Guest guest Posted February 6, 2008 Report Share Posted February 6, 2008 Given the topic about pediatric PSC I thought now would be a great time for me to announce that there is a site with a focus on children with PSC www.psccure.org . The Findling Foundation just became incorporated this past December. Our goal is to hold fundraising events in order to raise money and awareness for PSC children. My son was diagnosed in 2006 and through the lack of information and unanswered questions we are looking to find some understanding, provide support and hopefully raise enough money that we can make this disease less mysterious. There are specific problems and issues that children with PSC face and The Findling Foundations hopes to address these issues. Findling Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2008 Report Share Posted February 6, 2008 , Thanks for jumping in and telling all the PSC parents about your foundation, which clearly meets a need! and her husband have set up a wonderful foundation to support children with PSC. Later this week, and I are going to brainstorm ways that we can work together to reach our common goals for PSCers of all ages. We WILL find a cure!!! Ricky PSC 2003 Pedatric PSC Given the topic about pediatric PSC I thought now would be a great time for me to announce that there is a site with a focus on children with PSC www.psccure.org . The Findling Foundation just became incorporated this past December. Our goal is to hold fundraising events in order to raise money and awareness for PSC children. My son was diagnosed in 2006 and through the lack of information and unanswered questions we are looking to find some understanding, provide support and hopefully raise enough money that we can make this disease less mysterious. There are specific problems and issues that children with PSC face and The Findling Foundations hopes to address these issues. Findling Quote Link to comment Share on other sites More sharing options...
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