pediactric fibro

[Guest guest]

i did read that this is a diagnosis by those docs familiar with fibro.

there is also some early form of fibro where not everyone has all the

tender points, just some of them. i did have a traumatic injury to my

leg around age 5, and my mom likes to tell me her funny story about my

dad carrying me(when i was an infant)and a pack of toilet paper up the

wooden flight of stairs, he dropped us both but caught the toilet

paper. not surprisingly, i am not fond of my mother, sorry to say. so

both injuries probably did some suppression to my hypothalmus and

started all my fibro because i complained to my mom at age 11 that i

was always tired and sleep never refreshed me, never and still never

does. so after i read one book on how this expert ties all these things

together, my horrible fibro life makes sense, at least, eventho i have

and continue to sleep it all away.

take care,

marg

[Guest guest]

Marg,

I hope you can find something that works for you. I developed Fibro

early on. I remember having pains, very severe ones in my legs and

arms when I grew. Noone listened. For years, I ignored it and slept it

off. Now, I have accepted it and live a full life inspite of fibro.

You can have a life in spite of this.

Crystal

[Guest guest]

One of the things that prompted me to get my daughter diagnosed was reading

about pediatric FM in the FM Aware magazine. Prior to that, I didn't know that

children could be diagnosed with it. I remember it said that they often do not

have all the tender points as children, but diagnosing was different for

children. I was not in the room with the doctor as they examined my daughter,

so I can't tell you for sure what criteria they used. I think they did do some

checking of tender points, because of what Allie said later about the exam.

Jeanne in WI

i did read that this is a diagnosis by those docs familiar with fibro. there

is also some early form of fibro where not everyone has all the tender points,

just some of them. i did have a traumatic injury to my leg around age 5, and my

mom likes to tell me her funny story about my dad carrying me(when i was an

infant)and a pack of toilet paper up the wooden flight of stairs, he dropped us

both but caught the toilet paper. not surprisingly, i am not fond of my mother,

sorry to say. so both injuries probably did some suppression to my hypothalmus

and

started all my fibro because i complained to my mom at age 11 that i was

always tired and sleep never refreshed me, never and still never does. so after

i read one book on how this expert ties all these things together, my horrible

fibro life makes sense, at least, eventho i have

and continue to sleep it all away.

take care,

marg