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My worst flare to date

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Okay, I finally had a significant enough flare that it scared me and

DH to death.

See I have been retaining fluid for an unknown reason. Since they

released me from the hospital, they switched my diuretic from lasix

(which wasn't working that great but was working) to something called

bumex (initially 1 tablet, didn't work so a tab and half). Anyhow,

last night, we looked at my legs and all we could see were tree

trunks with little bitty toes.

Some time around 1 am, DH woke up to me moaning and crying in my

sleep (I hadn't woke up yet). At 2, I woke up and attempted to get

out of bed and nearly fell. I popped 2 darvocets and laid there

moaning, which of course woke him up. He got my legs propped as high

as they could go but all I could feel was that thrumming from my hips

down, with excruciating pain. As someone who has had 2 major

abdominal surgeries and one completely natural childbirth, this was

the absolute WORST pain I have ever ever felt.

He got my stuff for inflammation and also spasms and I took those too

and fell asleep for a little while, only to wake up again around 4:30

in agony again. He rubbed my legs (OMG did that hurt *but* he was

hitting some trigger spots so it helped me out some). We located my

tens unit and got me hooked up and he got me into the back room.

I have to say I wailed and cried like a baby. In fact, at times, the

pain was significant enough that I couldn't even articulate or cry.

And there he was, laying over me, crying for me and the pain I was

in. It was bad enough I wanted him to get the chainsaw and lop off

my legs at the knees, maybe higher.

Well, the pain is abating some now. I have so many drugs in me that I

should be sound asleep and I guess I'll be taking more shortly. I did

decide I would take the lasix for a few days and see if I can get the

swelling down which I believe is a direct contributor to this whole

flare.

But my question is - what does everyone else do in this situation? I

also grabbed another Lyrica even though I am only set for 2 150 mgs a

day. I may take another one later on and then one at bed time. I

still have the TENS unit on (have moved it down to my knees area

where it seems to be giving the most relief.

(((Hugs)))

Darlene

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Oh Darlene,

I feel for you. Try drinking some tea. It tends to make you urinate and keep

your legs elevated. Maggage will hurt but help to release some of the fluid as

well.

The last few days I was able to work my legs swelled up like tree trunks. I was

given Lasix as well. I also had vicodin for the pain that helped.

Good luck and keep us informed.

JudyMer

---- ddean228 wrote:

> Okay, I finally had a significant enough flare that it scared me and

> DH to death.

>

> See I have been retaining fluid for an unknown reason. Since they

> released me from the hospital, they switched my diuretic from lasix

> (which wasn't working that great but was working) to something called

> bumex (initially 1 tablet, didn't work so a tab and half). Anyhow,

> last night, we looked at my legs and all we could see were tree

> trunks with little bitty toes.

>

> Some time around 1 am, DH woke up to me moaning and crying in my

> sleep (I hadn't woke up yet). At 2, I woke up and attempted to get

> out of bed and nearly fell. I popped 2 darvocets and laid there

> moaning, which of course woke him up. He got my legs propped as high

> as they could go but all I could feel was that thrumming from my hips

> down, with excruciating pain. As someone who has had 2 major

> abdominal surgeries and one completely natural childbirth, this was

> the absolute WORST pain I have ever ever felt.

>

> He got my stuff for inflammation and also spasms and I took those too

> and fell asleep for a little while, only to wake up again around 4:30

> in agony again. He rubbed my legs (OMG did that hurt *but* he was

> hitting some trigger spots so it helped me out some). We located my

> tens unit and got me hooked up and he got me into the back room.

>

> I have to say I wailed and cried like a baby. In fact, at times, the

> pain was significant enough that I couldn't even articulate or cry.

> And there he was, laying over me, crying for me and the pain I was

> in. It was bad enough I wanted him to get the chainsaw and lop off

> my legs at the knees, maybe higher.

>

> Well, the pain is abating some now. I have so many drugs in me that I

> should be sound asleep and I guess I'll be taking more shortly. I did

> decide I would take the lasix for a few days and see if I can get the

> swelling down which I believe is a direct contributor to this whole

> flare.

>

> But my question is - what does everyone else do in this situation? I

> also grabbed another Lyrica even though I am only set for 2 150 mgs a

> day. I may take another one later on and then one at bed time. I

> still have the TENS unit on (have moved it down to my knees area

> where it seems to be giving the most relief.

>

> (((Hugs)))

> Darlene

>

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Darlene,

I really feel for you. I have had a couple of times where I

thought " this was worse than childbirth " too, but it never went as long

as yours. after I took an extra Vicodin I managed to get to sleep. My

pain is in my neck and back. I've never had the swollen legs, although

I have had leg cramps wake me up and massage and heat has helped. I

hope you can get in touch with your doctor. Myself, when I have felt

that bad, I've been tempted to go to the emergency room but I don't

know if they would do anything that would help.

Mira

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Mira,

DH was going to call 911 but I was like, what can they do? Most of the

stuff they would give me I already have and I'm allergic to codeines so

that leaves out a lot of the narcotic stuff. I believe the swelling was

a direct contributor for the flare up and am taking precautions this

evening to make sure that the swelling is gone and/or mostly

gone......because I can't do that again. To myself or to DH. I am

honestly not sure who was crying harder, him or me! And that broke my

heart because he never cries......

Darlene

>

> Darlene,

> I really feel for you. I have had a couple of times where I

> thought " this was worse than childbirth " too, but it never went as

long

> as yours. after I took an extra Vicodin I managed to get to sleep.

My

> pain is in my neck and back. I've never had the swollen legs,

although

> I have had leg cramps wake me up and massage and heat has helped. I

> hope you can get in touch with your doctor. Myself, when I have felt

> that bad, I've been tempted to go to the emergency room but I don't

> know if they would do anything that would help.

> Mira

>

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OMG Darlene! That sounds completely horrible. My dad also is having a

retaining fluid problem, but nothing to that extent.

I know they want to keep you out of the hospital because of the germs, but

couldn't they put you in isolation or something? I'm scared for you. You're in

my prayers.

Jeanne in WI

See I have been retaining fluid for an unknown reason. Since they released me

from the hospital, they switched my diuretic from lasix (which wasn't working

that great but was working) to something called bumex (initially 1 tablet,

didn't work so a tab and half). Anyhow,

last night, we looked at my legs and all we could see were tree trunks with

little bitty toes.

Some time around 1 am, DH woke up to me moaning and crying in my sleep (I

hadn't woke up yet). At 2, I woke up and attempted to get out of bed and nearly

fell. I popped 2 darvocets and laid there moaning, which of course woke him up.

He got my legs propped as high as they could go but all I could feel was that

thrumming from my hips down, with excruciating pain. As someone who has had 2

major abdominal surgeries and one completely natural childbirth, this was

the absolute WORST pain I have ever ever felt.

He got my stuff for inflammation and also spasms and I took those too and fell

asleep for a little while, only to wake up again around 4:30 in agony again. He

rubbed my legs (OMG did that hurt *but* he was hitting some trigger spots so it

helped me out some). We located my tens unit and got me hooked up and he got me

into the back room.

I have to say I wailed and cried like a baby. In fact, at times, the pain was

significant enough that I couldn't even articulate or cry. And there he was,

laying over me, crying for me and the pain I was in. It was bad enough I wanted

him to get the chainsaw and lop off

my legs at the knees, maybe higher.

Well, the pain is abating some now. I have so many drugs in me that I should

be sound asleep and I guess I'll be taking more shortly. I did decide I would

take the lasix for a few days and see if I can get the swelling down which I

believe is a direct contributor to this whole flare.

But my question is - what does everyone else do in this situation? I also

grabbed another Lyrica even though I am only set for 2 150 mgs a day. I may take

another one later on and then one at bed time. I still have the TENS unit on

(have moved it down to my knees area

where it seems to be giving the most relief.

(((Hugs)))

Darlene

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