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To Holly in NC

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What a horrible nightmare. I just wish I could take the pain away. This is

truly one of the cruelest diseases known.

As for the hubby, I guess he just does not get it. Sometimes people think

" well, I know she is sick but I can fix it and take her mind off it " ..... Or

" it can't be that bad "

Sex is the last thing on someone's mind when they are flaring like that. It is

just an impossible request honey. I hope he will remember that this is an

unpredictable illness and it deprives us all of a normal life to some extent.

(some worse than others). I still say that because no one can " see " it, they

just cannot fathom the misery. Even if they love us. Even if they want to

understand or say they understand. You did marry for better for worse and in

sickness and health. He needs to repeat those vows in his mind.

My heart is with you sweetie.

love and hugs,

Debra V.

---------------------------------

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