RE: Jaundice / Brown Urine

[Guest guest]

Hi

,

It’s called “cola

colored” urine and it can stay that way for a long time or move back and

forth from cola to yellow. The yellow in your eyes depends

solely on your Bilirubin level. It

can be just small patches, solid yellow, both or back to white. Think of your urine and the whites of

your eyes like old fashion “PSC mood rings” changing colors to suit

itself. The colors don’t hurt

you, they just are markers that something is going on. HTH

Barb in Texas - Together in the Fight, Whatever it Takes!

Son Ken (33) UC 91 - PSC 99 - Tx 6/21 & 6/30/07 @ Baylor in Dallas

[Guest guest]

I have had the same situation with my eyes with the

results being directly related to the bili as well.

My eyes have been so bad that I have been accused of

looking like an OOmpa, Loompa.

Most times I get the yellowing on the outside edges.

One thing that does bother me is they are bloodshot

24/7 for the last couple of years. Eye drops do

nothing. Even the eye doctor said it was probably

related to the PSC and the only way to clear it up is

to solve the underlying problem.

Public presentations are part of my job. I am going in

front of 15 people on Monday. I have had questions in

the past. How do you handle it?

I had a pretty bad attack last week (out of state),

but my LFTs were all within normal ranges except for

one. I have been having some pain issues on and off.

It has been getting progressively worse. You look

stoned even though you are stone cold sober. I don't

advertise that I am sick.

I am leaving on a Disney cruise for 7 days in a couple

weeks. Would you contact the Transplant Center and

rush an ERCP or just grin and bear it with plenty of

pills along?

Oh, and my doctor classified me with sever depression

and switched me to wellbutrin and doubled the dosage.

Great week so far.

in Minnesota

PSC 2006, Factor V Leiden

I didn't mean to hijack this thread, sorry if I did.

[Guest guest]

My usual response was that there's a problem with my bile ducts being too narrow, and they're working on it.

If you need an ERCP, you need one. Even when I felt fine, I took a cache of Cipro and all my records along when I was traveling (I still do that!).

Arne

56 - UC 1977, PSC 2000

Alive and (mostly) well in Minnesota

(just can't wait for the weekend cold spell to arrive)

________________________________

From: [mailto: ] On Behalf Of Sny

....Public presentations are part of my job. I am going in

front of 15 people on Monday. I have had questions in

the past. How do you handle it?

....I am leaving on a Disney cruise for 7 days in a couple

weeks. Would you contact the Transplant Center and

rush an ERCP or just grin and bear it with plenty of

pills along?

[Guest guest]

I agree with Arne. I carry a Reader's Digest type health history

with records of my doctors names, meds., allergies and recent labs

when I travel. Even if I never need them, it's reassuring that I have

them in an emergency. I also carry any med. I might need with extras

in case weather delays us.

Penny

.. Even when I felt fine, I took a cache of

> Cipro and all my records along when I was traveling (I still do that!).

>

>

> Arne

> 56 - UC 1977, PSC 2000

> Alive and (mostly) well in Minnesota

> (just can't wait for the weekend cold spell to arrive)

>