Guest guest Posted February 2, 2012 Report Share Posted February 2, 2012 Debbie We went to Dr a few years ago. Are you going to her just to explore PANDAS? Have you already had pandas testng for your child (strep titers)? Clara To: sList Sent: Thursday, February 2, 2012 9:21:36 AMSubject: Re: Re: NEUROPROTEK and Lecture Feb 18th 2012 Can u please give me dr udells #? Where is He located? Thankyou! I have an appointment With dr in st sburg fl in march (pandas specialist) But I would be very curious to find out what Dr udell says first as dr is very far for My son to have to travel. DebbieSent from my iPhone Hi I hope that you have the means to visit Dr. Udell or someone reputable like him to discuss Neuroprotek. As far as it not being approved by the FDA I would not give it a second thought. It is all bureucracy and politics. As a 14 yr old, I was bleeding myself into a grave and no FDA approved medication cured me. Since I lived in Puerto Rico at the time, my doctor recommended to my parents that we try a medication that had not been approved by the FDA but been used effectively and safely in Europe for years. My father who was a physician agreed because he had a perfect understanding of how these things work. I would not be alive if he had not known any better. The drug was approved in the USA 5 years later, but guess what, I would have been DEAD by then. My son's doctor has also given him a medication that has not been approved for treating a sleeping disorder but for high blood pressure. Guess what, it has worked wonderfully and not given him any bad side effects. It is a very mild medication. The FDA does approve however the use of Respidol for sleeping disorders and aggression in children. Don't let the fact that something is approved by the FDA give you a false sense of security. I currently have 5 clients under the age of 8 who have developed DIABETES from taking this FDA approved drug. And yes, for some parents it is the only option. So I don't critize them by any means. However I wish people would not look at options that have not been approved by the FDA yet as "snake oil" when so many are helpful and much safer than the FDA counterparts. If I recommend it is only because I personally have experienced it to work and because as I said in my post, my son's doctor gave it to him. I didn't just go and buy it at the corner bodega, lol.Best wishes to all parents out there trying to do the best for their kids, Ida> > >> > > Sons and daughters of Autism and Algonot- The makers of Neuroprotek> > > is proud to announce the first lectures in a Series of Lectures for the South fl Community Affected by Autism> > > > > > > > > Dr. Theoharides Upcoming Lecture> > > > > > Saturday Feb. 18, 2012 for the > > > Sons and Daughters of Autism> > > Palm Beach Gardens Hilton Garden Inn> > > 10:30 - 2:00 food and beverage> > > provided at NO CHARGE> > > > > > > > > > > > please visit www.algonot.com and click on the flyer to RSVP. please do so asap sitting is limited.> > >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2012 Report Share Posted February 2, 2012 His pediatrician diagnosed him as every time He gets a strep infection his OCD worsens severelyAnd he gets very angry and has facial tics. But... She onlyTreats him with a 10 day course of antibioticsAnd then 1 month later he gets strep again.Sent from my iPhone Debbie We went to Dr a few years ago. Are you going to her just to explore PANDAS? Have you already had pandas testng for your child (strep titers)? Clara To: sList Sent: Thursday, February 2, 2012 9:21:36 AMSubject: Re: Re: NEUROPROTEK and Lecture Feb 18th 2012 Can u please give me dr udells #? Where is He located? Thankyou! I have an appointment With dr in st sburg fl in march (pandas specialist) But I would be very curious to find out what Dr udell says first as dr is very far for My son to have to travel. DebbieSent from my iPhone Hi I hope that you have the means to visit Dr. Udell or someone reputable like him to discuss Neuroprotek. As far as it not being approved by the FDA I would not give it a second thought. It is all bureucracy and politics. As a 14 yr old, I was bleeding myself into a grave and no FDA approved medication cured me. Since I lived in Puerto Rico at the time, my doctor recommended to my parents that we try a medication that had not been approved by the FDA but been used effectively and safely in Europe for years. My father who was a physician agreed because he had a perfect understanding of how these things work. I would not be alive if he had not known any better. The drug was approved in the USA 5 years later, but guess what, I would have been DEAD by then. My son's doctor has also given him a medication that has not been approved for treating a sleeping disorder but for high blood pressure. Guess what, it has worked wonderfully and not given him any bad side effects. It is a very mild medication. The FDA does approve however the use of Respidol for sleeping disorders and aggression in children. Don't let the fact that something is approved by the FDA give you a false sense of security. I currently have 5 clients under the age of 8 who have developed DIABETES from taking this FDA approved drug. And yes, for some parents it is the only option. So I don't critize them by any means. However I wish people would not look at options that have not been approved by the FDA yet as "snake oil" when so many are helpful and much safer than the FDA counterparts. If I recommend it is only because I personally have experienced it to work and because as I said in my post, my son's doctor gave it to him. I didn't just go and buy it at the corner bodega, lol.Best wishes to all parents out there trying to do the best for their kids, Ida> > >> > > Sons and daughters of Autism and Algonot- The makers of Neuroprotek> > > is proud to announce the first lectures in a Series of Lectures for the South fl Community Affected by Autism> > > > > > > > > Dr. Theoharides Upcoming Lecture> > > > > > Saturday Feb. 18, 2012 for the > > > Sons and Daughters of Autism> > > Palm Beach Gardens Hilton Garden Inn> > > 10:30 - 2:00 food and beverage> > > provided at NO CHARGE> > > > > > > > > > > > please visit www.algonot.com and click on the flyer to RSVP. please do so asap sitting is limited.> > >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2012 Report Share Posted February 2, 2012 Oh wow. So is Dr going to treat your son from Tampa? She is definitively the pandas expert in FL, we liked her. Good luck. To: sList Sent: Thursday, February 2, 2012 2:27:21 PMSubject: Re: was Neuroprotek now Dr. His pediatrician diagnosed him as every time He gets a strep infection his OCD worsens severely And he gets very angry and has facial tics. But... She only Treats him with a 10 day course of antibiotics And then 1 month later he gets strep again.Sent from my iPhone Debbie We went to Dr a few years ago. Are you going to her just to explore PANDAS? Have you already had pandas testng for your child (strep titers)? Clara To: sList Sent: Thursday, February 2, 2012 9:21:36 AMSubject: Re: Re: NEUROPROTEK and Lecture Feb 18th 2012 Can u please give me dr udells #? Where is He located? Thankyou! I have an appointment With dr in st sburg fl in march (pandas specialist) But I would be very curious to find out what Dr udell says first as dr is very far for My son to have to travel. DebbieSent from my iPhone Hi I hope that you have the means to visit Dr. Udell or someone reputable like him to discuss Neuroprotek. As far as it not being approved by the FDA I would not give it a second thought. It is all bureucracy and politics. As a 14 yr old, I was bleeding myself into a grave and no FDA approved medication cured me. Since I lived in Puerto Rico at the time, my doctor recommended to my parents that we try a medication that had not been approved by the FDA but been used effectively and safely in Europe for years. My father who was a physician agreed because he had a perfect understanding of how these things work. I would not be alive if he had not known any better. The drug was approved in the USA 5 years later, but guess what, I would have been DEAD by then. My son's doctor has also given him a medication that has not been approved for treating a sleeping disorder but for high blood pressure. Guess what, it has worked wonderfully and not given him any bad side effects. It is a very mild medication. The FDA does approve however the use of Respidol for sleeping disorders and aggression in children. Don't let the fact that something is approved by the FDA give you a false sense of security. I currently have 5 clients under the age of 8 who have developed DIABETES from taking this FDA approved drug. And yes, for some parents it is the only option. So I don't critize them by any means. However I wish people would not look at options that have not been approved by the FDA yet as "snake oil" when so many are helpful and much safer than the FDA counterparts. If I recommend it is only because I personally have experienced it to work and because as I said in my post, my son's doctor gave it to him. I didn't just go and buy it at the corner bodega, lol.Best wishes to all parents out there trying to do the best for their kids, Ida> > >> > > Sons and daughters of Autism and Algonot- The makers of Neuroprotek> > > is proud to announce the first lectures in a Series of Lectures for the South fl Community Affected by Autism> > > > > > > > > Dr. Theoharides Upcoming Lecture> > > > > > Saturday Feb. 18, 2012 for the > > > Sons and Daughters of Autism> > > Palm Beach Gardens Hilton Garden Inn> > > 10:30 - 2:00 food and beverage> > > provided at NO CHARGE> > > > > > > > > > > > please visit www.algonot.com and click on the flyer to RSVP. please do so asap sitting is limited.> > >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2012 Report Share Posted February 2, 2012 ThAnkyou, what can I expect to happen at theVisit? Sent from my iPhone Oh wow. So is Dr going to treat your son from Tampa? She is definitively the pandas expert in FL, we liked her. Good luck. To: sList Sent: Thursday, February 2, 2012 2:27:21 PMSubject: Re: was Neuroprotek now Dr. His pediatrician diagnosed him as every time He gets a strep infection his OCD worsens severely And he gets very angry and has facial tics. But... She only Treats him with a 10 day course of antibiotics And then 1 month later he gets strep again.Sent from my iPhone Debbie We went to Dr a few years ago. Are you going to her just to explore PANDAS? Have you already had pandas testng for your child (strep titers)? Clara To: sList Sent: Thursday, February 2, 2012 9:21:36 AMSubject: Re: Re: NEUROPROTEK and Lecture Feb 18th 2012 Can u please give me dr udells #? Where is He located? Thankyou! I have an appointment With dr in st sburg fl in march (pandas specialist) But I would be very curious to find out what Dr udell says first as dr is very far for My son to have to travel. DebbieSent from my iPhone Hi I hope that you have the means to visit Dr. Udell or someone reputable like him to discuss Neuroprotek. As far as it not being approved by the FDA I would not give it a second thought. It is all bureucracy and politics. As a 14 yr old, I was bleeding myself into a grave and no FDA approved medication cured me. Since I lived in Puerto Rico at the time, my doctor recommended to my parents that we try a medication that had not been approved by the FDA but been used effectively and safely in Europe for years. My father who was a physician agreed because he had a perfect understanding of how these things work. I would not be alive if he had not known any better. The drug was approved in the USA 5 years later, but guess what, I would have been DEAD by then. My son's doctor has also given him a medication that has not been approved for treating a sleeping disorder but for high blood pressure. Guess what, it has worked wonderfully and not given him any bad side effects. It is a very mild medication. The FDA does approve however the use of Respidol for sleeping disorders and aggression in children. Don't let the fact that something is approved by the FDA give you a false sense of security. I currently have 5 clients under the age of 8 who have developed DIABETES from taking this FDA approved drug. And yes, for some parents it is the only option. So I don't critize them by any means. However I wish people would not look at options that have not been approved by the FDA yet as "snake oil" when so many are helpful and much safer than the FDA counterparts. If I recommend it is only because I personally have experienced it to work and because as I said in my post, my son's doctor gave it to him. I didn't just go and buy it at the corner bodega, lol.Best wishes to all parents out there trying to do the best for their kids, Ida> > >> > > Sons and daughters of Autism and Algonot- The makers of Neuroprotek> > > is proud to announce the first lectures in a Series of Lectures for the South fl Community Affected by Autism> > > > > > > > > Dr. Theoharides Upcoming Lecture> > > > > > Saturday Feb. 18, 2012 for the > > > Sons and Daughters of Autism> > > Palm Beach Gardens Hilton Garden Inn> > > 10:30 - 2:00 food and beverage> > > provided at NO CHARGE> > > > > > > > > > > > please visit www.algonot.com and click on the flyer to RSVP. please do so asap sitting is limited.> > >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2012 Report Share Posted February 2, 2012 Well I dont know because we went to her for a general eval and once we were there I aksed about pandas having read about her and it, and she did a throat swab. so our appointment was not specifically for pandas. when we saw her she was as U of F and had interns doing most of the eval then she came in at the end. To: sList Sent: Thursday, February 2, 2012 6:11:32 PMSubject: Re: was Neuroprotek now Dr. ThAnkyou, what can I expect to happen at the Visit? Sent from my iPhone Oh wow. So is Dr going to treat your son from Tampa? She is definitively the pandas expert in FL, we liked her. Good luck. To: sList Sent: Thursday, February 2, 2012 2:27:21 PMSubject: Re: was Neuroprotek now Dr. His pediatrician diagnosed him as every time He gets a strep infection his OCD worsens severely And he gets very angry and has facial tics. But... She only Treats him with a 10 day course of antibiotics And then 1 month later he gets strep again.Sent from my iPhone Debbie We went to Dr a few years ago. Are you going to her just to explore PANDAS? Have you already had pandas testng for your child (strep titers)? Clara To: sList Sent: Thursday, February 2, 2012 9:21:36 AMSubject: Re: Re: NEUROPROTEK and Lecture Feb 18th 2012 Can u please give me dr udells #? Where is He located? Thankyou! I have an appointment With dr in st sburg fl in march (pandas specialist) But I would be very curious to find out what Dr udell says first as dr is very far for My son to have to travel. DebbieSent from my iPhone Hi I hope that you have the means to visit Dr. Udell or someone reputable like him to discuss Neuroprotek. As far as it not being approved by the FDA I would not give it a second thought. It is all bureucracy and politics. As a 14 yr old, I was bleeding myself into a grave and no FDA approved medication cured me. Since I lived in Puerto Rico at the time, my doctor recommended to my parents that we try a medication that had not been approved by the FDA but been used effectively and safely in Europe for years. My father who was a physician agreed because he had a perfect understanding of how these things work. I would not be alive if he had not known any better. The drug was approved in the USA 5 years later, but guess what, I would have been DEAD by then. My son's doctor has also given him a medication that has not been approved for treating a sleeping disorder but for high blood pressure. Guess what, it has worked wonderfully and not given him any bad side effects. It is a very mild medication. The FDA does approve however the use of Respidol for sleeping disorders and aggression in children. Don't let the fact that something is approved by the FDA give you a false sense of security. I currently have 5 clients under the age of 8 who have developed DIABETES from taking this FDA approved drug. And yes, for some parents it is the only option. So I don't critize them by any means. However I wish people would not look at options that have not been approved by the FDA yet as "snake oil" when so many are helpful and much safer than the FDA counterparts. If I recommend it is only because I personally have experienced it to work and because as I said in my post, my son's doctor gave it to him. I didn't just go and buy it at the corner bodega, lol.Best wishes to all parents out there trying to do the best for their kids, Ida> > >> > > Sons and daughters of Autism and Algonot- The makers of Neuroprotek> > > is proud to announce the first lectures in a Series of Lectures for the South fl Community Affected by Autism> > > > > > > > > Dr. Theoharides Upcoming Lecture> > > > > > Saturday Feb. 18, 2012 for the > > > Sons and Daughters of Autism> > > Palm Beach Gardens Hilton Garden Inn> > > 10:30 - 2:00 food and beverage> > > provided at NO CHARGE> > > > > > > > > > > > please visit www.algonot.com and click on the flyer to RSVP. please do so asap sitting is limited.> > >> > > >> Quote Link to comment Share on other sites More sharing options...
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