On the transplant list have PSC end stage falling asleep

[Guest guest]

I keep falling assleep now just randomly, today I was so tired I just fell out

at 11:30 I was

working then I went in for lunch laid down then its 2:30. I don't sleep well at

night, but each

day seems to get harder sometimes. I take laculose along with alot of pills, I

just want to

know does anyone experience this problem with PSC.

Thanks

Nord

[Guest guest]

prazle34 wrote:

> I keep falling assleep now just randomly, today I was so tired I just fell out

at 11:30 I was

> working then I went in for lunch laid down then its 2:30.

Falling asleep at work is one of the reasons I ended up taking

disability. I'd be sitting at my desk working and drop off to sleep.

At first it happened mainly in the afternoon, but then I started falling

asleep by 10:00 am and I realized that there was something really

wrong. The only way I could stay awake was to get up about every

fifteen minutes and take a walk. When I took disability it really

helped, because I could take a nap if I needed one, and then I could

function OK.

I think it was associated with the time when my liver had accumulated a

significant enough amount of damage that it was starting to seriously

affect it's performance. It was also about that time that I had a

variceal bleed, and ended up listed for transplant, although it was

another 6 years before I got the transplant.

athan

> I don't sleep well at night, but each

> day seems to get harder sometimes. I take laculose along with alot of pills,

I just want to

> know does anyone experience this problem with PSC.

>

> Thanks

>

> Nord

>

>

>

>

>

[Guest guest]

-----Original

Message-----

Falling asleep at work

is one of the reasons I ended up taking disability. I'd

be sitting at my desk working and drop off to sleep.

When someone doesn’t

feel well it seems almost everything causes stress of one kind or another. Getting up and to work on time, working

overtime if needed, getting projects finished on time, finding something to wear,

etc. etc. One of the advantages of going

on disability (IMHO) is; the day to day stress of working completely disappears.

I “think” you’ll

find you actually feel better when you can stay at home, nap when needed and eat on your own time frame. Don’t be surprised if you see a

slight improvement on your labs too.

Barb in Texas - Together in the Fight, Whatever it Takes!

Son Ken (33) UC 91 - PSC 99 - Tx 6/21 & 6/30/07 @ Baylor in Dallas