(No subject)

[Guest guest]

WOW she gets a prize for the ONLY nice person I have ever seen askign to be

taken off the list. HOWEVER you need to do this yourself. Go to

Onelist.com/////then click on " my groups " then go to mingastric bypass and on

the right margin click on the sunsubscribe or web only or maybe daily digest.

You are welcome to change your status anytime.Also to actively participare or

" lurk "

THis is a WONDERFUL caring group.

Peace

oxford,Ohio

P.S. Group I sent her an individual e mail since she asked so nicely

.....about HOW to get off the list. Although she is welcome anytime.

[Guest guest]

hey guys,

There have been a large number of people who are all of a sudden asking to

get off the list and say they never signed up. I guess it could be possible

their is someone out their signing people up with out them knowing...........

just a thought it can be overwhelming to get 100 messages a night from us! LOL

cassandra

( I on the other hand love to read my " fatty mail " I cannot get enough of you

guys and the support and friendship we all have created. If I was a size 10 I

would still sneak in just to get what I get here!!!!!!)

[Guest guest]

I too have noticed this. I was already a member of onelist, so I signed up

directly from there, just looked up the group name and signed. But there is

a link from the website, isn't there? Is there a way that if someone

clicked on the link, they might get signed up without knowing if that is

what they wanted? If that is the case, then they won't even have a

password. And if I remember correctly, if you send a message to unsubscribe

blah, blah, blah, it does post a message to the list. Not sure if that is

just to inform us that they person is unsubbing or what. There does need to

be a watchdog who can help unsub these people who feel otherwise trapped in

the " MGB Zone. " LOL

fg

At 09:26 PM 04/17/2000 EDT, you wrote:

>hey guys,

>There have been a large number of people who are all of a sudden asking to

>get off the list and say they never signed up. I guess it could be possible

>their is someone out their signing people up with out them knowing...........

>just a thought it can be overwhelming to get 100 messages a night from us! LOL

>cassandra

>( I on the other hand love to read my " fatty mail " I cannot get enough of you

>guys and the support and friendship we all have created. If I was a size 10 I

>would still sneak in just to get what I get here!!!!!!)

[Guest guest]

Ladies, I am one such of these people! I have never received anything

from this group before last Friday... and since I'm on vacation at my

daughter's I know I didn't join anything. Just went in to check my

email and WOWIE ZOWIE ...I'm suddenly the queen of e-mail! I must say I

have enjoyed reading some of these, and I am truly sorry to hear about

your friend , but how do I get out of here??????? Any help

would be appreciated!

Sami's Nana

__________________________________________________

[Guest guest]

No he does not remove your gall bladder. that is why he puts you on

Actigall after surgery.

> Hi Everyone:

> I hope all had a wonderful Easter!

> I have had this question on my mind for a while but never

remembered

to ask,

> While you are having the MGP does DR.R remove your gallbladder?

>

> Dede, It was nice talking to you.

> You are truly an inspiration to me!

> Love yea to pieces!

>

> {{{{{HUGS}}}}}

> in Michigan

[Guest guest]

No he does not remove your gall bladder. that is why he puts you on

Actigall after surgery.

> Hi Everyone:

> I hope all had a wonderful Easter!

> I have had this question on my mind for a while but never

remembered

to ask,

> While you are having the MGP does DR.R remove your gallbladder?

>

> Dede, It was nice talking to you.

> You are truly an inspiration to me!

> Love yea to pieces!

>

> {{{{{HUGS}}}}}

> in Michigan

[Guest guest]

No he does not remove your gall bladder. that is why he puts you on

Actigall after surgery.

> Hi Everyone:

> I hope all had a wonderful Easter!

> I have had this question on my mind for a while but never

remembered

to ask,

> While you are having the MGP does DR.R remove your gallbladder?

>

> Dede, It was nice talking to you.

> You are truly an inspiration to me!

> Love yea to pieces!

>

> {{{{{HUGS}}}}}

> in Michigan

[Guest guest]

Pookiethebear thank you.

[Guest guest]

Pookiethebear thank you.

[Guest guest]

Pookiethebear thank you.

[Guest guest]

Just order it again when the site is ready. When you're ordering on the

internet make sure when you're using your credit card in the bottom right of

your browser there's a little yellow lock, which shows its secure. Dr.

Nase's site doesn't have that yet because its not ready.

(no subject)

> I ordered Dr. Nase's book. I thought it was secure. What should I do??

> I got the receipt e-mailed to me.

> Jody

>

>

> -----------------------------------------------------------------

> Please read the list highlights thoroughly before posting to the whole

group. See http://rosacea.ii.net/toc.html

>

> When replying, please delete all text at the end of your email that isn't

necessary for your message.

>

> To leave the list send an email to

rosacea-support-unsubscribe

>

>

[Guest guest]

For me the most successful treatment for the acne is the AR Creme.

In a message dated 5/10/2001 10:35:01 PM Eastern Daylight Time,

DWicke8683@... writes:

<< If someone could pinpoint the single most effective thing in treating acne

rosacea, what would it be? >>

[Guest guest]

For me the most successful treatment for the acne is the AR Creme.

In a message dated 5/10/2001 10:35:01 PM Eastern Daylight Time,

DWicke8683@... writes:

<< If someone could pinpoint the single most effective thing in treating acne

rosacea, what would it be? >>

[Guest guest]

For me the most successful treatment for the acne is the AR Creme.

In a message dated 5/10/2001 10:35:01 PM Eastern Daylight Time,

DWicke8683@... writes:

<< If someone could pinpoint the single most effective thing in treating acne

rosacea, what would it be? >>

[Guest guest]

:

Yes, I notice that too about my face getting red in the shower due to

chlorinated water. The filter is a great idea. Because of my living

situation, I can't put a filter on the showerhead. What I do is take

a shower, but not wash my hair there. (I wash my hair in a basin.)

That way I avoid getting water on my face when showering. I can't

wait to move and get a filter. It's nice to know that the filter takes

care of this problem.

Take care,

Matija

> I sent this suggestion a few weeks ago and saw no reactions to it; I

think it

> is important enough to repeat.

>

> My face used to get all red after taking a shower and I always

assumed it was

> whatever cleanser I was experimenting with at the time. I was using

chlorox

> as a mildew remover and was wondering how mildew could thrive in the

shower

> since L.A. water is so chlorinated and it hit me; that same chlorine

is going

> on my face every time I wash it.

>

> I installed an in=line water filter designed specifically to remove

chlorine,

> and the improvement has been dramatic! My wife loves how much

better her

> skin feels as well (she does not have rosacea).

>

> This is a relatively inexpensive ( about $20) way to get some real

> improvement. Best wishes to all.

>

>

>

>

>

[Guest guest]

This also provided a major benefit. I also noticed that if my wife is

cleaning with bleach, and I can smell it, I turn very red. I've asked her

to stop bleaching my clothes.

Mike

(no subject)

I sent this suggestion a few weeks ago and saw no reactions to it; I think

it

is important enough to repeat.

My face used to get all red after taking a shower and I always assumed it

was

whatever cleanser I was experimenting with at the time. I was using chlorox

as a mildew remover and was wondering how mildew could thrive in the shower

since L.A. water is so chlorinated and it hit me; that same chlorine is

going

on my face every time I wash it.

I installed an in=line water filter designed specifically to remove

chlorine,

and the improvement has been dramatic! My wife loves how much better her

skin feels as well (she does not have rosacea).

This is a relatively inexpensive ( about $20) way to get some real

improvement. Best wishes to all.

[Guest guest]

Debbie,

When my children were first diagnosed we went at least once a month

until we got into the routine of things. After that they are seen every 3

months unless they get sick in between those check-ups.

I can't help you with the Pulmizyme question. Isabelle is never off of it

and ALex doesn't do it. I'm sure you'll find the answer to all your

questions here though.

Miranda

mom to ,6, and Isabelle ,turns 1 Aug.25, both w/cf

>From: redsdennys@...

>Reply-To: cfparents

>To: cfparents

>Subject: (no subject)

>Date: Thu, 23 Aug 2001 22:41:21 EDT

>

>Hi

>I'm new at this so please bear with me. How often do you guys go to the

>clinic and when you guys talk about tune-ups want do the Drs. do to you and

>if you stay in the hospital how long you usually stay. My son was dx. Last

>Dec. and we used to go monthly to children's hosp. in New Orleans but his

>last visit was on Apr. 26 and we have to go back on Sept.17.Thank God he is

>doing great. He's on Pulmonyze every other month but when he's off it he

>coughs but when he's on he don't. Does any one have that same problem?

>

>Debbie mom of 2yowcf

>

>

>

[Guest guest]

Debbie,

we go every three to four months, depending on how well Fiona's doing

and how easy it is to get an appointment. We make sure to always go

to the same doc and rather wait a little longer than change the docs

all the time.

I can't remember that I have ever heard of being on/off Pulmozyme

every month. Either it helps and he needs it or not. I could

understand when you get it prescribed only when needed, but what's

the theory behind the alternating cycle?

Bye

Torsten

> Hi

> I'm new at this so please bear with me. How often do you guys go to

the

> clinic and when you guys talk about tune-ups want do the Drs. do to

you and

> if you stay in the hospital how long you usually stay. My son was

dx. Last

> Dec. and we used to go monthly to children's hosp. in New Orleans

but his

> last visit was on Apr. 26 and we have to go back on Sept.17.Thank

God he is

> doing great. He's on Pulmonyze every other month but when he's off

it he

> coughs but when he's on he don't. Does any one have that same

problem?

>

> Debbie mom of 2yowcf

>

>

>

[Guest guest]

I don't know. But I will make sure to ask the dr. on his next visit.

Thanks

Debbie

[Guest guest]

In a message dated 8/24/2001 2:02:03 AM Eastern Daylight Time,

aberdeen95@... writes:

<<

I can't remember that I have ever heard of being on/off Pulmozyme

every month. Either it helps and he needs it or not. I could

understand when you get it prescribed only when needed, but what's

the theory behind the alternating cycle?

>>

I agree with Torsten. Also my Dr. - advised us that children don't start

Pulmozyme until they are 4 or 5. For us the 5th birthday was dreaded for

that reason. Pulmyozyme is a mucus thinner; thus, I can't understand the

logic behind off one month on another month. I would inquire as to the

rationale behind it without insulting your Dr.

Rosemary in New York with three children with CF - they are 11, 8.6,

4.8........

I coined the phrase " BREATHE DAMMIT "

I have the luck of the Irish....

[Guest guest]

Debbie,

We go to clinic every 3 months. Our clinic follows

the Cystic Fibrosis Foundation guidelines and I guess

this is what they recommend.

Christy

Mom to Mackenzie 4 w/cf and Peyton 10mo. w/o cf

--- redsdennys@... wrote:

> Hi

> I'm new at this so please bear with me. How often do

> you guys go to the

> clinic and when you guys talk about tune-ups want do

> the Drs. do to you and

> if you stay in the hospital how long you usually

> stay. My son was dx. Last

> Dec. and we used to go monthly to children's hosp.

> in New Orleans but his

> last visit was on Apr. 26 and we have to go back on

> Sept.17.Thank God he is

> doing great. He's on Pulmonyze every other month but

> when he's off it he

> coughs but when he's on he don't. Does any one have

> that same problem?

>

> Debbie mom of 2yowcf

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Preston,

I'm sorry you find yourself in this all too familiar situation. And sorry

too that I have to agree with Christen's sermon to you.

I've always told my own kids (now ages 22 and 18), if you're going to make a

mistake, make an original one... learn and heed the mistakes of others'

before you.

Your story isn't a new one, Preston. Many young men and women have found

themselves in similar circumstances. Isn't the fact that neither of your

first born children living with you or your girlfriend a hint that parenthood

probably isn't your forte? Condoms were invented for these situations.

Don't leave birth control solely up to the female, that's not fair. But

especially it's not responsible to leave birth control decisions to one who

is bi-polar.

So, go ahead and be angry, but do the right thing. If your income is less

than $12,000 a year and $300 of that goes each month to support your

firstborn, then maybe this is the Universe's way of saying -- time to step up

in the world. Get an education and get a better job so you can clean up your

messes before they grow up to make messes of their own.

Warmest blessings to you...

Kim

[Guest guest]

Preston,

Just because her daughter has CF doesn't mean that you cannot afford to take

care of her. There is lots of different programs that you can apply for that

can help you support a sick kid. I don't know where you live but we live in

the states and there are many different programs. Giving her all the support

you can is the best you can do even if you cannot finically help support her.

She needs your love and support. So don't just look at her child as a burden.

Kids with CF have normal lives just like everyone else just need a little

more support and understanding. I hope this helps. From Deb mom who has two

kids that have CF and live a normal live and I would never dream not living

without them.

[Guest guest]

It's time to grow up young man! Maybe next time you will wait to

have sex with someone who does not have the history your current

girlfriend has. How horribly sad for all the children involved in

your circle...Step up to the plate, this is the lady you chose to go

to bed with knowing her history. It did seem to matter then, so why

does it now?

Probably not the advice you wanted...

Christen

> Hi im a 24 year old male and i have been dating my current

girlfreind for

> almost 1 1/2 years. We found out 2 months ago that she had become

pregnant.

> The pregnancy was totally unexpected and shocked us both. My

girlfriend is

> suffering from an extreme case of Bi-Polar Manic Deppresion and has

a 4 year

> old daughter that is suffering from CF and has the risk of Bi-

Polar. I also

> have a 2 year old daughter that i thank god everyday is completly

healthy.

> Neither of our daughters live with us. My X-wife is the soul

provider for my

> daughter and my girlfreinds daughter was taken from her by her

parents in a

> custody finacial battle.

> After finding out that we where pregnant we finally

decided to

> keep the baby and move in together and get married and do the whole

thing.

> Well that never happened. The other day as my girlfriend and I

where walking

> into Subway to get lunch we where in the middle of a conversation

and all i

> remember hearing is " When my daughter comes and lives with us " . I

turned

> looked at her and said " Excuse me? " She had never mentioned a

single thing to

> me about this ever. I said to her " Did you plan on discussing this

with me

> instead of assuming that it was ok with me or atleast let me know

that these

> where your plans? " Apparently her mother was telling her that if

she got her

> life together she could have her daughter back. When I heard her

say what she

> did in our conversation again i was shocked and my first emotion

was anger

> because I dont think she had any plans to sit down and talk to me

about this.

> I will say neither of us are well off at all. We both work in

restaraunts.

> You have got to imagine what I was thinking. I make less then

$12,000 a year

> I pay $300.00 a month in childsupport, I have a child on the way

and then she

> wanted another child to come into the picture that needed more

finacial

> support then the other two put together.You do the math. I WAS

ANGRY!!! I

> knew how much she loved her daughter and she would die for her if

she had to

> but she dosent take the picture into reality and understand that we

dont have

> the means to take care of 3 children finacially. She has become

very upset

> with me and told me she wants her space because shes not sure what

to do. She

> says she loves me and i love her more then anything in the world

right now

> and God has given me a second chance to be a father. Im afraid she

is going

> to leave me and I dont know what to do or what to say to her. I am

days away

> from finding out what to do and I need someones advice!!!!!!!!!!

>

>

Thankyou,

>

> Preston

>

> GOD BLESS YOU ALL

[Guest guest]

this was probably not the advice he wanted by it is the advice

he needs to hear in my opinion too.

TERRI D

> > Hi im a 24 year old male and i have been dating my current

> girlfreind for

> > almost 1 1/2 years. We found out 2 months ago that she had become

> pregnant.

> > The pregnancy was totally unexpected and shocked us both. My

> girlfriend is

> > suffering from an extreme case of Bi-Polar Manic Deppresion and

has

> a 4 year

> > old daughter that is suffering from CF and has the risk of Bi-

> Polar. I also

> > have a 2 year old daughter that i thank god everyday is completly

> healthy.

> > Neither of our daughters live with us. My X-wife is the soul

> provider for my

> > daughter and my girlfreinds daughter was taken from her by her

> parents in a

> > custody finacial battle.

> > After finding out that we where pregnant we finally

> decided to

> > keep the baby and move in together and get married and do the

whole

> thing.

> > Well that never happened. The other day as my girlfriend and I

> where walking

> > into Subway to get lunch we where in the middle of a conversation

> and all i

> > remember hearing is " When my daughter comes and lives with us " . I

> turned

> > looked at her and said " Excuse me? " She had never mentioned a

> single thing to

> > me about this ever. I said to her " Did you plan on discussing this

> with me

> > instead of assuming that it was ok with me or atleast let me know

> that these

> > where your plans? " Apparently her mother was telling her that if

> she got her

> > life together she could have her daughter back. When I heard her

> say what she

> > did in our conversation again i was shocked and my first emotion

> was anger

> > because I dont think she had any plans to sit down and talk to me

> about this.

> > I will say neither of us are well off at all. We both work in

> restaraunts.

> > You have got to imagine what I was thinking. I make less then

> $12,000 a year

> > I pay $300.00 a month in childsupport, I have a child on the way

> and then she

> > wanted another child to come into the picture that needed more

> finacial

> > support then the other two put together.You do the math. I WAS

> ANGRY!!! I

> > knew how much she loved her daughter and she would die for her if

> she had to

> > but she dosent take the picture into reality and understand that

we

> dont have

> > the means to take care of 3 children finacially. She has become

> very upset

> > with me and told me she wants her space because shes not sure what

> to do. She

> > says she loves me and i love her more then anything in the world

> right now

> > and God has given me a second chance to be a father. Im afraid she

> is going

> > to leave me and I dont know what to do or what to say to her. I am

> days away

> > from finding out what to do and I need someones advice!!!!!!!!!!

> >

> >

> Thankyou,

> >

>

> > Preston

> >

> > GOD BLESS YOU ALL