Re: Sick, flaring, trying not to end up Darlene

[Guest guest]

Boy u have got it all. Hope you'll get better soon, there are so many

people sick this winter with all this respistory crud.. Take Care of your self

and get rid of that stuff quick1 hope tomm. brings a better day.

Sharon

I am so sorry you are dealing with so many health issues on top of the

fibro. You must be beside yourself. Hang in there and deal with one thing at a

time. Otherwise getting overwhelmed might worsen things? I am here if you need

me. Feel better my friend. Sending sunshine and smiles you way.

Hugs,

ddean228 wrote:

Okay, I have thrown down the towel and am admitting I am still sick.

My asthma has flared up (again, actually its the COPD, with chest

tightness) due to a sinus thing that has come on quickly. My damn

pulmonologist WON'T call the PCP back to see if they are on the right

course of treatment (so far - 2 shots of solumedrol, 1 in hip, last

night was via IV plus antibiotics). I'm a little more " open " this

morning, but still wheezy on the exhale. Going back to the hospital

is NOT an option for the simple fact that our local hospital is over-

run with folks with the bad flu and also pneumonia and my immune

system is so suppressed with all the steroids I've been on, plus all

the antibiotics that the PCP doesn't feel it would be a good idea.

Not to mention the fact that the areas where I am getting shots,

etc., all feel like I've been, well " shot " if that makes sense? Very

very tender areas....lol....but outside " our " normal tender spots. So

I'm cranky. But I'm trying not to be because it's not DH's or the

kids' faults I am sick and tired and also that I am sick of being

this way!

I think I hit anger. It's been over a month since my diagnosis and

I've had to deal with the asthma/COPD/hospital thing so really

haven't had time to wrap my head around this whole fibro thing. But

it isn't going to go away. It may or may not progress. Add that to my

other chronic issues and well, I'm not feeling very " up " today. No

sage words of wisdom to come tripping off my fingers.

In fact, I have to go to a vascular doctor today. They are convinced

I have lower extremity blockages which are contributing to the long-

term edema (heart is fine, all checked while in hospital). So I am

looking at a potential hospital procedure. Yippee. Will it help with

my SSD fight? I sure as hell hope so.

As for that, I went out of work initially 12/06 with bronchitis, sent

to pulmonologist 1/07 who has kept me out of work ever since because

we keep coming up with chronic issues (COPD, T2 diabetes, metabolic

disorder, anxiety/depression, glucose intolerance and now fibro). I,

of course, got turned down initially; then my LTD provider handled

the reconsideration thru an attorney and I got turned down again

*but* that was before we had the COPD and fibro and cardiac artery

disease added to my chart (although it's not cardiac, it's likely

pulmonary).

So.....I said all that to say this - is there a snowball's chance

anywhere that I will eventually win? I know I cannot work outside the

home. I get sick too darned often. What employer will want that? I

already have my " Dear " letter from my old employer as my FMLA

ran out a loooong time ago and they decided to abolish my position

completely, so even if I was released to go back to work (highly

unlikely now), I have no job to go back to. I can't go back to

crawlilng around under cars; I can remember getting spasms so bad

they took my breath away where I thought I was going to have to call

someone to come get me. This was before my diagnosis.

I'm sorry this is so long. Today I feel like crying. Yesterday I

turned 45 and looked to the future and know that my lifestyle has

changed, and not necesarily for the better.

Darlene

When you have nothing left but God,

you become aware that God is enough.

-Guideposts

[Guest guest]

Darlene,

Well, cautiously I'll say Happy Birthday. I sm so sorry that you

have so much on you. I really can't imagine. I know it sound cliche

but God won't put more on you than you can bear. SSD is such a freaking

joke. Its like they put you out in a desert and hope you go on and

die. If you don't they might come back and get you. Good luck and I

hope you get some relief from the illness and the stress soon.

[Guest guest]

Patsy,

Thank you. It wasn't the best one, but then again, it beat last year

when we were waiting for my dad to decide if he was going to wake up

from open heart surgery, so I guess I'll take being sick and

flaring....lol....although I DO NOT recommend it for wimps....which

none of us are, that's for sure!

As for the SSD, well, I hav gotten some of my own medical records and

quite honestly, I don't see how I won't get it once I finally get a

hearing. I hope they move fast on it, but I won't hold my breath. Thank

God I have long term disability. It's only 60% of what I used to make,

but then again, I don't have to pay childcare, for clothing or all the

extra gas to drive to/from work, not to mention the stress of working

50-60 hour weeks and trying to raise 2 special needs kids. So I'll

wait. After all, I have you guys now and some of you have BTDT for

quite awhile and can give wonderful pointers and tips.

As for the swelling, etc., I am going to take a lasix; I do not care if

I am up all night peeing.....lol....if it keeps the swelling down and

thereby prevents a flare like I had this morning, it is worth it!

Darlene

>

> Darlene,

> Well, cautiously I'll say Happy Birthday. I sm so sorry that you

> have so much on you. I really can't imagine. I know it sound cliche

> but God won't put more on you than you can bear. SSD is such a

freaking

> joke. Its like they put you out in a desert and hope you go on and

> die. If you don't they might come back and get you. Good luck and I

> hope you get some relief from the illness and the stress soon.

>