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I just was told I have PSC and I am scheduled to have 4 implants done

in my mouth on March 14th. Can this PSC pose a problem for me with this

dental work. & #65007; & #65007;

I am to have all my teeth crowned and now I am wondering if I should

not have all this work done. I have 2 bridges removed and they each

cover 3 teeth so with these bridges I will have to have 6 teeth crowned

and I have 2 temp crowns in my mouth right now that need new crowns...

my frount teeth are in bad shape as I did not have teeth in the back of

my mouth for many years and ate in the front. They want to cover them

with vaneers and crowns. Very expensive work and if it is going to go

bad because of meds I will be put on or just from the PSC I would like

to know...any ideas out there...

thank you for your help

CJ

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CJ

I wish I had better advice about dental work before I had root canals and crowns done! They were all removed before my transplant. I had 3 infections in 4 years before my tx, 2 started 2 days after ERCPs and the 3rd was a kidney infection. All my crowns were pulled out shortly after the last infection. I got my new liver 5 mo. later, but I didn't know why those teeth were pulled and the dental students who did the work didn't know why either. Several years later some one posted info saying the environment around those teeth can harbor bacteria. I assume that is the reason they were extracted. Before getting such extensive work done I suggest you have a serious talk with the transplant team. It sounds like you have been diagnosed recently and so you might not have made contact with a transplant center, so talk to your doctor and get some real answers not just an opinion.

Most dentists have little or no experience with potential transplant patients so they don't know much. I think it is not the crowns that pose the problem, it is the root canal work because it removes the nerves and blood supply which then leaves spaces that have no way of fighting an infection. I think the information you need is relatively new and someone will need to do some research for you.

Please let us know what happens.

Take Care

MizKit

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I read somewhere in my research of PSC that they were looking at a

link between PSC and metal fillings. It said something about being

careful when having the metal filling removed because of the release

of mercury if I remember correctly. I wish could remember where I

read this. Maybe someone else will have some input on this.

>

>

> CJ

>

>

>

> I wish I had better advice about dental work before I had root

canals and crowns done!? They were all removed before my transplant.?

I had 3 infections in 4 years before my tx, 2 started 2 days after

ERCPs and the 3rd was a kidney infection.? All my crowns were pulled

out shortly after the last infection.? I got my new liver 5 mo.

later, but I didn't know why those teeth were pulled and the dental

students who did the work didn't know why either.? Several years

later some one posted info saying the environment around those teeth

can harbor bacteria.? I assume that is the reason they were

extracted.? Before getting such extensive work done I suggest you

have a serious talk with the transplant team.? It sounds like you

have been diagnosed recently and so you might not have made contact

with a transplant center, so talk to your doctor and get some real

answers not just an opinion.

>

> Most dentists have little or no experience with potential

transplant patients so they don't know much.? I think it is not the

crowns that pose the problem, it is the root canal work because it

removes the nerves and blood supply which then leaves spaces that

have no way of fighting an infection.? I think the information you

need is relatively new and someone will need to do some research for

you.?

>

> Please let us know what happens.

>

> Take Care

> MizKit

>

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Dear CJ and Mizkit,

Ricky asked me to write, since I am a dentist who does only root canal therapy(an Endodontist). I would definitely talk to the transplant team to see what dental work is necessary and acceptable prior to the transplant. Normally if the patient has had a transplant, I would call the transplant surgeon to see if a root canal is feasible and if an antibiotic is recommended. This advice would also hold for an implant. But to be on the safe side, I would have your dentist contact the transplant surgeon and see if they have a regimen to follow prior to any dental treatment.

I hope this helps.

Don Safer

> To: > Date: Fri, 29 Feb 2008 03:51:26 +0000> Subject: PSC and dental work> > I just was told I have PSC and I am scheduled to have 4 implants done > in my mouth on March 14th. Can this PSC pose a problem for me with this > dental work. & #65007; & #65007;> I am to have all my teeth crowned and now I am wondering if I should > not have all this work done. I have 2 bridges removed and they each > cover 3 teeth so with these bridges I will have to have 6 teeth crowned > and I have 2 temp crowns in my mouth right now that need new crowns... > my frount teeth are in bad shape as I did not have teeth in the back of > my mouth for many years and ate in the front. They want to cover them > with vaneers and crowns. Very expensive work and if it is going to go > bad because of meds I will be put on or just from the PSC I would like > to know...any ideas out there...> > thank you for your help> > CJ> > > > >

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Don -

I know it is difficult to give opinions when you are not directly examining a patient... but... the recent discussion on root canals, crowns, etc. is raising immediate questions for . He had root canal #1 done today, with at least one, if not more planned in the near future. At this time, for a young person, to not do the appropriate dental work would feel totally negligent - except, if as in Miz Kit's experience, all dental work was removed in future prior to a transplant.

My question is... have you read or experienced that it is common to remove teeth before transplant, which have had root canals & /or crowns placed in the past?

Thanks!

Joanne H

(, Ca., mom of , 17, UC/PSC 2-06)

PSC and dental work> > I just was told I have PSC and I am scheduled to have 4 implants done > in my mouth on March 14th. Can this PSC pose a problem for me with this > dental work. & #65007; & #65007;> I am to have all my teeth crowned and now I am wondering if I should > not have all this work done. I have 2 bridges removed and they each > cover 3 teeth so with these bridges I will have to have 6 teeth crowned > and I have 2 temp crowns in my mouth right now that need new crowns... > my frount teeth are in bad shape as I did not have teeth in the back of > my mouth for many years and ate in the front. They want to cover them > with vaneers and crowns. Very expensive work and if it is going to go > bad because of meds I will be put on or just from the PSC I would like > to know...any ideas out there...> > thank you for your help> > CJ> > > > >

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HI guys,

I sit here 8pm having just got home from the hospital having had

another tooth removed today. Luckily you can’t hear me talk, but I’ll

add my two cents worth anyway.

I have Hepato pulmonary syndrome, and PSC, and was listed for transplant

last august. Prior to listing I needed two root canals/crowns, and chose

instead to have the teeth removed. This enabled me to only wait the healing

time of 6 weeks before listing, not the months it took to finish the work. Two

weeks ago I revisited my dentist, and yet another tooth is wrecked, and thus

today’s extraction. This is also an expediency decision, rather than

dental one. With HPS, I was told I would need a transplant within a year, and

with the waiting list at 12 -18 months, I didn’t want to be “off

the list” for any longer than necessary.

They are back teeth, and I haven’t missed them. We are now

investigating whether the Questran I take for the itching has caused the tooth

problems. I take it at lunchtime (to avoid the urso), and dissolved in OJ to

make it drinkable, so we think having the OJ on my teeth all afternoon was

rotting my teeth. Now we know, I brush after, and hopefully this will solve the

dissolving teeth problems.

I don’t think the psc caused the teeth problems, nor am I

against root canals and crowns, but this just suited my circumstances better!

Penny T (Australia)

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Ken had several root canals done before transplant with no problems. He took penicillin one hour before the

work was started. Post transplant the

doctor recommends the same protocol (penicillin) be followed. A lot of transplant centers actually require

all dental work be finished before listing for transplant and follow up “wellness”

dental visits be done on a regular schedule. Don’t be surprised if you

have a lot of cavities, some believe because the body isn’t processing

vitamins like it used to, your teeth pay a price. This certainly was true in Ken’s case.

Barb in Texas - Together in the Fight, Whatever it Takes!

Son Ken (33) UC 91 - PSC 99 - Tx 6/21 & 6/30/07 @ Baylor in

Dallas

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Barb -

Thanks so much for your message. As we just begin the root canal work on , you have helped me feel better in multiple ways. First, that he did not have this happen, just because I was not "on his case" constantly for better dental hygiene. Second, that investing in his mouth would be a waste in the future.

Thanks again!

Joanne H

(, Ca)

-----Original Message-----From: [mailto: ]On Behalf Of Barb HenshawSent: Friday, February 29, 2008 9:22 AMTo: Subject: RE: PSC and dental work

Ken had several root canals done before transplant with no problems. He took penicillin one hour before the work was started. Post transplant the doctor recommends the same protocol (penicillin) be followed. A lot of transplant centers actually require all dental work be finished before listing for transplant and follow up “wellness” dental visits be done on a regular schedule. Don’t be surprised if you have a lot of cavities, some believe because the body isn’t processing vitamins like it used to, your teeth pay a price. This certainly was true in Ken’s case.

Barb in Texas - Together in the Fight, Whatever it Takes!

Son Ken (33) UC 91 - PSC 99 - Tx 6/21 & 6/30/07 @ Baylor in Dallas

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Hi Joanne,

There are different schools of thought. Some transplant surgeons would feel better if some of these teeth were extracted pre-transplant to avoid bacterial contamination. Others feel that if the teeth are treated properly ahead of time, this will solve the bacterial problem. So, if I were you, I would contact your liver center and see how they feel about dental work pre-transplant.

Don

To: From: copper@...Date: Thu, 28 Feb 2008 21:33:03 -0800Subject: RE: PSC and dental work

Don -

I know it is difficult to give opinions when you are not directly examining a patient... but... the recent discussion on root canals, crowns, etc. is raising immediate questions for . Thanks!

Joanne H

(, Ca., mom of , 17, UC/PSC 2-06)

PSC and dental work> > I just was told I have PSC and I am scheduled to have 4 implants done > in my mouth on March 14th. Can this PSC pose a problem for me with this > dental work. & #65007; & #65007;> I am to have all my teeth crowned and now I am wondering if I should > not have all this work done. I have 2 bridges removed and they each > cover 3 teeth so with these bridges I will have to have 6 teeth crowned > and I have 2 temp crowns in my mouth right now that need new crowns... > my frount teeth are in bad shape as I did not have teeth in the back of > my mouth for many years and ate in the front. They want to cover them > with vaneers and crowns. Very expensive work and if it is going to go > bad because of meds I will be put on or just from the PSC I would like > to know...any ideas out there...> > thank you for your help> > CJ> > > > >

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Hi Penny

I hope you have recovered from you tooth extraction.

I do hope your health is good and it won't be too long before

you 'get the call'.

Best wishes

>

> HI guys,

>

> I sit here 8pm having just got home from the hospital having had

another

> tooth removed today. Luckily you can't hear me talk, but I'll add

my two

> cents worth anyway.

>

> I have Hepato pulmonary syndrome, and PSC, and was listed for

transplant

> last august. Prior to listing I needed two root canals/crowns, and

chose

> instead to have the teeth removed. This enabled me to only wait the

healing

> time of 6 weeks before listing, not the months it took to finish

the work.

> Two weeks ago I revisited my dentist, and yet another tooth is

wrecked, and

> thus today's extraction. This is also an expediency decision,

rather than

> dental one. With HPS, I was told I would need a transplant within a

year,

> and with the waiting list at 12 -18 months, I didn't want to

be " off the

> list " for any longer than necessary.

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Guest guest

Wow, this time checking my mail I am finding my life

flashing in front of me. First, itching,

*unrelenting*, dry mouth and now bad teeth.

My teeth seem to rot from the inside out, without any

pain or warning and then the dentist says, " You aren't

taking care of your teeth " . Ummm, yes I am, I brush

7-10 times a day, floss 3 times a day and rinse as

often as I need to.

I have now found that it will be quicker to have my

uppers all pulled and get dentures than to go through

the time, pain and expense of getting them fixed.

My teeth are so sensitive, a hygienist can't even

clean my teeth without novicane and then I can still

feel the pain.

Cindy Baudoux-Northrup

________________________________________________________________________________\

____

Looking for last minute shopping deals?

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Guest guest

>

> My teeth seem to rot from the inside out, without any

> pain or warning and then the dentist says, " You aren't

> taking care of your teeth " . Ummm, yes I am, I brush

> 7-10 times a day, floss 3 times a day and rinse as

> often as I need to.

-----------

Strangely enough, that's very much what I'm experiencing also. In the past 8-9

months,

I've " knocked out " the fillings from 4 teeth (one of them for the 3rd time in 6

months). My

dentist is puzzled at how rapidly the decay has moved and it has puzzled me

also. It's

been years since I've had any real dental issues and all of a sudden I'm seeing

my dentist

literally every few weeks. All the decay seems to start on the inside and work

its way out,

but under the gum line. This means lots of bleeding, and with my platelets so

low, I bleed

like a stuck pig!!! Fortunately, our dentist is also a good friend and

understands about my

PSC.

I thought I was having to give up tootsie rolls and granola just on a temporary

basis, but

after reading everyone's posts, it sounds as if I had better give them up for

good.

Take care,

Carolyn B. in SC

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