Re: Fibro exttremes-I've seen nice colors in canes, wheelchairs, walkers, more!!

[Guest guest]

Hi to all,

I've seen them in CT!! All sorts of pretty colors (purple, too!) and patterns

for wheelchairs, walkers, canes, more. I don't know if they're custom made, but

they're beautiful.

I hope you can find them. Suggestion would be to ask if they make them

wherever you are, and of course see if it costs extra if your on a budget.

Good luck!!

Dee

Nd wrote:

Bethann

I would love purple crutch pads, or even a cane that

is a decent pretty color that I want and not what the

manufactures think. So I totally agree with you.

Diane

Ga.

--- Bethann wrote:

> I am posting now because I am frustrated with

> something in the real

> world... I need to get a new car because my

> wheelchair doesn't fit

> well enough in this one, and my car is only 3.5

> years old and its got

> every bell, buzzer and whstle I wanted, and although

> I can get teh

> chair out, its difficult and wears me out so I can't

> do that more

> than once or so a day so " they " decided I needed to

> get rid of my

> beloved, posh Vectra and get a wheelchair car. Its

> because I

> have " advanced " at work, meaning I need to go in and

> out during the

> day, and because we can't rely on parking I need

> reliable ways to go

> disatcnes my back and legs wont go on their own. (as

> an aside, the UK

> has excellent suport for disabled in employment, is

> it worth a post?)

>

> How come whoever makes cars thinks that all disabled

> people have

> compeltely lost their sense of taste and seem to

> think we WANT to

> drive the box-on-wheels things that they sell for

> wheelchairs? The

> only cars I have found that I can get the chair in

> other than the

> sqauare things (Kangoo (or rather KangootoHADES in

> my mind) and the

> Berlingo (or Berlingofaraway)) are the Vauxhall

> Zafira- which takes

> 12 weeks to get here, and the Kia Sedona which won't

> take a trade in.

> The car I wanted, the Nissan Qashqai, has a real

> sapre tire, but 3

> inches too little head room. The car lease scheme

> for the disabled is

> good- have teh car for 3 years and hand it back, and

> for the mobility

> benefit you get, you have a car, insurance, all

> maintenance, car tax,

> etc, all you pay is fuel. But, an automatic, air

> conditioning and of

> course the enourmous boot all mean a huge advance

> payment that you

> just give to the car dealer and have nothing for

> except a more than

> basic car.

>

> That and except for the blessing of the ricability

> site, none of the

> car dealers seem to measure their back-of-the-car

> room in anything

> but litres. If I could melt the car down, then pour

> it in, litres

> would be helpful, but I really need inches or

> centimetres.

>

> How come elbow crutches only come in black? Isn;t

> there any purple or

> pink or glittery stuff they could make the vinyl

> components? Why when

> you become disabled is the world suddenly about

> utlity instead of

> choice, beauty and posh, zippy cars that look good

> as they speed past?

>

> I wish people who think they understand disability,

> what it measn and

> what people need could all have the reqirement to be

> disabled; then

> there would be nice cars that fit wheelchairs,

> purple elbow crutches,

> and we would live in a world where the disbaled

> parking was

> everywhere and the able bodied had to beg for a

> space when one of US

> pulled out of it.

>

> Just thought I would share with people who

> understand! WOuld it be of

> interest to post for about Motability in the UK, and

> the kinds of

> benefits and processes there are here for the

> disabled?

>

> Bethannn

>

>

>

> 1. While it is wonderful to share our experiences

> with everyone on the list as to what treatments do

> and don't work for us, pls always check with your

> dr. Some treatments are dangerous when given along

> with other meds as well as to certain health

> conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't

> matter what it is) pls don't be afraid to ask for

> help. It is the first step to trying to make that

> situation better.

>

> 3. To unsubscribe the e-mail is:

>

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member

> to be feeling bad at the same time when it comes to

> flares and b/c of that potentially take something

> another member says the wrong way. And that

> includes the things that one member may find funny

> (even if it's laughing at fibro itself) even though

> we who deal with illness whether one such as fibro

> or multiple illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you

> are having a bad day pls let us know so that we can

> do our best to offer our support.

>

> Have a nice day everyone.

>

>

[Guest guest]

>

> Hi to all,

>

> I've seen them in CT!! All sorts of pretty colors (purple, too!)

and patterns for wheelchairs, walkers, canes, more. I don't know if

they're custom made, but they're beautiful.

> I hope you can find them. Suggestion would be to ask if they make

them wherever you are, and of course see if it costs extra if your on

a budget.

> Good luck!!

> Dee

>

It seems as if anytime we are out shopping in an offbeat store ---

even museums, craft fairs, I am always searching for just the right

cane. I saw one about 10 years ago that I told my husband was just

what I wanted for a birthday --- since I was collecting anything in

the form of a rabbit, painting, etc., this cane would have been

perfect for me as the handle was a lucite rabbit. I don't know if he

just didn't realize how much one my help me or not --- but as I get

older, there are times when I need one and now I keep at least one if

not two in my suv. Oh, and there is another source for hand carved

canes and that is in folk art stores. some of those can be very

interesting. I have one that I thought would be good --- it's from

the Kentucky tobacco growing area and is made from a wooden slat that

was used in either drying tobacco or some other use. It might be

good if I were doing one of the walking with tall poles, but I

discovered it is too tall for me to use on a daily basis.

And I have also send acrylic ones that are multite colored.

>> > 1. While it is wonderful to share our experiences

> > with everyone on the list as to what treatments do

> > and don't work for us, pls always check with your

> > dr. Some treatments are dangerous when given along

> > with other meds as well as to certain health

> > conditions or just dangerous in general.

> >

> > 2. If you are in a difficult situation (doesn't

> > matter what it is) pls don't be afraid to ask for

> > help. It is the first step to trying to make that

> > situation better.

> >

> > 3. To unsubscribe the e-mail is:

> >

> Fibromyalgia_Support_Group-unsubscribe

> >

> > 4. Also, it is not uncommon for more than one member

> > to be feeling bad at the same time when it comes to

> > flares and b/c of that potentially take something

> > another member says the wrong way. And that

> > includes the things that one member may find funny

> > (even if it's laughing at fibro itself) even though

> > we who deal with illness whether one such as fibro

> > or multiple illnesses try to keep a sense of humor.

> >

> > 5. Pls let's be gentle with each other, and if you

> > are having a bad day pls let us know so that we can

> > do our best to offer our support.

> >

> > Have a nice day everyone.

> >

> >

[Guest guest]

Ibet if we polleach other we can find out just want

each would want in their canes or crutches.

Being so much irish decent i told my hubby i want a

shelleigh so i can bob him on the head.

and a fire engine red cane with bulldogs on it.

Diane

--- wrote:

>

> >

> > Hi to all,

> >

> > I've seen them in CT!! All sorts of pretty

> colors (purple, too!)

> and patterns for wheelchairs, walkers, canes, more.

> I don't know if

> they're custom made, but they're beautiful.

> > I hope you can find them. Suggestion would be to

> ask if they make

> them wherever you are, and of course see if it costs

> extra if your on

> a budget.

> > Good luck!!

> > Dee

> >

> It seems as if anytime we are out shopping in an

> offbeat store ---

> even museums, craft fairs, I am always searching for

> just the right

> cane. I saw one about 10 years ago that I told my

> husband was just

> what I wanted for a birthday --- since I was

> collecting anything in

> the form of a rabbit, painting, etc., this cane

> would have been

> perfect for me as the handle was a lucite rabbit. I

> don't know if he

> just didn't realize how much one my help me or not

> --- but as I get

> older, there are times when I need one and now I

> keep at least one if

> not two in my suv. Oh, and there is another source

> for hand carved

> canes and that is in folk art stores. some of those

> can be very

> interesting. I have one that I thought would be

> good --- it's from

> the Kentucky tobacco growing area and is made from a

> wooden slat that

> was used in either drying tobacco or some other use.

> It might be

> good if I were doing one of the walking with tall

> poles, but I

> discovered it is too tall for me to use on a daily

> basis.

> And I have also send acrylic ones that are multite

> colored.

>

> >> > 1. While it is wonderful to share our

> experiences

> > > with everyone on the list as to what treatments

> do

> > > and don't work for us, pls always check with

> your

> > > dr. Some treatments are dangerous when given

> along

> > > with other meds as well as to certain health

> > > conditions or just dangerous in general.

> > >

> > > 2. If you are in a difficult situation (doesn't

> > > matter what it is) pls don't be afraid to ask

> for

> > > help. It is the first step to trying to make

> that

> > > situation better.

> > >

> > > 3. To unsubscribe the e-mail is:

> > >

> >

>

Fibromyalgia_Support_Group-unsubscribe

> > >

> > > 4. Also, it is not uncommon for more than one

> member

> > > to be feeling bad at the same time when it comes

> to

> > > flares and b/c of that potentially take

> something

> > > another member says the wrong way. And that

> > > includes the things that one member may find

> funny

> > > (even if it's laughing at fibro itself) even

> though

> > > we who deal with illness whether one such as

> fibro

> > > or multiple illnesses try to keep a sense of

> humor.

> > >

> > > 5. Pls let's be gentle with each other, and if

> you

> > > are having a bad day pls let us know so that we

> can

> > > do our best to offer our support.

> > >

> > > Have a nice day everyone.

> > >

> > >