(No subject)

[Guest guest]

Face up to your responsibilities. I am afraid you are going to find

yourself in a heap of trouble here as most of us that post are females! :-)

There are ways around any financial hardship. Her older child can qualify

for all sorts of medical assitance if you both really aren't well off. No

one can really afford to have kids if you do the math. It dosen't work that

way. You learn to adjust and trade off the things that aren't as important

as sticky jelly kisses and dirty, chubby little arms around you neck and

baby snuggles late at night.

Dawn mom of 4, 5 and under, the youngest wcf

(no subject)

> Hi im a 24 year old male and i have been dating my current girlfreind for

> almost 1 1/2 years. We found out 2 months ago that she had become

pregnant.

> The pregnancy was totally unexpected and shocked us both. My girlfriend is

> suffering from an extreme case of Bi-Polar Manic Deppresion and has a 4

year

> old daughter that is suffering from CF and has the risk of Bi-Polar. I

also

> have a 2 year old daughter that i thank god everyday is completly healthy.

> Neither of our daughters live with us. My X-wife is the soul provider for

my

> daughter and my girlfreinds daughter was taken from her by her parents in

a

> custody finacial battle.

> After finding out that we where pregnant we finally decided to

> keep the baby and move in together and get married and do the whole thing.

> Well that never happened. The other day as my girlfriend and I where

walking

> into Subway to get lunch we where in the middle of a conversation and all

i

> remember hearing is " When my daughter comes and lives with us " . I turned

> looked at her and said " Excuse me? " She had never mentioned a single thing

to

> me about this ever. I said to her " Did you plan on discussing this with me

> instead of assuming that it was ok with me or atleast let me know that

these

> where your plans? " Apparently her mother was telling her that if she got

her

> life together she could have her daughter back. When I heard her say what

she

> did in our conversation again i was shocked and my first emotion was anger

> because I dont think she had any plans to sit down and talk to me about

this.

> I will say neither of us are well off at all. We both work in restaraunts.

> You have got to imagine what I was thinking. I make less then $12,000 a

year

> I pay $300.00 a month in childsupport, I have a child on the way and then

she

> wanted another child to come into the picture that needed more finacial

> support then the other two put together.You do the math. I WAS ANGRY!!! I

> knew how much she loved her daughter and she would die for her if she had

to

> but she dosent take the picture into reality and understand that we dont

have

> the means to take care of 3 children finacially. She has become very upset

> with me and told me she wants her space because shes not sure what to do.

She

> says she loves me and i love her more then anything in the world right now

> and God has given me a second chance to be a father. Im afraid she is

going

> to leave me and I dont know what to do or what to say to her. I am days

away

> from finding out what to do and I need someones advice!!!!!!!!!!

>

> Thankyou,

>

> Preston

>

> GOD BLESS YOU ALL

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

>

[Guest guest]

Preston,

This may be a little harsh for you, but I have a 23 year old son and this

is EXACTLY what I would say to him! How many times must this happen before

you learn your lesson? Be a man, take responsibility for your own actions.

It is natural for a parent to want to be with their children. So, by

reading your note below, you mentioned three children. OK then...it's

alright for you to have your daughter but not alright for your girlfriend

to have her daughter? Is that because she has CF? Nobody makes 12,000 a

year anymore. There's lots of government help for you to go back to

school, even a trade school has grants. Get an education, be a man and do

the right thing. I raised my son alone, by myself at 17 years old. His

father was like you, a real nice guy. Loved me, but was 21 years old and

couldn't take responsibility. Well, my son is graduating from college this

year with his teaching certificate. He paid for his own education and has

taken out loans when he's had to. He has given blood to pay for books. I

have three other children, two in college and one with CF. He will be

teaching young men like you on how to keep it wrapped and what happens when

you don't. He knows his father, but has no relationship with him. He

can't forgive him for not being a man and doing the right thing. His

father now has three other children and his second wife left him. What a

loser in life! When my son walks up to get his degree this year, his

father will never know what he has missed out on for 23 years! But hey,

that's his loss and my gain.

FG, mom of Shantell 19yr wcf, 23yr wocf, Robby 18yr wocf, and

Tony 15yr wocf.

> [Original Message]

>

> To: cfparents >

> Date: 09/25/2001 10:36:33 AM

> Subject: (no subject)

>

> Hi im a 24 year old male and i have been dating my current girlfreind for

> almost 1 1/2 years. We found out 2 months ago that she had become

pregnant.

> The pregnancy was totally unexpected and shocked us both. My girlfriend

is

> suffering from an extreme case of Bi-Polar Manic Deppresion and has a 4

year

> old daughter that is suffering from CF and has the risk of Bi-Polar. I

also

> have a 2 year old daughter that i thank god everyday is completly

healthy.

> Neither of our daughters live with us. My X-wife is the soul provider for

my

> daughter and my girlfreinds daughter was taken from her by her parents in

a

> custody finacial battle.

> After finding out that we where pregnant we finally decided

to

> keep the baby and move in together and get married and do the whole

thing.

> Well that never happened. The other day as my girlfriend and I where

walking

> into Subway to get lunch we where in the middle of a conversation and all

i

> remember hearing is " When my daughter comes and lives with us " . I turned

> looked at her and said " Excuse me? " She had never mentioned a single

thing to

> me about this ever. I said to her " Did you plan on discussing this with

me

> instead of assuming that it was ok with me or atleast let me know that

these

> where your plans? " Apparently her mother was telling her that if she got

her

> life together she could have her daughter back. When I heard her say what

she

> did in our conversation again i was shocked and my first emotion was

anger

> because I dont think she had any plans to sit down and talk to me about

this.

> I will say neither of us are well off at all. We both work in

restaraunts.

> You have got to imagine what I was thinking. I make less then $12,000 a

year

> I pay $300.00 a month in childsupport, I have a child on the way and then

she

> wanted another child to come into the picture that needed more finacial

> support then the other two put together.You do the math. I WAS ANGRY!!! I

> knew how much she loved her daughter and she would die for her if she had

to

> but she dosent take the picture into reality and understand that we dont

have

> the means to take care of 3 children finacially. She has become very

upset

> with me and told me she wants her space because shes not sure what to do.

She

> says she loves me and i love her more then anything in the world right

now

> and God has given me a second chance to be a father. Im afraid she is

going

> to leave me and I dont know what to do or what to say to her. I am days

away

> from finding out what to do and I need someones advice!!!!!!!!!!

>

> Thankyou,

>

> Preston

>

> GOD BLESS YOU ALL

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

>

[Guest guest]

Go, ..........

I couldn't give him that much time...it really came close to home for you.

Maybe those free condoms should be forwarded to " men " like " him " ...........

Rosemary in New York with three children with CF - they are 11, 8.6,

4.8........

I coined the phrase " BREATHE DAMMIT "

I have the luck of the Irish....

[Guest guest]

All the advice given was true, but I think Preston will think twice about

asking us for any again. What do the rest of you think? He was probably

hoping someone would lean in his favor, NOT!!!!!!!!!!

K

>

>Reply-To: cfparents

>To: cfparents , cfparents

>Subject: RE: (no subject)

>Date: Wed, 26 Sep 2001 6:23:13 -0700

>

>Preston,

>This may be a little harsh for you, but I have a 23 year old son and this

>is EXACTLY what I would say to him! How many times must this happen before

>you learn your lesson? Be a man, take responsibility for your own actions.

>It is natural for a parent to want to be with their children. So, by

>reading your note below, you mentioned three children. OK then...it's

>alright for you to have your daughter but not alright for your girlfriend

>to have her daughter? Is that because she has CF? Nobody makes 12,000 a

>year anymore. There's lots of government help for you to go back to

>school, even a trade school has grants. Get an education, be a man and do

>the right thing. I raised my son alone, by myself at 17 years old. His

>father was like you, a real nice guy. Loved me, but was 21 years old and

>couldn't take responsibility. Well, my son is graduating from college this

>year with his teaching certificate. He paid for his own education and has

>taken out loans when he's had to. He has given blood to pay for books. I

>have three other children, two in college and one with CF. He will be

>teaching young men like you on how to keep it wrapped and what happens when

>you don't. He knows his father, but has no relationship with him. He

>can't forgive him for not being a man and doing the right thing. His

>father now has three other children and his second wife left him. What a

>loser in life! When my son walks up to get his degree this year, his

>father will never know what he has missed out on for 23 years! But hey,

>that's his loss and my gain.

> FG, mom of Shantell 19yr wcf, 23yr wocf, Robby 18yr wocf, and

>Tony 15yr wocf.

>

>

> > [Original Message]

> >

> > To: cfparents >

> > Date: 09/25/2001 10:36:33 AM

> > Subject: (no subject)

> >

> > Hi im a 24 year old male and i have been dating my current girlfreind

>for

> > almost 1 1/2 years. We found out 2 months ago that she had become

>pregnant.

> > The pregnancy was totally unexpected and shocked us both. My girlfriend

>is

> > suffering from an extreme case of Bi-Polar Manic Deppresion and has a 4

>year

> > old daughter that is suffering from CF and has the risk of Bi-Polar. I

>also

> > have a 2 year old daughter that i thank god everyday is completly

>healthy.

> > Neither of our daughters live with us. My X-wife is the soul provider

>for

>my

> > daughter and my girlfreinds daughter was taken from her by her parents

>in

>a

> > custody finacial battle.

> > After finding out that we where pregnant we finally decided

>to

> > keep the baby and move in together and get married and do the whole

>thing.

> > Well that never happened. The other day as my girlfriend and I where

>walking

> > into Subway to get lunch we where in the middle of a conversation and

>all

>i

> > remember hearing is " When my daughter comes and lives with us " . I

>turned

> > looked at her and said " Excuse me? " She had never mentioned a single

>thing to

> > me about this ever. I said to her " Did you plan on discussing this with

>me

> > instead of assuming that it was ok with me or atleast let me know that

>these

> > where your plans? " Apparently her mother was telling her that if she got

>her

> > life together she could have her daughter back. When I heard her say

>what

>she

> > did in our conversation again i was shocked and my first emotion was

>anger

> > because I dont think she had any plans to sit down and talk to me about

>this.

> > I will say neither of us are well off at all. We both work in

>restaraunts.

> > You have got to imagine what I was thinking. I make less then $12,000 a

>year

> > I pay $300.00 a month in childsupport, I have a child on the way and

>then

>she

> > wanted another child to come into the picture that needed more finacial

> > support then the other two put together.You do the math. I WAS ANGRY!!!

>I

> > knew how much she loved her daughter and she would die for her if she

>had

>to

> > but she dosent take the picture into reality and understand that we dont

>have

> > the means to take care of 3 children finacially. She has become very

>upset

> > with me and told me she wants her space because shes not sure what to

>do.

>She

> > says she loves me and i love her more then anything in the world right

>now

> > and God has given me a second chance to be a father. Im afraid she is

>going

> > to leave me and I dont know what to do or what to say to her. I am days

>away

> > from finding out what to do and I need someones advice!!!!!!!!!!

> >

> > Thankyou,

> >

> > Preston

> >

> > GOD BLESS YOU ALL

> >

> >

> > PLEASE do not post religious emails to the list.

> >

> >

> > -------------------------------------------

> >

> >

> > The opinions and information exchanged on this list should

> > IN NO WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

>TREATMENTS.

> >

> > --------------------------------------------------

> >

> >

> >

[Guest guest]

Hi ,

When Elliot was born he had very high indirect bili rubin count. He tested

positive for CF on 3 newborn screens but the doctors believed this was

because he had liver problems. His liver enzymes were and still are pretty

high.

Elliot had two liver biopsies and an open surgery to look at his bile ducts

and liver...all before 4 weeks of age.

Elliot was finally diagnosed with CF after the GI said " if it was my son I

would send him to this guy. " This " guy " is a pediatric liver doctor whose

special interest and research is liver disease in kids with cf.

He believes that Elliot had a blockage in his extrahepatic bile ducts. He

believes this blockage was most likely the thick secretions caused by cf. He

also believes that when they did surgery on Elliot and filled his gallbladder

with fluid somehow this flushed out his bile ducts and opened them up. Prior

to this Elliot did not have any color to his stools...was unable to release

bile out of his liver.

And now his liver is still enlarged and scarred but remarkably better. Our

last visit showed the size of his liver to be reduced by about 2 cm.

His symptoms were: pale stools, enlarged liver, hard liver, small

gallbladder, green jaundice, yellow jaundice and high bili rubin. I have been

told not to panic about his high liver enzymes. So much was going on that

these were the last of our worries. But it seems to me the Doctor said

something about his liver working harder than others to digest, etc., so that

could be the reason for the liver enzymes staying high.

Hope this helps.

Mom to Elliot 10 mths wcf

[Guest guest]

Hi ! Welcome. I have a 15 month old, , who was diagnosed at 10

months.

What do you mean by liver " involvement " ? I'm curious, because Jake's liver

enzyme values have come back elevated twice now, and they want him to see a

GI in January. The CF docs are very nonchalant about this, but of course, it

worries me.

This is a great list...I'm still quite new to all of this, but learning

lots, thanks to everyone here!

We had a chat a couple of times but I don't think there has been one for a

while. We should schedule one again soon!

mama to 1 yo w/CF and 3 yo woCF

> From: sueandjacques@...

> Hi Everyone,

>

> My name is and I am new to this list. Our son Elliot is ten months old

> and has cf. He was diagnosed at 5 weeks old. Elliot has cf related liver

> " involvement " and is doing really well.

>

> That is it for now.

>

> ps are there scheduled chats with this group?

>

[Guest guest]

-

My son's liver enzymes suddenly elevated when he was 2.5 months old, and

about to go home from the NICU for the 1st time. They put him on a daily

dose of " Actigall " by mounth twice daily, and the enzymes went back to

normal over the course of a few months. He has been kept on the med for 3

years since, and no problems! Thought that might help you!

Melinda - son 3 wcf and sister 25 wcf

Re: (no subject)

Hi ! Welcome. I have a 15 month old, , who was diagnosed at 10

months.

What do you mean by liver " involvement " ? I'm curious, because Jake's liver

enzyme values have come back elevated twice now, and they want him to see

a

GI in January. The CF docs are very nonchalant about this, but of course,

it

worries me.

This is a great list...I'm still quite new to all of this, but learning

lots, thanks to everyone here!

We had a chat a couple of times but I don't think there has been one for a

while. We should schedule one again soon!

mama to 1 yo w/CF and 3 yo woCF

> From: sueandjacques@...

> Hi Everyone,

>

> My name is and I am new to this list. Our son Elliot is ten months

old

> and has cf. He was diagnosed at 5 weeks old. Elliot has cf related liver

> " involvement " and is doing really well.

>

> That is it for now.

>

> ps are there scheduled chats with this group?

>

[Guest guest]

Margaret,

Thank you for your response. Is it like a mold? How old was when he

first tested positive for pseudonoma?

Mom to Elliot

10 mths wcf

[Guest guest]

Dear Sue,

We have tried to eradicate it but to no avail. It came back after an

absence of 4 yrs. I don't believe there is anything you can do to avoid it

but I know where it lurks and try to get to avoid it...

the soil, down the drain pipes, in swimming pools (mainly in the changing

rooms), saunas, spa pools (particuarly bad), showers. Basically anwhere

that is moist and damp. I make sure he washes his hands all the time,

especially when coming in from outside. Hope this helps.

Regards

Margaret Todd (mother of 8 yr old wcf)

(no subject)

> Hi,

> We just found out that our son, Elliot, tested positive for pseudonomas

(+1)

> Can anyone help me with this info. I have spoken with cf clinic and read

> about this bacteria in cf books but I am looking for real life. Is there

> anything we can do to prevent this?

>

>

> Mom to Elliot

> 10 mths wcf

>

>

>

[Guest guest]

,

Psuedomonas is every where it is very common bacteria in infection like ear,

it is also in a pimple so the best way to avoid it is by good hand washing.

Deb A.

[Guest guest]

Dear ,

A few years back n tested positive for pseudomonas and I thought " great

now what is going to happen? " Good attitude huh! But you hear so much it's

sort of scary. anyway, He was put first on tobramycin (sp?) that we had to

dilute with sterile water and put in his nebulizer. Then Tobi became popular

and they switched him to that - which was a lot easier. Anyway after a while,

maybe a couple of sputums he no longer tested positive for it, and hasn't

since. The doctor took him off Tobi to see how he does and we'll see about

his next sputum. I was nervous about no Tobi (he was elated!) One less thing!

We are just keeping a close eye on him and making sure he does his vest for

the total time (he has a tendency to cut off a few minutes when no one is

looking).

so, at least for n, pseudomonas so far hasn't caused much problem. I

get scared I'll hex it by saying that but hopefully it will stay that way for

a long time. I hope it goes as well for you guys.

susie n's mom

[Guest guest]

Deb. A.,

Thanks for your response.

Mom to Elliot

10mths

[Guest guest]

Hi Susie,

Thanks for your reply. It really put a smile on my face. I hope to have a

course of action set by tomorrow. Elliot is only 10mths and until now all

his problems have been liver related. Last week we found out that Elliot's

enlarged liver had reduced in size by about 2cm and we were so excited!!! So

this unexpected news comes as a real blow. Although I know I will feel

different in the morning. More positive that is.

Thanks again it is really nice to hear about other peoples tales.

Mom to Elliot

ps good luck to n being off the medication

[Guest guest]

In a message dated 12/5/01 10:51:28 PM Central Standard Time,

tbirdpride@... writes:

<< I told him the other night that I hated to bug

him abaout his vest and why didn't he just do it. He told me that it was my

job to yell at him and he sort of liked it! Go figure! It's amazing with all

>>

LOL this is so funny it sounds like something my daughter would say. Deb A

[Guest guest]

tbirdpride, I don't know your real name so forgive me. I just wanted to

let you know that I live in Danville P.A.

mom of w/CF and Alyssa w/o CF

[Guest guest]

,

Thanks for your reply about Elliot.

Mom to Ellio

10mths

[Guest guest]

,

Nothing you can do to prevent it. But make sure your clinic treats it

agressively and that way it may go. We use the Danish treatment here

(although were in Australia) as they have the least amount of pseudo. and

good survival rates. We use three months inhaled colistin and three months

oral ciproxin.

Mummy to Liam7wocf& Eilish 4wcf

(no subject)

> Hi,

> We just found out that our son, Elliot, tested positive for pseudonomas

(+1)

> Can anyone help me with this info. I have spoken with cf clinic and read

> about this bacteria in cf books but I am looking for real life. Is there

> anything we can do to prevent this?

>

>

> Mom to Elliot

> 10 mths wcf

>

>

>

[Guest guest]

In a message dated 12/5/01 10:38:25 PM Central Standard Time,

tbirdpride@... writes:

<< Was your son sad or upset about not having known this sooner? >>

My son didn't appear upset at the time about the fertility issue (fertility

and infertility are much kinder and more medically acurate terms than

sterility; and indeed, you'll find that most medical professionals are now

avoiding the word " sterile " ).

We raised our children to carry a positive attitude -- the glass is always

full until a mishap empties the glass a bit. knows until a test proves

otherwise that there is a chance he could father a child " the old fashioned

way, " just as he knows if he can't, that there are other methods. At 17,

likely he was thinking about how to get laid, not how to lay eggs

Kim

[Guest guest]

Dear

was 4 yrs old when he first tested positive. I don't know if it is

mold but it would thrive in moldy places because it's damp.

Regards, Margaret

Mum to aged 8 wcf

Re: (no subject)

> Margaret,

>

> Thank you for your response. Is it like a mold? How old was when

he

> first tested positive for pseudonoma?

>

>

> Mom to Elliot

> 10 mths wcf

>

>

>

[Guest guest]

Well, HAPPY BIRTHDAY TO JARED!!! and of course all

the other

birthday folks!!

LOVE, HUGS, BEST WISHES,

GRANDMOMBEV

(no subject)

my son will be 7 months on the dec 30 too

[Guest guest]

Have a great time. Call me if you need anything while down here.

1-

LOVE & HUGS,

grandmomBEV

Orlando, FL.

(no subject)

Hello everyone. hope everyone had a great holiday, so sorry i have not be

here for some time..The girls are doing great and we leave for Disneyworld

on

tuesday. We can not wait. but we had to put are dog in a kennal for the

first

time , i have been crying all day. well i better get back to the wash and

packing, Hope everyone has a happy and healthly new year. Patty mom of 2

daughters with cf, ages 20 and 16 years old ( the fun full years).

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

Patty,

Have a great time in Disneyworld, hope your holidays were great,

It is good to hear that your daughters are doing so well, take care,

, mommy of 4, , almost 17 and wanting her license, so Jersey

drivers beware, Caleb, 7 and acting as the man of the house until his daddy

gets home from overseas, , almost 6, my budding artist, draws and colors

everything in site, and I do mean everything, and , 2 1/2, with great

blue eyes, a mischievious smile, and personality plus (lets just say he is

stuck in the terrible twos and loves it)

[Guest guest]

-The weather cleared here in Atlanta, so that would not have been a

factor. She was concered about that. Was she flying by Angel flight

was she flying commercial?

Cheryl

-- In pancreatitis@y..., gail a miller wrote:

> Dear Group,

> Has anyone head did get off to MN?

> gail

[Guest guest]

Angel Flight.

gail

mmorga3us wrote:

> -The weather cleared here in Atlanta, so that would not have been a

> factor. She was concered about that. Was she flying by Angel flight

> was she flying commercial?

> Cheryl

>

> -- In pancreatitis@y..., gail a miller wrote:

> > Dear Group,

> > Has anyone head did get off to MN?

> > gail

>

>

> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit " reply " or send an e-mail to:

Pancreatitis (AT) Yahoo

>

> To subscribe to this e-mail group, simply send an e-mail to:

Pancreatitis-subscribe (AT) Yahoo

>

>

[Guest guest]

--She probably was able to get out if the weather was clear there.

They will only not fly if condtion do not allow it. ( I have done

medical transports)

Cheryl

P.S. We probably would have heard from her if she had not.

- In pancreatitis@y..., gail a miller wrote:

> Angel Flight.

> gail

>

> mmorga3us wrote:

>

> > -The weather cleared here in Atlanta, so that would not have been

a

> > factor. She was concered about that. Was she flying by Angel

flight

> > was she flying commercial?

> > Cheryl

> >

> > -- In pancreatitis@y..., gail a miller wrote:

> > > Dear Group,

> > > Has anyone head did get off to MN?

> > > gail

> >

> >

> > PANCREATITIS Association, Intl.

> > Online e-mail group

> >

> > To reply to this message hit " reply " or send an e-mail to:

Pancreatitis@Y...

> >

> > To subscribe to this e-mail group, simply send an e-mail to:

Pancreatitis-subscribe@Y...

> >

> >