Fwd: Surprise ! Check our progress !

[Guest guest]

Dear All,

The Road to ville is picking up speed ! Just wait until you

see us now ! Go to www.pscpartners.org or click on the link below.

You will be very surprised on how far we have traveled since you last

checked.

http://www.pscpartners.org/RtJ.htm

This is a group effort and everyone's mile counts. If every member

here gave just one mile or $50 once a year, we would have over

$50,000 every year for a research grant. This is our time, our

efforts will bring a change for PSC treatment. The medical

researchers are hearing our cry for help. We are having a couple of

the brightest stars in PSC at our May conference where they will meet

some of the best people anywhere who happen to have PSC. They will

care about the people they meet and they will want to help us. We may

be a small group of rare people but we will clamor for the attention

we need and deserve every year until we have a treatment that works !!!

I am so proud of all our contributers for being a part of this great

effort.

Lee

For those who want to join us on the Road, I have reprinted the email

I sent with the letters that are being used. [see below] Once again,

I will send out a letter on anyone's behalf, you just need to email

me. I know when my son was diagnosed, many asked how they could help.

This is how. All my friends and family that asked that question got a

letter from me and they know now that I will be mailing them a letter

once a year until we have a treatment that works and the feedback

that I have received is that they are more than happy and genuinely

glad to have a way to help. This was interesting to me that while I

didn't want to impose on anyone, that I am hearing back from most

that they have been waiting for a way to help. Something to think about.

>

> Dear All,

> Thank you to everyone who is joining us on the Road to

> ville. My letter campaign is underway and the donations are

> coming in.

> You would be surprised how much people care and how willing they

> are to help when asked.

> Below is a copy of Deb's letter that brought in an amazing amount

> of over $16,000 ! Big thanks to Deb.

> For my own campaign,I sent out two pages which are below, one

> requesting a donation in honor of Bill,and the other a list of the

> foundation's accomplishments.

> Below I have also included another letter that anyone can use.

> So far I have sent out 38 letters to family, friends, my

> hairdresser, our accountant, and anyone else who knows me.

> Please feel free to copy any of the papers below. I would also be

> happy to send out request for you to any address you send me.

> Send them to leedeubert@... I also have labels for return

> envelopes that I can mail to anyone who would send out letters.

> The last attachment is an updated two pages of all our fundraising

> opportunities.

> My mom just had some surgery so I ordered her some goodies from the

> iGive site that will donate 4.6% of my purchase to PSC Partners.

> Buy for Charity is our other shopping site. So if you haven't

> checked in awhile, please take a look at the paper labeled Feb. 23

> update.

>

> Together in the fight , whatever it takes.

> Thanks to all of you,

>

> Lee

> PS the general letter I wrote in Neo Office and I have no idea why

> it has a zipper. Let me know if anyone can open it !

> If you haven't already registered for a hotel room for the

> conference, please do it soon so that you get our great rate !

>

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