Guest guest Posted March 2, 2008 Report Share Posted March 2, 2008 Mark, I find I am thirsty more often too. Just make sure that you have not developed diabetes too. Are you urinating more or getting up at night to go. The duration from diagnosis to transplant seems to be to different for everyone I don't think there is anyone who know what a persons progression will be. PSC 5/07 Listed > > Is anyone having problems with dry mouth and PSC? I can drink and > drink and never feel like I drank anything at times. Also does anyone > know the average duration of the disease before requiring a > transplant. My MAYO Clinic Hep and gastro docs all seem to believe I > am somewhere in Stage II and I am now in my 5th year since diagnosis, > but I was diagnosed late with a lot of complications. > > Mark > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2008 Report Share Posted March 2, 2008 The " rule of thumb " is an average of 10 years from diagnosis to transplant. On the other hand, we also have members who were diagnosed 30 years ago and are still doing fairly well. Excessive thirst is not something I've experienced, but a co-worker has. He was diagnosed with diabetes a couple of months ago. Clearly something to ask your primary care physician. As I've gotten older (a good thing, really!), I've noticed that I cannot tolerate as much salt as I used to. A small bag of popcorn will have me up all night drinking water. Arne 56 - UC 1977, PSC 2000 Alive and well in Minnesota ________________________________ From: [mailto: ] On Behalf Of Mark Is anyone having problems with dry mouth and PSC? I can drink and drink and never feel like I drank anything at times. Also does anyone know the average duration of the disease before requiring a transplant... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2008 Report Share Posted March 2, 2008 I have extreme dry mouth, especially at night. when I wake up my tongue is stuck to my mouth and feels like sandpaper. My dentist told me to rinse with ACT flouride before I go to bed. There are also some sprays you can use. I do not know if it is related to PSC. My sister also has it and she doesn't have PSC but does have some type of autoimmune symptoms like mine. Patti UC/Crohns/PSC - 1995, tx listed 3/06Mark wrote: Is anyone having problems with dry mouth and PSC? I can drink and drink and never feel like I drank anything at times. Also does anyone know the average duration of the disease before requiring a transplant. My MAYO Clinic Hep and gastro docs all seem to believe I am somewhere in Stage II and I am now in my 5th year since diagnosis, but I was diagnosed late with a lot of complications. Mark Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 Dry mouth or thirst? If it is dry mouth, there is Oasis that will help for 10 minutes at a time. I talk on the phone 8 hours a day, so need a very moist mouth and drink lots of water to keep it moist. Cindy Baudoux-Northrup ________________________________________________________________________________\ ____ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
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