Re: End of second week of chemo - Marti

[Guest guest]

Oh Marti - I was hoping things as far as the chemo were going better this wk.

Are you on an aggressive amount? I hope u will be able to get to your class, it

will sure hopefully re-direct from that and all the other homebound illnesses,

we get reminded of each day. I hope you also are able to bring in the income u

need, before going broke, that is not something you need to worry about now, but

know no one else does so can't be helped. You need all energy you can muster up

with good thoughts to fight this cancer. How can a Dr. be so smart and

concerned in one area, and shrug of the other? I to would of wanted to haul off

and smack him. I guess maybe in your case he is thinking you have all these

other bigger fights to fight, and thinks the fibro symtoms are coming from that

so taboo's this part of you. I think of you daily. I had a housecleaning day, I

decided like it or not, my husband has done enough, I need to give him a break.

I was the little red caboose

doing what I did, and not the usual, I think I can I think I can, I kept

saying. Completed all but 1 load of laundry I keep thinking I should go do, but

it is cold, snowing and I am sitting in bed, with the fire going and just can't

move. I looked at myself in the mirror yesterday, really have been avoiding

this, as I know how I feel and have not done a thing except get in and out of

showers, robe back on and good to go. Well that was a scary person looking back

at me! LOL I said a prayer thanking God I have not had to face anyone except my

loving husband who says I still look good to him, just a little aged probably

from the pain I have been in since Nov. Well enough of me. You take care,

get better, at least with all the other stuff, and lighter days with the Fibro.

I will pray next wk finds u able to go to class, and the chemo goes lightley on

you. You are very strong, and I believe you will beat this. Take Care

Sharon

Marti Boguski wrote:

Hi all,

I want to thank you for your thoughts and prayers while I'm going through chemo.

I finished my second week yesterday and start the third week next Wednesday -

Friday. I guess they are going to keep it Wed-Fri of every week, unless

something happens where I can't tolerate it.

I've been really sick for those three days and a little this morning too, but

it's better this afternoon. I'm really weak in addition. I had signed up for

another class in staying current with the laws and lingo, etc. in Aspergers

Syndrome and was offered a job that could be part time and on my own schedule.

From a place where the director actually knows I have fibro and believes in it.

For those of you who don't know me, I'm fast going broke and will be soon and

don't know what will happen. So if I could bring in some money it would be a

lifesaver. Now I'm not sure, but hope to have the energy to take the class on

Tuesday mornings. Pray for me please, if you are one who does.

You have all been in my thoughts too. I know you are all struggling with your

own problems. I've tried to get to the computer and write to some of you, but

haven't been able to do the job I would like to do. I will keep trying to keep

up as well as I can. It is so nice that I have this family cheering me on - well

I am cheering you own too.

One problem I've been experiencing that wasn't expected is that my Sarcoidosis

has started flaring up again. It has been pretty much under control with taking

Prednisone, but my eye doctor has had me weaning myself off of it. I got down to

10mg a day and started flaring. All my symptoms started coming back. After chemo

Thursday, I went to my Sarcoid doctor (pulmonologist).He had me take a PFT and I

didn't do so well and also need more oxygen in my blood. The nodules have come

back on my lymph nodes and my joints and throat - I'm back to the raspy voice. I

have started the fever at night and the sweats, even though it is 18 outside.

I'm really disappointed about this, because before the chemo and weaning off

Pred, that part of my life was getting under control, except for the side

effects of Pred.

My sarcoid doctors are very good at what they do, but it really gets to me that

they don't " believe " in Fibromyalgia. How can you just not believe in it? It

seems to me like saying you don't believe in politics. They think the symptoms

could all be sarcoid, except for the brain fog, which I don't think they believe

happens for either reason. I tried Thursday to explain a little to him and (he's

an older man - 70's?) he patted me on my knee and looked at me kindly and said

" maybe you have some anxiety. " I wanted to punch him!

Oh well, this is my update. Thank you to all of you who are keeping track of me.

I really appreciate it so much. It's so nice to have a family who believes,

because you all have it, and rallies around those of us who have difficulties in

other areas too. You are so great!

Thanks,

Marti

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