New Topic - Burning Tounge & Mouth Syndrome

[Guest guest]

Hello, All Fibromites....

For 3+ years now, ALL of the doctors I have seen were totally obvious when it

came to me asking them about my

Tongue and Mouth hurting when I ate certain foods.

It seemingly all started when I had reactions to several Antibiotics....and

then went away after abruptly stopping them.....Now for at least the last 8+

months, it seems like my " mouth and tongue have a mind of their own " (even

though I have removed all the drinks and foods that seemed to cause

reactions).....my tongue swells, gets huge excruciating painful bumps and

sometimes they can

be tiny pimple like bumps too around the edges. I am getting " Thrush "

outbreaks for no reason in my mouth.....BOTH in my mouth and WOW on my lips too

and

sides/cracks of my mouth....how PAINFUL!!!! My new dentist prescribed Nystatin

100,000 grams Ointment to use as needed and that worked wonders for the

lips.....

PLUS, a one pill of Diflucan (which is usually given to women for Candida of

the Genital area). ALSO, Nystatin Oral Solution, a swish & swallow,

prescription helps to overcome the oral thrush....but we still do not know why I

am

having these outbreaks.....

Does anyone out there have any similar problems or any information on

them.......GOSH...I would sure appreciate any/all help.

Yes, I have Fibromyalgia and just about all the other symptoms associated

with it.....without going into detail now.

Well, I think I my 'eyelids' are finally heavy enough to close for me to

sleep.....this week has been a horriffic one. Monday, I went for my Social

Security Disabilty Hearing. According to how my Attorney and her assistant

felt,

she is 99.9% sure I won my case....but I have within 30 days to receive the

Judges written decision.....So, if anyone would like to include me in their

prayers it would be very nice and so appreciated..... God moves in mysterious

sometimes. For 3 years, I have battings them, at least 37 doctors and

hospitals,

3 surgeries and a shopping bag full of medications.....

Yes, I know how bad all of these can be on my Liver, but I am also going the

Holistic Route and taking supplements to help out that department.... As soon

as positively know that my disability will begin, I have a

Chiropractor/Holistic Doctor that a retired nurse, friend of the family goes

too, that I will

start seeing....He can help my back and get me on a correct medicine regimen....

Enough of my long-winded e-mail...., if I haven't said it to you by now,

Thank you ALL so much in advanced for reading and posting for my POST....

Best regards,

[Guest guest]

> It seemingly all started when I had reactions to several

> Antibiotics....and

> then went away after abruptly stopping them.....Now for at least

> the last 8+

> months, it seems like my " mouth and tongue have a mind of their

> own " (even

> though I have removed all the drinks and foods that seemed to cause

> reactions).....my tongue swells, gets huge excruciating painful

> bumps and sometimes they can

> be tiny pimple like bumps too around the edges. I am getting " Thrush "

> outbreaks for no reason in my mouth.....BOTH in my mouth and WOW on

> my lips too and

> sides/cracks of my mouth....how PAINFUL!!!! My new dentist

> prescribed Nystatin

> 100,000 grams Ointment to use as needed and that worked wonders for

> the

> lips.....

> PLUS, a one pill of Diflucan (which is usually given to women for

> Candida of

> the Genital area). ALSO, Nystatin Oral Solution, a swish & swallow,

> prescription helps to overcome the oral thrush....but we still do

> not know why I am

> having these outbreaks.....

I don't tend to get the swelling, bumps, etc, but I do tend to have

thrush outbreaks, especially when I've fallen into carbs and sugar,

which is far too often lately.

Antibiotics throw everything off for me. They kill the normal flora

in my body, and that leaves it open to yeast overgrowth, sometimes in

places like my mouth. Yeast can grow other places too. I take

Diflucan when I get certain symptoms of yeast overgrowth, especially

after antibiotics. I also eat a lot of yogurt (without sugar) and

take acidopholus. Yogurt, acidopholus and other probiotics help to

replenish the normal flora in mouth and G/I tract. I've even used

acidopholous vaginally.

It sounds like your new dentist has his act together where your

treatment is concerned. Nystatin ointment and solution and diflucan

are pretty standard treatment for yeast. Did he talk at all about

probiotics?

Good luck with your treatment!

Z

[Guest guest]

Hi - I've been told I have geographic tongue. When I eat things with

rough edges, I will get patches of skin that come off my tongue, making it sore.

But I've never had it to the extent of what you describe. Wish I had something

more to offere. Sure hope that disability finally gets approved. Take care.

Jeanne in WI

Hello, All Fibromites....

For 3+ years now, ALL of the doctors I have seen were totally obvious when it

came to me asking them about my Tongue and Mouth hurting when I ate certain

foods.

It seemingly all started when I had reactions to several Antibiotics....and

then went away after abruptly stopping them.....Now for at least the last 8+

months, it seems like my " mouth and tongue have a mind of their own " (even

though I have removed all the drinks and foods that seemed to cause

reactions).....my tongue swells, gets huge excruciating painful bumps and

sometimes they can be tiny pimple like bumps too around the edges. I am getting

" Thrush "

outbreaks for no reason in my mouth.....BOTH in my mouth and WOW on my lips

too and sides/cracks of my mouth....how PAINFUL!!!! My new dentist prescribed

Nystatin 100,000 grams Ointment to use as needed and that worked wonders for the

lips.....

PLUS, a one pill of Diflucan (which is usually given to women for Candida of

the Genital area). ALSO, Nystatin Oral Solution, a swish & swallow,

prescription helps to overcome the oral thrush....but we still do not know why

I am having these outbreaks.....

Does anyone out there have any similar problems or any information on

them.......GOSH...I would sure appreciate any/all help.

[Guest guest]

Hi , no not to that extreme. but for what ever

reason(doctors don't know) my tounge gets a patch like

look, along the sides and in areas i get areas of lost

covering of me tounge.

Diane

--- Jeanne and Dave

wrote:

> Hi - I've been told I have geographic

> tongue. When I eat things with rough edges, I will

> get patches of skin that come off my tongue, making

> it sore. But I've never had it to the extent of

> what you describe. Wish I had something more to

> offere. Sure hope that disability finally gets

> approved. Take care.

> Jeanne in WI

>

> Hello, All Fibromites....

>

> For 3+ years now, ALL of the doctors I have seen

> were totally obvious when it came to me asking them

> about my Tongue and Mouth hurting when I ate certain

> foods.

>

> It seemingly all started when I had reactions to

> several Antibiotics....and then went away after

> abruptly stopping them.....Now for at least the last

> 8+

> months, it seems like my " mouth and tongue have a

> mind of their own " (even though I have removed all

> the drinks and foods that seemed to cause

> reactions).....my tongue swells, gets huge

> excruciating painful bumps and sometimes they can be

> tiny pimple like bumps too around the edges. I am

> getting " Thrush "

> outbreaks for no reason in my mouth.....BOTH in my

> mouth and WOW on my lips too and sides/cracks of my

> mouth....how PAINFUL!!!! My new dentist prescribed

> Nystatin 100,000 grams Ointment to use as needed and

> that worked wonders for the lips.....

> PLUS, a one pill of Diflucan (which is usually

> given to women for Candida of the Genital area).

> ALSO, Nystatin Oral Solution, a swish & swallow,

> prescription helps to overcome the oral

> thrush....but we still do not know why I am having

> these outbreaks.....

>

> Does anyone out there have any similar problems or

> any information on them.......GOSH...I would sure

> appreciate any/all help.

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

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>