End of second week of chemo - Thanks to all

[Guest guest]

Hi all,

I want to thank you for your thoughts and prayers while I'm going through

chemo. I finished my second week yesterday and start the third week next

Wednesday - Friday. I guess they are going to keep it Wed-Fri of every week,

unless something happens where I can't tolerate it.

I've been really sick for those three days and a little this morning too, but

it's better this afternoon. I'm really weak in addition. I had signed up for

another class in staying current with the laws and lingo, etc. in Aspergers

Syndrome and was offered a job that could be part time and on my own schedule.

From a place where the director actually knows I have fibro and believes in it.

For those of you who don't know me, I'm fast going broke and will be soon and

don't know what will happen. So if I could bring in some money it would be a

lifesaver. Now I'm not sure, but hope to have the energy to take the class on

Tuesday mornings. Pray for me please, if you are one who does.

You have all been in my thoughts too. I know you are all struggling with your

own problems. I've tried to get to the computer and write to some of you, but

haven't been able to do the job I would like to do. I will keep trying to keep

up as well as I can. It is so nice that I have this family cheering me on -

well I am cheering you own too.

One problem I've been experiencing that wasn't expected is that my Sarcoidosis

has started flaring up again. It has been pretty much under control with taking

Prednisone, but my eye doctor has had me weaning myself off of it. I got down

to 10mg a day and started flaring. All my symptoms started coming back. After

chemo Thursday, I went to my Sarcoid doctor (pulmonologist).He had me take a PFT

and I didn't do so well and also need more oxygen in my blood. The nodules have

come back on my lymph nodes and my joints and throat - I'm back to the raspy

voice. I have started the fever at night and the sweats, even though it is 18

outside. I'm really disappointed about this, because before the chemo and

weaning off Pred, that part of my life was getting under control, except for the

side effects of Pred.

My sarcoid doctors are very good at what they do, but it really gets to me

that they don't " believe " in Fibromyalgia. How can you just not believe in

it? It seems to me like saying you don't believe in politics. They think the

symptoms could all be sarcoid, except for the brain fog, which I don't think

they believe happens for either reason. I tried Thursday to explain a little to

him and (he's an older man - 70's?) he patted me on my knee and looked at me

kindly and said " maybe you have some anxiety. " I wanted to punch him!

Oh well, this is my update. Thank you to all of you who are keeping track of

me. I really appreciate it so much. It's so nice to have a family who

believes, because you all have it, and rallies around those of us who have

difficulties in other areas too. You are so great!

Thanks,

Marti

---------------------------------

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[Guest guest]

Thank you for checking in, Marti. From what I understand about chemo, each week

might get harder, so we don't expect you to keep up with posting. But I very

much appreciate you taking the time to update us. You are in my prayers. Take

care.

Jeanne in WI

[Guest guest]

Hi Marti,

It seems that all of us in New England are struggling through. My hip and back

are not happy. I can barely do anything. my daughter does the laundry and i fold

it. I can barely do it because reaching over into the basket throughs my pain up

and the hip spasms. Today I went to Shaws with my husband because I was tired of

hearing him whine. When we finished i was in so much pain and then he decided we

needed to go to Wallyworld for a few items we get there that are cheaper. Well

suprise suprise suprise, I couldn't even think of going in there even tough

there were some things I wanted to get. When we got home he had his temper

tantrum because I couldn't put things away and needed to sit and take my muscle

relaxers. My daughter and husband put the groceries away and I warmed up the

deli food because it had gotten cold. He apoligised and after I ate I took a

nap. I was suppose to make dinner but I was out of it from the muscle relaxers.

He tried to wake me to maqke dinner but it didn't happen. Finally I was able to

get up and made a wonderful chef salad and added some coctail shrip that was on

sale. Oh well I'll make the scollop stuffed shell for dinner tomarrow.

I think that you having the class on Tuesday is probab ly about the best it

could be. It gives you from Friday until Tuesday to recover from treatment. then

the next day it begins again after you have class. Just remember that the 2

important things or your class and treatment and let other things slide if you

need to.

I was reading that you fly. To bad money is an issue. In the spring/ summer you

could have flown into Newport and you , Tigger and i could have met for Lunch.

my husband retires Sept 1 so maybe the end of August or Sept we can meet

somewhere. I can only drive to about Portsmouth before fatigue sets in.

How has this crazy weather been treating you. We didn't get any snow that I am

aware of. The rain started before midnight so if there was any it was washed

away. The rain was pretty heavy so I would sleep then it would wake me.

Keep in touch.

JudyMer

---- Marti Boguski wrote:

> Hi all,

> I want to thank you for your thoughts and prayers while I'm going through

chemo. I finished my second week yesterday and start the third week next

Wednesday - Friday. I guess they are going to keep it Wed-Fri of every week,

unless something happens where I can't tolerate it.

>

> I've been really sick for those three days and a little this morning too,

but it's better this afternoon. I'm really weak in addition. I had signed up

for another class in staying current with the laws and lingo, etc. in Aspergers

Syndrome and was offered a job that could be part time and on my own schedule.

From a place where the director actually knows I have fibro and believes in it.

For those of you who don't know me, I'm fast going broke and will be soon and

don't know what will happen. So if I could bring in some money it would be a

lifesaver. Now I'm not sure, but hope to have the energy to take the class on

Tuesday mornings. Pray for me please, if you are one who does.

>

> You have all been in my thoughts too. I know you are all struggling with

your own problems. I've tried to get to the computer and write to some of you,

but haven't been able to do the job I would like to do. I will keep trying to

keep up as well as I can. It is so nice that I have this family cheering me on

- well I am cheering you own too.

>

> One problem I've been experiencing that wasn't expected is that my

Sarcoidosis has started flaring up again. It has been pretty much under control

with taking Prednisone, but my eye doctor has had me weaning myself off of it.

I got down to 10mg a day and started flaring. All my symptoms started coming

back. After chemo Thursday, I went to my Sarcoid doctor (pulmonologist).He had

me take a PFT and I didn't do so well and also need more oxygen in my blood.

The nodules have come back on my lymph nodes and my joints and throat - I'm back

to the raspy voice. I have started the fever at night and the sweats, even

though it is 18 outside. I'm really disappointed about this, because before the

chemo and weaning off Pred, that part of my life was getting under control,

except for the side effects of Pred.

>

> My sarcoid doctors are very good at what they do, but it really gets to me

that they don't " believe " in Fibromyalgia. How can you just not believe in

it? It seems to me like saying you don't believe in politics. They think the

symptoms could all be sarcoid, except for the brain fog, which I don't think

they believe happens for either reason. I tried Thursday to explain a little to

him and (he's an older man - 70's?) he patted me on my knee and looked at me

kindly and said " maybe you have some anxiety. " I wanted to punch him!

>

> Oh well, this is my update. Thank you to all of you who are keeping track

of me. I really appreciate it so much. It's so nice to have a family who

believes, because you all have it, and rallies around those of us who have

difficulties in other areas too. You are so great!

>

> Thanks,

> Marti

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with Yahoo! Search.

>

>

[Guest guest]

Marti, I am so glad you are keeping us updated. Hope the chemo does the job and

you will be able to eventually get back on the prednisone and have the

Sarcoidosis symptoms under control.

It is interesting that they " dont believe " in fibro. I mean we are talking

about a woman with cancer and another very proven illness. It is kind of

strange that they would not believe in fibro. I don't know... sometimes it is

like asking someone " do you believe in ghosts " ? or " do you believe in UFO's " ?

Crazy isnt it???? I mean these symptoms are certainly present for some reason

in several million of us here in the U.S. alone..... not to mention how many

world wide.

Well, Marti, keep up the chin honey. I will be thinking of you.

love and hugs,

Debra V.

Marti Boguski wrote:

Hi all,

I want to thank you for your thoughts and prayers while I'm going through

chemo. I finished my second week yesterday and start the third week next

Wednesday - Friday. I guess they are going to keep it Wed-Fri of every week,

unless something happens where I can't tolerate it.

I've been really sick for those three days and a little this morning too, but

it's better this afternoon. I'm really weak in addition. I had signed up for

another class in staying current with the laws and lingo, etc. in Aspergers

Syndrome and was offered a job that could be part time and on my own schedule.

From a place where the director actually knows I have fibro and believes in it.

For those of you who don't know me, I'm fast going broke and will be soon and

don't know what will happen. So if I could bring in some money it would be a

lifesaver. Now I'm not sure, but hope to have the energy to take the class on

Tuesday mornings. Pray for me please, if you are one who does.

You have all been in my thoughts too. I know you are all struggling with

your own problems. I've tried to get to the computer and write to some of you,

but haven't been able to do the job I would like to do. I will keep trying to

keep up as well as I can. It is so nice that I have this family cheering me on

- well I am cheering you own too.

One problem I've been experiencing that wasn't expected is that my

Sarcoidosis has started flaring up again. It has been pretty much under control

with taking Prednisone, but my eye doctor has had me weaning myself off of it.

I got down to 10mg a day and started flaring. All my symptoms started coming

back. After chemo Thursday, I went to my Sarcoid doctor (pulmonologist).He had

me take a PFT and I didn't do so well and also need more oxygen in my blood.

The nodules have come back on my lymph nodes and my joints and throat - I'm back

to the raspy voice. I have started the fever at night and the sweats, even

though it is 18 outside. I'm really disappointed about this, because before the

chemo and weaning off Pred, that part of my life was getting under control,

except for the side effects of Pred.

My sarcoid doctors are very good at what they do, but it really gets to me

that they don't " believe " in Fibromyalgia. How can you just not believe in

it? It seems to me like saying you don't believe in politics. They think the

symptoms could all be sarcoid, except for the brain fog, which I don't think

they believe happens for either reason. I tried Thursday to explain a little to

him and (he's an older man - 70's?) he patted me on my knee and looked at me

kindly and said " maybe you have some anxiety. " I wanted to punch him!

Oh well, this is my update. Thank you to all of you who are keeping track

of me. I really appreciate it so much. It's so nice to have a family who

believes, because you all have it, and rallies around those of us who have

difficulties in other areas too. You are so great!

Thanks,

Marti

---------------------------------

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Marti,

Thank you for keeping us updated. I like the idea that you can take

those classes and help earn a little $ which it sounds like you so

desperately need. Is there anyway you can sell your place to

forestall a foreclosure?

As for the prednisone, I know I don't have the sarcoidosis, but I

have asthma and COPD and was on prednisone so long, they are trying

something called a " dexpak " (which has a generic) and you take 3

pills 2x a day for 8 days, then 3 & 2 for so many days, then 2 & 2

for so many days and then down to 1 for so many days. It seems to be

not as bad for me as the prednisone, although I still have the

steroid swell.

Keep us posted as you can!

(((Hugs and prayers))))

Darlene

P.S. My 2 kids don't have asbergers, but our youngest son has mild

mental retardation and also full FAS because of his birth mom's

drinking; his twin sister is RAD from the abuse they suffered. Loads

and lots of fun dealing with that on top of chronic health problems!

>

>> > I've been really sick for those three days and a little this

morning too, but it's better this afternoon. I'm really weak in

addition. I had signed up for another class in staying current with

the laws and lingo, etc. in Aspergers Syndrome and was offered a job

that could be part time and on my own schedule. From a place where

the director actually knows I have fibro and believes in it. For

those of you who don't know me, I'm fast going broke and will be soon

and don't know what will happen. So if I could bring in some money

it would be a lifesaver. Now I'm not sure, but hope to have the

energy to take the class on Tuesday mornings. Pray for me please, if

you are one who does.

> >

> > You have all been in my thoughts too. I know you are all

struggling with your own problems. I've tried to get to the computer

and write to some of you, but haven't been able to do the job I would

like to do. I will keep trying to keep up as well as I can. It is

so nice that I have this family cheering me on - well I am cheering

you own too.

> >

> > One problem I've been experiencing that wasn't expected is that

my Sarcoidosis has started flaring up again. It has been pretty much

under control with taking Prednisone, but my eye doctor has had me

weaning myself off of it. I got down to 10mg a day and started

flaring. All my symptoms started coming back. After chemo Thursday,

I went to my Sarcoid doctor (pulmonologist).He had me take a PFT and

I didn't do so well and also need more oxygen in my blood. The

nodules have come back on my lymph nodes and my joints and throat -

I'm back to the raspy voice. I have started the fever at night and

the sweats, even though it is 18 outside. I'm really disappointed

about this, because before the chemo and weaning off Pred, that part

of my life was getting under control, except for the side effects of

Pred.

> >

> > My sarcoid doctors are very good at what they do, but it really

gets to me that they don't " believe " in Fibromyalgia. How can you

just not believe in it? It seems to me like saying you don't believe

in politics. They think the symptoms could all be sarcoid, except

for the brain fog, which I don't think they believe happens for

either reason. I tried Thursday to explain a little to him and (he's

an older man - 70's?) he patted me on my knee and looked at me kindly

and said " maybe you have some anxiety. " I wanted to punch him!

> >

> > Oh well, this is my update. Thank you to all of you who are

keeping track of me. I really appreciate it so much. It's so nice

to have a family who believes, because you all have it, and rallies

around those of us who have difficulties in other areas too. You are

so great!

> >

> > Thanks,

> > Marti

> >

> >

> > ---------------------------------

> > Looking for last minute shopping deals? Find them fast with

Yahoo! Search.

> >

> >

[Guest guest]

Marti - just wanted you to know that I've been sending up prayers for you

daily.

Teri (central Wisconsin)

Marti Boguski <martibowenboguski@ <mailto:martibowenboguski%40yahoo.com>

yahoo.com> wrote: Hi all,

I finished my second week yesterday and start the third week next Wednesday

- Friday. I guess they are going to keep it Wed-Fri of every week, unless

something happens where I can't tolerate it.

[Guest guest]

Teri, Thank you so much. It means a lot to me,

Marti

Teri Wallner wrote:

Marti - just wanted you to know that I've been sending up prayers for

you

daily.

Teri (central Wisconsin)

Marti Boguski <martibowenboguski@ <mailto:martibowenboguski%40yahoo.com>

yahoo.com> wrote: Hi all,

I finished my second week yesterday and start the third week next Wednesday

- Friday. I guess they are going to keep it Wed-Fri of every week, unless

something happens where I can't tolerate it.

[Guest guest]

Thank you Darlene. I hope it works out for the Tuesday class too. I don't

know it I can do the job, but am willing to try. The classes are important to

keep me up to date if I continute to develop my website. The job would be a

different thing not related to the classes, but it would be nice to be able to

do it. I don't know when it would start. I'm hoping for after my chemo.

Blessed be,

Marti

ddean228 wrote:

Marti,

Thank you for keeping us updated. I like the idea that you can take

those classes and help earn a little $ which it sounds like you so

desperately need. Is there anyway you can sell your place to

forestall a foreclosure?

As for the prednisone, I know I don't have the sarcoidosis, but I

have asthma and COPD and was on prednisone so long, they are trying

something called a " dexpak " (which has a generic) and you take 3

pills 2x a day for 8 days, then 3 & 2 for so many days, then 2 & 2

for so many days and then down to 1 for so many days. It seems to be

not as bad for me as the prednisone, although I still have the

steroid swell.

Keep us posted as you can!

(((Hugs and prayers))))

Darlene

P.S. My 2 kids don't have asbergers, but our youngest son has mild

mental retardation and also full FAS because of his birth mom's

drinking; his twin sister is RAD from the abuse they suffered. Loads

and lots of fun dealing with that on top of chronic health problems!

>

>> > I've been really sick for those three days and a little this

morning too, but it's better this afternoon. I'm really weak in

addition. I had signed up for another class in staying current with

the laws and lingo, etc. in Aspergers Syndrome and was offered a job

that could be part time and on my own schedule. From a place where

the director actually knows I have fibro and believes in it. For

those of you who don't know me, I'm fast going broke and will be soon

and don't know what will happen. So if I could bring in some money

it would be a lifesaver. Now I'm not sure, but hope to have the

energy to take the class on Tuesday mornings. Pray for me please, if

you are one who does.

> >

> > You have all been in my thoughts too. I know you are all

struggling with your own problems. I've tried to get to the computer

and write to some of you, but haven't been able to do the job I would

like to do. I will keep trying to keep up as well as I can. It is

so nice that I have this family cheering me on - well I am cheering

you own too.

> >

> > One problem I've been experiencing that wasn't expected is that

my Sarcoidosis has started flaring up again. It has been pretty much

under control with taking Prednisone, but my eye doctor has had me

weaning myself off of it. I got down to 10mg a day and started

flaring. All my symptoms started coming back. After chemo Thursday,

I went to my Sarcoid doctor (pulmonologist).He had me take a PFT and

I didn't do so well and also need more oxygen in my blood. The

nodules have come back on my lymph nodes and my joints and throat -

I'm back to the raspy voice. I have started the fever at night and

the sweats, even though it is 18 outside. I'm really disappointed

about this, because before the chemo and weaning off Pred, that part

of my life was getting under control, except for the side effects of

Pred.

> >

> > My sarcoid doctors are very good at what they do, but it really

gets to me that they don't " believe " in Fibromyalgia. How can you

just not believe in it? It seems to me like saying you don't believe

in politics. They think the symptoms could all be sarcoid, except

for the brain fog, which I don't think they believe happens for

either reason. I tried Thursday to explain a little to him and (he's

an older man - 70's?) he patted me on my knee and looked at me kindly

and said " maybe you have some anxiety. " I wanted to punch him!

> >

> > Oh well, this is my update. Thank you to all of you who are

keeping track of me. I really appreciate it so much. It's so nice

to have a family who believes, because you all have it, and rallies

around those of us who have difficulties in other areas too. You are

so great!

> >

> > Thanks,

> > Marti

> >

> >

> > ---------------------------------

> > Looking for last minute shopping deals? Find them fast with

Yahoo! Search.

> >

> >

[Guest guest]

Dearest Marti,

I don't post much, but I have been following your trials with chemo and send

prayers and positive thoughts.

Blessings and hugs,

Annie

---------------------------------

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[Guest guest]

Annie, Thank you so much. That is very sweet of you.

I appreciate your caring very much and your prayers, of course,

Marti

Annie G wrote:

Dearest Marti,

I don't post much, but I have been following your trials with chemo and send

prayers and positive thoughts.

Blessings and hugs,

Annie

---------------------------------

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Marti, my prayers are with you. Dee says hi and would like to hear from you.

Love and gentle hugs,

Debi/Central Cal.-55

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