Re: ready for conference and golf

[Guest guest]

Dear Ricky, Lee and PSC Family,

I want you to know that I have sent in my Conference Registration forms and my

Golf Registration forms. I can't wait to see everyone at this years conference.

I wanted to also remind everyone that Dr. Gores from the Mayo Clinic will be our

Keynote Speaker this year. There have been a lot of discussion lately

surrounding atypical cells found on brushings as well as CA-19 tests and

questions regarding the direction a person should take when faced with these

issues. Dr. Gores specializes in the treatment of liver cancers and PSC and I

look forward to hearing him respond to some of these questions.

Much of our conference weekend will be spent discussing very serious matters

about ourselves or our loved ones. But what is great about this year is that we

have some fun time allotted before the official start to the conference. I,

along with some of my family not attending the conference, will be playing golf

on Friday morning. My Brother ,Cousin and Nephew will join my wife and I on the

golf course. We hope that many of you will be there too. Please let your family

and friends know what's going on down in ville.

It will certainly be a special week for all of us attending the conference. I

think sharing some non-PSC time with family and friends will be special and I

hope many of you can share in the fun. Don't forget the boat ride scheduled for

Friday morning as well. The non golfers are planning on a good time too.

Registration for the conference, golf and boat trip can be found at

www.pscpartners.org.

Regarding MONEY......we need lots of it. It's the only power we have to help

fight the battle to find a cure. From talking with other PSC sufferers, the

consensus seems to be unanimous. All of us see the number of children that keep

getting introduced to PSC Support each year. And it's DEVASTATING. We have got

to make more of an impact. I encourage all able bodied/walleted PSCr's and

friends and families to buy one mile for $50.00. We need to finish lining this

road to ville with hope for the future.

Thanks for taking the time to consider my pleadings and my excitement for this

years fundraiser and Conference. I look forward to meeting you all in

ville.

" Together in the Fight, Whatever it Takes "

Tarheel Tim

[Guest guest]

Fantastic

Tim…that is 5 more. We still need more golfers, so please if you

like to golf, come to the conference early and join us! Where can you

play 18 holes with cart, have breakfast & lunch with such great company for

only $60??? I can’t encourage those whom have never attended a PSC

Conference enough to please try to come…you will NOT be disappointed!

I was reluctant my first year to fly out to Denver (from PA) by myself and

spend a weekend with a bunch of people I only knew from online postings…now

I do everything in my power to attend. So please think about it…I

and the rest of the PSC bunch can’t wait to meet you!

Together in the fight,

Whatever it takes!

Joanne (mom of Todd,

21, PSC 01, Crohns 02, TX Twice 03, rPSC 05, Diabetes 06, trying to live life

to the fullest 08)

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