Re: Meld scores SORRY FOR CAPS I ALWAYS USE THEM..

[Guest guest]

YES THE MELD # THERE IS GOOD AND BAD..... YES MY MELD # IS 12...I'M STAGE 4 I'M GETTING CIRRHOSIS BAD AND MY DUCT ARE CLOGGED AND CANT BE CLEANED OUT....I HAVE NO MUSCLE MASS LEFT..I DID JUST JOINED A GYM HERE TRYING TO GAIN SOME TONE BACK TO MY BODY...I HAVE BEEN GOING IN ABOUT EVERY 2 WEEKS TO GET MY BELLY DRAINED FROM THE ASCITES..THEY GET SOME TIMES ONLY 3 LITERS OTHER TIMES 5 LITERS..IT FEELS SO MUCH BETTER NOW I HAD IT DONE YESTERDAY AND MY LEGS ARE ALL READY SWELLING UP..I'M ON 160MG OF LASIXS AND 200MG OF SPIRONOLACTONES..WITH THE ASCITES I SLEEP SO MUCH MORE AND I CAN TELL I'M NOT PLAYING WITH A FULL DECK.. I AM ON THE LIST TO AND I ASK MY DR IF THEY TAKE IN ANY

OTHER FACTORS WITH YOUR MELD SCORE HE SAID SOMETIMES..BUT THEY FEEL EVER BODY HAS ASCITES AND THE OTHER PROBLEMS.. NOW MY LIVER DR HERE WHERE I LIVE HE SAID THEY SHOULD TAKE IN A FACT QUALITY OF LIFE TO...BUT WHEN THERE ISN'T ENOUGH ORGANS TO GO AROUND THEY DO WHAT THEY HAVE TO DO LAST I HEARD WHERE I LIVE THERE IS 280 FOLKS IN STATE WAITING FOR A LIVER..THAT IS WHERE EVERYBODY NEED TO TALK ABOUT BEING A DONOR..I'M GIVING THE HOSPITAL MY WHOLE BODY MAYBE ONE DAY MY BONES WILL BE HANGING AROUND AND BEING TOUCHED BY YOUNG FINE MALE DR'S HAHAHA I CAN WISH....I HAD A DR ON A PLANE TRIP TO

TEXAS TELLING ME YOU MAY GET A LIVER FASTER WHERE THERE IS NO HELMET LAWS.... I DO FEEL FOR YOUR HUSBAND I'M 54 AND IN THE PRIME OF MY LIFE WHEN THE UGLY FACE OF PSC CAME OUT.. SO I SMILE AND ENJOY WHAT I CAN DO AND LEARNED HOW IMPORTANT LITTLE THINGS ARE AND I'M NEVER IN A HURRY..LIKE I WAS AT DOW CHEMICAL WORKING... JEANNE AND FOR YOU BEING THE WIFE/CARE TAKER BLESS YOU MY HUSBAND OF SOME 20 YEARS LEFT ME OWELL...jrsteffani wrote: I have a question, my husband who is 58 yo was diagnosed with PSC in 05 he has had a meld score of 12 for about a year and a half. Within the last 6 months he has consistenly decompenstated to ascites, HE, lost 50 pounds, no muscle mass, just skin and bones he weighs around 150, vomitting at least 4 times on a daily basis, sleeps total about 8 hours just wakes up for meds. Wednesday morning around 1am had to call an ambulance he had severe HE, didn't know where he was, combative, fell and incontinent, and vomitting. He is currently on a transplant list but with a meld score of 12 probably won't be happening anytime soon.I am curious can you have a meld score of 12 and still have all these things happening to you? Is there anything that quantates your

meld score to progression of disease? He is currently on meds, actigall, nexium,nadolol, xifixan, calcium citrate, fish oil, lasix, aldactone, added lactluose and quanquin for cramps.He has had two major bleeds in 02 and 03 but for the most part was feeling pretty well until the last few months. He has an appointment in the transplant clinic in 2 weeks they mentioned doing and endoscopoy. He has had the mrcp yearly and ultrasounds. I joined a few years back but I admit I have been reading the post and replys I have learned alot regarding this disease. any input would be greatly appreciated.Becky Steffaic Jeanne