Re: New Topic - Burning Tounge & Mouth Syndrome I get this !!!!!

[Guest guest]

Zimmy you are the first person I have come across to know/ experience this.

I first got it in 1987, was not diagnoised, but had suffered a pulmonary

embolism and this was my second clot first DVT so after coming out of hospital,

was also second time put on coumidin, while after several month's this happened!

It was awful, horrible, scary, and I would walk around with my tongue trying not

to touch anywhere inside my mouth, so looked like a dog with his tongue out

guess. It burnt so bad, and if I tried to eat it got worse. This went on for

days,I got it in my mind it was the coumadin, Dr. said not, never heard of that

kind of reaction, well I also got the nystation, and zylocain to put in my mouth

to numb the whole inside, as I was getting very anxious. I eventually took

myself off the coumadin like it or not, was this the cause, I believed so, but I

now since have had another round of it and was given same stuff for it, that was

about 2 yrs ago. I also have to use

my diazapam when it happens cause it drives me so crazy. I get the bumps. I

kind of have a sm. version of it going right now, but I think it is coming from

my stomach, when it is overstressed, all the meds. and extra acid creates.

?????? I feel for you it is the most annoying uncomfortable thing, because

what do you do with a tongue? I also had some sauve type thing the Dr, gave me

to coat the bumps which felt better, but would wear off. Take Care Sharon

Zimmy wrote:

> It seemingly all started when I had reactions to several

> Antibiotics....and

> then went away after abruptly stopping them.....Now for at least

> the last 8+

> months, it seems like my " mouth and tongue have a mind of their

> own " (even

> though I have removed all the drinks and foods that seemed to cause

> reactions).....my tongue swells, gets huge excruciating painful

> bumps and sometimes they can

> be tiny pimple like bumps too around the edges. I am getting " Thrush "

> outbreaks for no reason in my mouth.....BOTH in my mouth and WOW on

> my lips too and

> sides/cracks of my mouth....how PAINFUL!!!! My new dentist

> prescribed Nystatin

> 100,000 grams Ointment to use as needed and that worked wonders for

> the

> lips.....

> PLUS, a one pill of Diflucan (which is usually given to women for

> Candida of

> the Genital area). ALSO, Nystatin Oral Solution, a swish & swallow,

> prescription helps to overcome the oral thrush....but we still do

> not know why I am

> having these outbreaks.....

I don't tend to get the swelling, bumps, etc, but I do tend to have

thrush outbreaks, especially when I've fallen into carbs and sugar,

which is far too often lately.

Antibiotics throw everything off for me. They kill the normal flora

in my body, and that leaves it open to yeast overgrowth, sometimes in

places like my mouth. Yeast can grow other places too. I take

Diflucan when I get certain symptoms of yeast overgrowth, especially

after antibiotics. I also eat a lot of yogurt (without sugar) and

take acidopholus. Yogurt, acidopholus and other probiotics help to

replenish the normal flora in mouth and G/I tract. I've even used

acidopholous vaginally.

It sounds like your new dentist has his act together where your

treatment is concerned. Nystatin ointment and solution and diflucan

are pretty standard treatment for yeast. Did he talk at all about

probiotics?

Good luck with your treatment!

Z