclofin which is soothing. I have

had a ton of

PT (by an experienced PT and once with Rhonda K) and probably need more, for the

deep

butt muscle issues. I have had my share of UTI/yeast/acidophilus/yadda yadda.

Anyway, I had read about Capsascin for a while and my specialist at the U said

it sounded

harsh, so I didn't pursue it.

Since I have left the specialist for my GP (well, not in the Biblical sense, but

I dumped the

specialist) I talked with him and his medical student about Capsascin recently.

The med

student was really curious about the symptoms I have and interested in my fat

and bizarre

history file, bless his heart. When I brought up Capscasin he brought up the

neurotransmitter Substance P and we both lit up like light bulbs. I know excess

substance

P is one thing they have found runs in families when women who are related have

vulvar

pain. He knew that Capsascin is used to reduce Substance P.

So, as nuts as it sounds (putting hot pepper extract on the part of your body

that already

burns) we decided to try it.

The first " prescription " was filled by the pharmacist with OTC Capscascin

product. I turned

it down and got the GP to prescribe Capscasin in an acid mantle base, .025

percent, per

the instructions of Hollis and other women on these message boards.

I tried a teensy bit on a q-tip, just on the little place the biopsy was taken,

because that

always seems like the main source of burn.. I hardly felt it. The next day I

used about half

of a pea size amount. WOOOO. It burned like crazy, which kind of scared me, but

I waited

20 minutes and then rinsed it off and VOILA. I had a darned good day.

My process now is to put the stuff on in the morning, hang around standing up

for about

20 minutes, use the plastic butt pan and some stuff called " Sweet Spot "

unscented liquid

soap (PH balanced, which is important to me because of UTI/yeast issues) to

wash, pat dry

with a clean dry wash cloth (I have a colorful stack of terry cloth washcloths

in a basket on

the back of the toilet and a basket to throw them in as i use them) and then

with a tissue,

put on a little of the left over Amitriptyline/Baclofin plus a little 5 percent

Lidocaine (the 2

percent is totally useless, I don't really get much out of the 5 percent, but I

might as well

use it up) and I'm good for the day.

Still some butt aches, but not that burning feeling when you sit at a computer

or wear

pants. Of course, I still don't push it. if I can wear a skirt, I do. And I

don't sit for long

periods even if I feel okay.

I think I still need some PT, body work, or maybe evaluation for pinched nerve,

but I am

trying a few things on my own in terms of self massage and excercise before I

spend more

time and money. And the urgency is not high, considering how minor the pain is.

It isn't

even really pain. Maybe - maybe now I am getting better on my own, slowly but

surely.

-McTwirly (reply to me at juliezim@..., I don't come to the site or get my

yahoo

mail very often)