Road to ville

[Guest guest]

Dear All,The Road to ville is heating up and we are on the move ! Bye Bye Kansas ! You can check our progress at :http://www.pscpartners.org/RtJ.htmWe thank our latest walkers for their generous donations and we hope all of you will be inspired to join us on our eastward journey.Please consider a fundraiser to help us on our way and please share any great ideas you have that make it fun and easy.If you need ideas or have a good one to share , please contact me at leedeubert@....Now is the time to spark the research we need and together we can make a difference in the future treatment of PSC.Together in the fight , whatever it takes.Lee

[Guest guest]

I am ready to begin mailing out letters for the Road to ville.

Many thanks to Lee, Reggie and everyone who is encouraging us to

participate in this great way to raise funds for PSC research.

Last year we had 12 people who signed up for the 2007 Virtual Walk.

We raised additional funds at the PSC Conference in Denver. But,

amazingly, with only 12 key people, we raised $26,441 last year.

$23,000 was donated towards research last year! And so far this year

we have raised more than $41,000 with the RTJ.

In addition to donations of money, knowledge and awareness of PSC

grows with every contact we make with others. Every contact we make

helps spread the word and educate about PSC, the disease, the effects

on an individual and their family, and PSC Partners quest for a cure.

We are and will continue to make progress!

Some people have resources to raise lots of donations. But, every

individual donation is important, as they all contribute to the total

number of dollars we have available for future PSC research. I hope

you too will participate in the RTJ this year! Every donation makes a

difference.

I am starting out by revising Deb Wente's letter for my family,

friends, neighbors and co-workers. In all honesty, I hate asking

others to donate to any cause. But, first and foremost, what better

cause to ask people to help with than a rare illness, which affects my

son, and a disease with no curative treatment. And, second, in the

past two years, I have been overwhelmed with such a wonderful response

from friends and others - people want to donate towards something with

meaning. Knowing who is affected by PSC means that their donations

have a personal touch and are valued.

I started this post simply to ask what the most current number of

dollars is for the RTJ. Then I wanted to share with everyone my

excitement for this project. I was astounded that we raised over

$25,000 last year. And to think that we are over $41,000 this year.

At first I thought we would not succeed with the $100,000 goal. Now,

I believe it is very possible.

So, I will revise my letter today! Do we have a more recent update on

the RTJ numbers or shall I use the $41,136 figure?

Thanks!

Joanne H

(, Ca., mom of 17, UC/PSC 2-06; Juvenile Rheum Arthritis 98)

[Guest guest]

When you say 12 people signed up, you mean sent in donations right for the RTJ. Or is this something separate? We have done a mailing and have had some success , I think we are at about $1,300 so far. But, if we can do more,. we want to in recognition of our son Tyler's PSC, age 10...

Stevie Lynn Gedgaudas-Ostos

" jmhatch39 "

" jmhatch39 "

Sent by:

02/24/2008 12:15 PM

Please respond to

To

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Subject

Road to ville

I am ready to begin mailing out letters for the Road to ville.

Many thanks to Lee, Reggie and everyone who is encouraging us to

participate in this great way to raise funds for PSC research.

Last year we had 12 people who signed up for the 2007 Virtual Walk.

We raised additional funds at the PSC Conference in Denver. But,

amazingly, with only 12 key people, we raised $26,441 last year.

$23,000 was donated towards research last year! And so far this year

we have raised more than $41,000 with the RTJ.

In addition to donations of money, knowledge and awareness of PSC

grows with every contact we make with others. Every contact we make

helps spread the word and educate about PSC, the disease, the effects

on an individual and their family, and PSC Partners quest for a cure.

We are and will continue to make progress!

Some people have resources to raise lots of donations. But, every

individual donation is important, as they all contribute to the total

number of dollars we have available for future PSC research. I hope

you too will participate in the RTJ this year! Every donation makes a

difference.

I am starting out by revising Deb Wente's letter for my family,

friends, neighbors and co-workers. In all honesty, I hate asking

others to donate to any cause. But, first and foremost, what better

cause to ask people to help with than a rare illness, which affects my

son, and a disease with no curative treatment. And, second, in the

past two years, I have been overwhelmed with such a wonderful response

from friends and others - people want to donate towards something with

meaning. Knowing who is affected by PSC means that their donations

have a personal touch and are valued.

I started this post simply to ask what the most current number of

dollars is for the RTJ. Then I wanted to share with everyone my

excitement for this project. I was astounded that we raised over

$25,000 last year. And to think that we are over $41,000 this year.

At first I thought we would not succeed with the $100,000 goal. Now,

I believe it is very possible.

So, I will revise my letter today! Do we have a more recent update on

the RTJ numbers or shall I use the $41,136 figure?

Thanks!

Joanne H

(, Ca., mom of 17, UC/PSC 2-06; Juvenile Rheum Arthritis 98)

[Guest guest]

Stevie -

I was referring to last year's 2007 Virtual Walk, when 12 people signed up to participate in the walk. There were many, many more donations spearheaded by these 12, plus individual donations gathered at the Denver Conference.

Many thanks for what you have done so far in the Road to ville. Our progress is so great - We are in Illinois!!!!

On to ville (all of a sudden I had a recollection from the Wizard of Oz - jumping into the hot air balloon - sorry... it's been quite a long day... but again if we made it to $100,000 in donations this year - WOW!).

Joanne H

(after a long day! , Ca)

-----Original Message-----From: [mailto: ]On Behalf Of Stevie GedgaudasSent: Tuesday, February 26, 2008 8:48 AMTo: Subject: Re: Road to ville

When you say 12 people signed up, you mean sent in donations right for the RTJ. Or is this something separate? We have done a mailing and have had some success , I think we are at about $1,300 so far. But, if we can do more,. we want to in recognition of our son Tyler's PSC, age 10...Stevie Lynn Gedgaudas-Ostos"jmhatch39" <copper (AT) sbcglobal (DOT) net>

"jmhatch39" <copper (AT) sbcglobal (DOT) net> Sent by: 02/24/2008 12:15 PM

Please respond to

To

cc

Subject

Road to ville

I am ready to begin mailing out letters for the Road to ville.Many thanks to Lee, Reggie and everyone who is encouraging us toparticipate in this great way to raise funds for PSC research.Last year we had 12 people who signed up for the 2007 Virtual Walk. We raised additional funds at the PSC Conference in Denver. But,amazingly, with only 12 key people, we raised $26,441 last year. $23,000 was donated towards research last year! And so far this yearwe have raised more than $41,000 with the RTJ.In addition to donations of money, knowledge and awareness of PSC grows with every contact we make with others. Every contact we makehelps spread the word and educate about PSC, the disease, the effectson an individual and their family, and PSC Partners quest for a cure.We are and will continue to make progress!Some people have resources to raise lots of donations. But, everyindividual donation is important, as they all contribute to the totalnumber of dollars we have available for future PSC research. I hopeyou too will participate in the RTJ this year! Every donation makes adifference.I am starting out by revising Deb Wente's letter for my family,friends, neighbors and co-workers. In all honesty, I hate askingothers to donate to any cause. But, first and foremost, what bettercause to ask people to help with than a rare illness, which affects myson, and a disease with no curative treatment. And, second, in thepast two years, I have been overwhelmed with such a wonderful responsefrom friends and others - people want to donate towards something withmeaning. Knowing who is affected by PSC means that their donationshave a personal touch and are valued.I started this post simply to ask what the most current number ofdollars is for the RTJ. Then I wanted to share with everyone myexcitement for this project. I was astounded that we raised over$25,000 last year. And to think that we are over $41,000 this year. At first I thought we would not succeed with the $100,000 goal. Now,I believe it is very possible.So, I will revise my letter today! Do we have a more recent update onthe RTJ numbers or shall I use the $41,136 figure? Thanks!Joanne H(, Ca., mom of 17, UC/PSC 2-06; Juvenile Rheum Arthritis 98)