New to group

[Guest guest]

--- > Joy,

I've been out for two weeks and I feel alot more like my old self.

I'm starting to laugh at the past 8.5 months--it has definitely been

an all-time low for my authentic self even though everything else in

my life was going well. These folks have encouraged me to stick with

it and I would recommend the same. Surround yourself with people

that loved you BEFORE this. I've taken to calling this 12-step

period of my life 'the Nightmare'. Unfortunately, I have had to

dissociate myself from people that may have genuinely cared, but it

wasn't my true self that they knew.

Hang in there. becky

[Guest guest]

--- > Joy,

I've been out for two weeks and I feel alot more like my old self.

I'm starting to laugh at the past 8.5 months--it has definitely been

an all-time low for my authentic self even though everything else in

my life was going well. These folks have encouraged me to stick with

it and I would recommend the same. Surround yourself with people

that loved you BEFORE this. I've taken to calling this 12-step

period of my life 'the Nightmare'. Unfortunately, I have had to

dissociate myself from people that may have genuinely cared, but it

wasn't my true self that they knew.

Hang in there. becky

[Guest guest]

--- > Joy,

I've been out for two weeks and I feel alot more like my old self.

I'm starting to laugh at the past 8.5 months--it has definitely been

an all-time low for my authentic self even though everything else in

my life was going well. These folks have encouraged me to stick with

it and I would recommend the same. Surround yourself with people

that loved you BEFORE this. I've taken to calling this 12-step

period of my life 'the Nightmare'. Unfortunately, I have had to

dissociate myself from people that may have genuinely cared, but it

wasn't my true self that they knew.

Hang in there. becky

[Guest guest]

hi, i'm jen and yes, i just went through all of that

this last month, feel free to ask anything, these

ladies are great,,

jen m.

--- mdahan@... wrote:

> Hi I am new here, I would like to discuss with

> someone else who went

> through and ectopic and a uterine miscarriage

> simutaneously, as well

> as losing one of their fallopian tubes.

>

> thanks

>

>

>

[Guest guest]

where you misdiagnosed with the entopic or did they catch it?

Re: New to group

> hi, i'm jen and yes, i just went through all of that

> this last month, feel free to ask anything, these

> ladies are great,,

> jen m.

> --- mdahan@... wrote:

> > Hi I am new here, I would like to discuss with

> > someone else who went

> > through and ectopic and a uterine miscarriage

> > simutaneously, as well

> > as losing one of their fallopian tubes.

> >

> > thanks

> >

> >

> >

[Guest guest]

melissa, well, i found out i was pregnant, i ended up

in pain one night in my 5th week, went to emerg. and

they let me sit there for twelve hours,,they went

through the belly button to see what was wrong, cause

blood tests and u/s showed baby was normal, when they

went in all they seen was blood, i was bleeding

internally..i had an ectopic that ruptured, it was

half was in my tube and half way in my uterus, the

doc's still thought they saw something in my

uterus..that was on a sat. on tues. i miscarried..they

ended up taking left tube and ovary out..it was the

worst experience in my life..

jen m.

--- melissa dahan mdahan@...> wrote:

> where you misdiagnosed with the entopic or did they

> catch it?

> Re: New to group

>

>

> > hi, i'm jen and yes, i just went through all of

> that

> > this last month, feel free to ask anything, these

> > ladies are great,,

> > jen m.

> > --- mdahan@... wrote:

> > > Hi I am new here, I would like to discuss with

> > > someone else who went

> > > through and ectopic and a uterine miscarriage

> > > simutaneously, as well

> > > as losing one of their fallopian tubes.

> > >

> > > thanks

> > >

> > >

> > >

[Guest guest]

did you sue??

Re: New to group

> >

> >

> > > hi, i'm jen and yes, i just went through all of

> > that

> > > this last month, feel free to ask anything, these

> > > ladies are great,,

> > > jen m.

> > > --- mdahan@... wrote:

> > > > Hi I am new here, I would like to discuss with

> > > > someone else who went

> > > > through and ectopic and a uterine miscarriage

> > > > simutaneously, as well

> > > > as losing one of their fallopian tubes.

> > > >

> > > > thanks

> > > >

> > > >

> > > >

[Guest guest]

what is a ttc? How long do I wait untill I try again? My Dr told me at

least 6 months? is this true? also, did you see a specialist after your ep?

Thank you thank you.

Re: New to group

> hi welcome to the group.. I don't have your name!

>

> I am sorry for your losses. I had an ep, lost my right tube and then a

few

> months later had a uterine m/c.

>

> I am currently ttc to get pg. I am here for you. YOu will find wonderful

> support and understanding here.

>

> Share whatever you want.

>

> lisa r

>

>

>

>

>

[Guest guest]

hi welcome to the group.. I don't have your name!

I am sorry for your losses. I had an ep, lost my right tube and then a few

months later had a uterine m/c.

I am currently ttc to get pg. I am here for you. YOu will find wonderful

support and understanding here.

Share whatever you want.

lisa r

[Guest guest]

I had alot of pain with my ep, my dr told it was normal from the d&c i had

from the uterine miscarriage. He waited almost 4 weeks before doing a

laporscopy when he finally noticed a tube bursted inside of me.! I am so

mad at this fact.

Re: New to group

> melissa, I hope I got your name right!!

>

> ttc means actively trying to get pg! my dr wanted me to wait about 2-3

> months after my surgery. He said it was mostly to heal emotionally. It

> took me 4 weeks to get af (my period) and then a month later I got my

second

> af and then we started ttc.

> I got pg in my 2nd month of ttc but unfortunetly ended up having

emergency

> surgery to rule out another ep since I had NO pain with my first ep and my

> tube had ruptured and I was bledding out into my stomach and didnt even

know

> it. We found out then that it was uterine and that I O'd (ovulated) from

> ovary with no tube and it jumped over to my only tube!! So, we ttc every

> month now that we know the egg can jump over!!

>

> I hope this helped some.

>

> lisa r

>

>

>

>

>

>

[Guest guest]

melissa, I hope I got your name right!!

ttc means actively trying to get pg! my dr wanted me to wait about 2-3

months after my surgery. He said it was mostly to heal emotionally. It

took me 4 weeks to get af (my period) and then a month later I got my second

af and then we started ttc.

I got pg in my 2nd month of ttc but unfortunetly ended up having emergency

surgery to rule out another ep since I had NO pain with my first ep and my

tube had ruptured and I was bledding out into my stomach and didnt even know

it. We found out then that it was uterine and that I O'd (ovulated) from

ovary with no tube and it jumped over to my only tube!! So, we ttc every

month now that we know the egg can jump over!!

I hope this helped some.

lisa r

[Guest guest]

no, i haven't yet, it just happened a month ago, and i

need to look at all my options..i had a tubal reversal

to get pregnant in june, so lots has happened in so

little time..

jen m.

--- melissa dahan mdahan@...> wrote:

> did you sue??

> Re: New to group

> > >

> > >

> > > > hi, i'm jen and yes, i just went through all

> of

> > > that

> > > > this last month, feel free to ask anything,

> these

> > > > ladies are great,,

> > > > jen m.

> > > > --- mdahan@... wrote:

> > > > > Hi I am new here, I would like to discuss

> with

> > > > > someone else who went

> > > > > through and ectopic and a uterine

> miscarriage

> > > > > simutaneously, as well

> > > > > as losing one of their fallopian tubes.

> > > > >

> > > > > thanks

> > > > >

> > > > >

> > > > >

[Guest guest]

melissa,

I dont blame you for being mad. My dr's kept telling me that I was m/c

because I was bleeding and then my blood levels would go up and they said I

was ok.This went on for weeks. It wasn't until my levels were over 10,000

that they told us about an ep. I have now found out that by 2500-5000 they

should have seen something in the uterus. I am mad since I feel that maybe

my tube could have been saved if they didn't wait soo long.

I thought about suing but the effort and money not to mention the emotional

trauma it would cause me was just too much. I just wanted to move forward.

I don't think I could have handled a law suit.

I found another dr. who is a fertility specialist that I trust with my

life....i went to him for a 2nd opinion and liked him soo much that I've

stayed!

lisa r

[Guest guest]

your lucky to be alive!!!

jen

--- melissa dahan mdahan@...> wrote:

> I had alot of pain with my ep, my dr told it was

> normal from the d&c i had

> from the uterine miscarriage. He waited almost 4

> weeks before doing a

> laporscopy when he finally noticed a tube bursted

> inside of me.! I am so

> mad at this fact.

> Re: New to group

>

>

> > melissa, I hope I got your name right!!

> >

> > ttc means actively trying to get pg! my dr

> wanted me to wait about 2-3

> > months after my surgery. He said it was mostly to

> heal emotionally. It

> > took me 4 weeks to get af (my period) and then a

> month later I got my

> second

> > af and then we started ttc.

> > I got pg in my 2nd month of ttc but unfortunetly

> ended up having

> emergency

> > surgery to rule out another ep since I had NO pain

> with my first ep and my

> > tube had ruptured and I was bledding out into my

> stomach and didnt even

> know

> > it. We found out then that it was uterine and

> that I O'd (ovulated) from

> > ovary with no tube and it jumped over to my only

> tube!! So, we ttc every

> > month now that we know the egg can jump over!!

> >

> > I hope this helped some.

> >

> > lisa r

> >

> >

> >

> >

> >

> >

[Guest guest]

wow lisa, that is just amazing!! good luck at ttc

jen m.

--- tigger89@...> wrote:

> melissa, I hope I got your name right!!

>

> ttc means actively trying to get pg! my dr wanted

> me to wait about 2-3

> months after my surgery. He said it was mostly to

> heal emotionally. It

> took me 4 weeks to get af (my period) and then a

> month later I got my second

> af and then we started ttc.

> I got pg in my 2nd month of ttc but unfortunetly

> ended up having emergency

> surgery to rule out another ep since I had NO pain

> with my first ep and my

> tube had ruptured and I was bledding out into my

> stomach and didnt even know

> it. We found out then that it was uterine and that

> I O'd (ovulated) from

> ovary with no tube and it jumped over to my only

> tube!! So, we ttc every

> month now that we know the egg can jump over!!

>

> I hope this helped some.

>

> lisa r

>

>

>

[Guest guest]

Hi ,

I don't know if it helped but it certainly helped me. I,

too, lost my right tube because it ruptured. I didn't even know I was

pregnant. I had two pregnancy tests done a month earlier and they

were negative (I was two months late, but they felt it was the side

effect of going off the pill). It is nice to know that the egg

" jumps " to the other tube. Thank you so much for the info.

In ectopicpregnancy@y..., wrote:

> melissa, I hope I got your name right!!

>

> ttc means actively trying to get pg! my dr wanted me to wait

about 2-3

> months after my surgery. He said it was mostly to heal

emotionally. It

> took me 4 weeks to get af (my period) and then a month later I got

my second

> af and then we started ttc.

> I got pg in my 2nd month of ttc but unfortunetly ended up having

emergency

> surgery to rule out another ep since I had NO pain with my first ep

and my

> tube had ruptured and I was bledding out into my stomach and didnt

even know

> it. We found out then that it was uterine and that I O'd

(ovulated) from

> ovary with no tube and it jumped over to my only tube!! So, we ttc

every

> month now that we know the egg can jump over!!

>

> I hope this helped some.

>

> lisa r

[Guest guest]

Hi Jan,

Seems like alot of the group is hitting that wall right now. Some

things I have read that you might want to try.

1. Adjust your exercise routine. Change it up add something new.

Your body might have become very use to your workout and it might

need a little more to push it to it's limits now.

2. Depending on what your daily cal intake is you might need to up

it or lower it. If you are pretty low as it is I would up it a

little especially if you are going to adjust or add to your exercise

you will need the fuel. If your cals are on the high end lower them

since you have lost a good amount of weight and your body needs less

now.

3. Be patient..it will happen!!!

Congrats on the loss you have had so far..what an accomplishment!!!

Rhonda

> Hi! I have lost 89 pounds and still have 30 to go. I have tried

just

> about everything and failed. I have beaten myself up and down and

> now I am reaching out for support from others who are or have been

in

> my position. I do aerobics three times a week and walk 3 times a

> week. I eat lots of fresh fruits and veges, but still not making

> it. Is this normal to hit this plateau? Is there anything I am

> missing or should be doing that I am not? I feel great and want

to

> finish my goal. But I feel like I am hitting a wall and I can't

get

> passed it. Any suggestions or ideas would be greatly appreciated.

> Thanks

[Guest guest]

Jan

Des here,

I¹ve been where you are before and it has always been my downfall.

Is the goal realistic?

Maybe its the journey not the gaol we should be focussing upon?

> Hi! I have lost 89 pounds and still have 30 to go. I have tried just

> about everything and failed. I have beaten myself up and down and

> now I am reaching out for support from others who are or have been in

> my position. I do aerobics three times a week and walk 3 times a

> week. I eat lots of fresh fruits and veges, but still not making

> it. Is this normal to hit this plateau? Is there anything I am

> missing or should be doing that I am not? I feel great and want to

> finish my goal. But I feel like I am hitting a wall and I can't get

> passed it. Any suggestions or ideas would be greatly appreciated.

> Thanks

>

>

>

>

>

[Guest guest]

Welcome, Jan. First off, Congrats on losing 89 pounds!! That's

spectacular!!! Don't forget to be proud of what you've accomplished,

even if you're frustrated. =+) Next, pardon me if I'm wrong, but the

aerobics and walking, 3xweek each, that sounded to me like something

you've been doing for a while? If so, my first suggestion is to do

some new exercises. Remember, your body will get used to any routine,

and find the way to burn the least calories possible with every

repetition!! Try doing resistance training for a couple of those

sessions, or get on a bike (real or stationary), try a different

aerobic routine (I don't know if you're attending a class, or using a

tape at home) or kickboxing, go swimming. You get the idea. =+) Also

(all the regulars here knew I was going to say this) I recommend

upping your fiber intake. =+)

Good luck!!! I know you can do this!!!

Catalina

> Hi! I have lost 89 pounds and still have 30 to go. I have tried

just

> about everything and failed. I have beaten myself up and down and

> now I am reaching out for support from others who are or have been

in

> my position. I do aerobics three times a week and walk 3 times a

> week. I eat lots of fresh fruits and veges, but still not making

> it. Is this normal to hit this plateau? Is there anything I am

> missing or should be doing that I am not? I feel great and want to

> finish my goal. But I feel like I am hitting a wall and I can't

get

> passed it. Any suggestions or ideas would be greatly appreciated.

> Thanks

[Guest guest]

Dear ,

Welcome to the group, I hope both you and the information you might share group

could benefit all.

You mentioned in your e-mail did anyone have any benefits from The Atkins Diet,

to some degree I have.

At the age of 46 I stood no chance of being elected as a candidate for The

Ketogenic Diet, so after doing all the meds available etc. I then pursued a

Vagus Nerve Stimulator, which was a remarkable success for controlling my

seizures, even to the extent of lowering my Tegretol. However, the success I

had with seizure control still left me having plenty of auras, just as

unpleasant as some of my lighter seizures. With no real medical support or

advice I started to tinker about with ingredients that are used for The

Ketogenic Diet, albeit not in exact measures.

Since receiving my implant I've been seizure free since November 2002 and after

introducing myself to what can only be described as The Atkins Diet have been

aura free since January 2003. For obvious nutritional concerns I frequently

have my bloods monitored, as The Atkins Diet is normally seen as a short term

slimming diet, which on a long term basis could deprive your body of important

vitamins etc.

I hope that might help in some way, and wish you well in your quest to find a

successful means of seizure control for your daughter,

Best wishes,

Phil

Re: Heavy cream

Bill,

Lately, the only thing we could think of was that about the same time we

saw

an increase in seizures was the time we changed creams. We have used

thesame brand for years and have been fine. All of the sudden, these

seizures

started happening daily and we thought it might be the probiotics or the

cream.

We stopped the probiotics and the seizures have slowed down but not

completely. Now, I'm going back to the old cream. All of this has

happened since the

constipation issues in July. We just can't get him back on track. Its

sooooooooo frustrating. You would think after 3 years on this diet, the

fine

tuning would be over. Not so.

Thanks for your help

[Guest guest]

Phil,

That is wonderful, and many congratulations on your seizure control. VNS was

offered to my daughter as well, but frankly you are the first person I have

encountered so far that had such a positive response. That's really helped open

my mind to that possibility if necessary later on. I'm excited that you had

such good results with Atkins as well.

Thank you so much for your thoughts.

Best wishes,

Re: Heavy cream

Bill,

Lately, the only thing we could think of was that about the same time we

saw

an increase in seizures was the time we changed creams. We have used

thesame brand for years and have been fine. All of the sudden, these

seizures

started happening daily and we thought it might be the probiotics or the

cream.

We stopped the probiotics and the seizures have slowed down but not

completely. Now, I'm going back to the old cream. All of this has

happened since the

constipation issues in July. We just can't get him back on track. Its

sooooooooo frustrating. You would think after 3 years on this diet, the

fine

tuning would be over. Not so.

Thanks for your help

[Guest guest]

Hi ,

My son just started the diet at Hopkins a month ago. You can read more

about him at infantilespasms.com. My email address is there and also my

phone number. Please feel free to call or email. We traveled from NE to

Hopkins so I also have some experience with motels, etc. if you need help

with that.

Mike

_____

From: Stettz

Sent: Friday, September 10, 2004 9:39 AM

To: ketogenic

Subject: New to group

Hi,

I just joined this group and thought I should introduce myself.

My 7 year old daughter is currently on the waiting list for the keto program

at Hopkins (they tell me it will likely be until January), and I am hoping

to prepare myself as well as possible by learning from the group. Her

tentative diagnosis is idiopathic atypical absence seizures or juvenile

absence. My daughter has been on Zarontin, Depakote and Topamax. Her

seizures were much worse on all three drugs in terms of frequency, duration,

and seizure type. She also experienced other side effects such as

excessive weight gain, dizziness, sadness, and agitiation. While she was

taking the drugs, I felt that my daughter had completely disappeared. She

is not taking any medications at the moment. I am giving her various

supplements. Eating junk food, sugar or a great deal of carbohydrates seems

to be a seizure trigger for her in my opinion. I believe strongly that a

dietary approach will likely help her significantly.

I am wondering if anyone who has done the program at Hopkins would be

willing to provide more detailed info about what " it's really like " ,

especially during the first week of hospitalization. This could be

off-group if you prefer, since probably not everyone is interested in the

logistical specifics of Hopkins.

On a separate note, does anyone have any experience with the Atkins Diet for

seizure control? I know that they are in the early stages of research on

this, but I would be curious to hear other's opinions on this since this was

something that was offered to us as a possible option for my daughter.

Thanks for your input.

Re: Heavy cream

Bill,

Lately, the only thing we could think of was that about the same time we

saw

an increase in seizures was the time we changed creams. We have used

thesame brand for years and have been fine. All of the sudden, these

seizures

started happening daily and we thought it might be the probiotics or the

cream.

We stopped the probiotics and the seizures have slowed down but not

completely. Now, I'm going back to the old cream. All of this has

happened since the

constipation issues in July. We just can't get him back on track. Its

sooooooooo frustrating. You would think after 3 years on this diet, the

fine

tuning would be over. Not so.

Thanks for your help

[Guest guest]

Hi

Good luck with the diet - hope the next few months go quickly for you. As an

experiment we tried Atkins for a few days prediet, and it seemed to have a very

positive effect. This is one of the reasons why I was so keen to try the diet,

but the

other reasons definitely included a loathing of the effect the drugs were having

on

Ben. It's great you are off drugs before you begin keto - the picture will be

much

clearer for you as to what is going on and what's working etc.

Rose Toms - Mum of Ben (9) keto kid since Feb 04

[Guest guest]

On a keto 2.5:1 ratio, 900 calories, there isn't a whole lot in a fruit serving,

but cut up thinly, it is a treat! .

is@... wrote: I remember them saying something about net carbs but I

don't recall what it

was.

You are correct that the keto does allow for some fruits but the amounts are

very small in my son's case. He gets 5 or 6 grams of fruit which is not

very much. If you spilled it on your shirt it probably wouldn't be enough

to leave a stain. We usually mix it with the cream to give a little flavor.

Mike

_____

From: Stettz

Sent: Saturday, September 11, 2004 2:50 PM

To: ketogenic

Subject: Re: New to group

Thanks Mike. I just sent you a separate individual email. My understanding

is that Hopkins also does not use the concept of " net carbs " in their

application of Atkins.

From reading Dr. Freeman's book, I got the impression that the keto diet

actually allows fruit like berries and applesauce, which Atkins never seems

to allow. That sounds like a big plus to me.

Re: Heavy cream

Bill,

Lately, the only thing we could think of was that about the same time we

saw

an increase in seizures was the time we changed creams. We have used

thesame brand for years and have been fine. All of the sudden, these

seizures

started happening daily and we thought it might be the probiotics or

the

cream.

We stopped the probiotics and the seizures have slowed down but not

completely. Now, I'm going back to the old cream. All of this has

happened since the

constipation issues in July. We just can't get him back on track. Its

sooooooooo frustrating. You would think after 3 years on this diet,

the

fine

tuning would be over. Not so.

Thanks for your help

[Guest guest]

Hi Karin,

I too had the peripheral neuropathy as one of my symptoms. I had Lyme disease at the time, so the doctor was trying to tell me that I had had Lyme disease for a very long time (even though I knew I had gotten the tick bite just 2 months prior). I researched like yourself and found that peripheral neuropathy is associated with CD and I think it has to do with the B vitamin deficiencies that are common with CD (B-12 in particular). The GI symptoms you have are absolutely correlated with CD. As it turns out, my Lyme doctor wasn't all wrong as CD is quite common in Lyme patients as Lyme will trigger or make worse just about any autoimmunce pre-disposition you might have.

I got tired of arguing with doctors, though and chose to use the enterolab test, which you can do from your home: www.enterolab.com If you do the test, I recommend doing the gene test, as well. That way you'll know if it happens to be negative whether you even have the genetic pre-disposition.

There is a list of GI docs on the website for the DFW celiac group: www.dfwceliac.org but some of them won't see you until after you've been diagnosed (rather silly when most of would need a doc for the initial diagnosis and not necessarily need one afterwards).

B

(also in the DFW area)

-------------- Original message --------------

Hello,My name is Karin and I have not yet been diagnosed, but I am trying to learn more. My PCP doesn't think I need to be tested for CD. I have IBS, GERD, fatigue and recently started having numbness in my feet, left leg and arm, which is now progressing to pins and needles and pain. The diagnosis is peripheral neuropathy, with no cause. I have read about CD, and found some information that indicates neurologic damage may be caused by CD. I am wondering if any of you have neurologic symptoms. I am also trying to find out how to get tested- I live in the Dallas, TX area and would appreciate any references. Or, have heard there are places you can send samples to be tested.