Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 Hi ! Welcome! I tend to mostly lurk here but thought I'd say hello. I'm a 24-year-old college student from Canada and I've been living with type 1 diabetes for just over 14 years (I was diagnosed in October 1991, when I was 9). It's tough at first, especially for the really young kids, but it does get easier as time goes on. I think the first year is probably the hardest! If you have any questions feel free to ask, I'm sure I'm not the only one here willing to answer. Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 Hi ! Welcome! I tend to mostly lurk here but thought I'd say hello. I'm a 24-year-old college student from Canada and I've been living with type 1 diabetes for just over 14 years (I was diagnosed in October 1991, when I was 9). It's tough at first, especially for the really young kids, but it does get easier as time goes on. I think the first year is probably the hardest! If you have any questions feel free to ask, I'm sure I'm not the only one here willing to answer. Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 Hey all. My name is Tabi. I am 33 years old, married with 3 kiddos. I have fibro for at least 13 years now. ICK. I am going to ask my doc for Lyrica tomorrow. I am already on Kadian (morphine sulfate). I work from home, which is ideal for me. I don't think I could handle driving to an office every day, dealing with people on a daily basis who have no idea what I am going through, etc. Well, am glad to be a part of this group. Have a great day! Tabi D <)))>< Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 Hi Tabi, I like your name!! I also am able to work at home--part time and at the office 2 days a week. What type of work do you do? I am a medical transcriptionist. I, like you, couldn't imagine going into the office every day. I work Mondays and Wednesdays at the office. I don't have too much of a problem on Wednesdays, because Thursday is my day off and I am looking forward to that----but Mondays is very hard for me to get motivated to get into the office. My boss is sympathetic to my situation and is happy for me to work at home, so I can keep working, but one of my coworkers doesn't understand and I think she is thinking that I get preferential treatement. Anyway, just wanted to say hi! Jana Tabi D wrote: Hey all. My name is Tabi. I am 33 years old, married with 3 kiddos. I have fibro for at least 13 years now. ICK. I am going to ask my doc for Lyrica tomorrow. I am already on Kadian (morphine sulfate). I work from home, which is ideal for me. I don't think I could handle driving to an office every day, dealing with people on a daily basis who have no idea what I am going through, etc. Well, am glad to be a part of this group. Have a great day! Tabi D <)))>< Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 Hi Tabi and welcome to the group. I also work from home, have a fear of driving. I did work for 40 yrs. I hope you find compassion and caring in this wonderful group to help you through the dark days. Annie --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2008 Report Share Posted August 22, 2008 Hi Sharon, I'm also from Oz...Lismore, Northern NSW to be exact! I've just seen your first post as I'm in 'Catch-up" mode. How awful for you to be hit like this....I can relate to the waiting game of getting in to see sepcialists. Have you been refferred to Chermisde, Dr Hopkins by any chance? Jan 2007, like you, I thought I had Asthma (Post Viral) but my GP quickly realised I didn't when he heard the crackles in my lungs. He was sure I was in early congestive heart failure. It took 3 months to see the Heart Specialist who worked out I probably had PF. In between times an ordinary X-ray indicated a shoadow on my lungs & my GP tested for Pulmonary embolism which came back negative. Then he was quite happy for me just to wait until I got into the Heart guy...it was going to be another 6 months until I could see the local Lismore Respiratory Physician.....that's what it's like in regional Australia. If you die in the meantime ...well ...less cost to the Health system. It was the Heart Specialist who rang the Lung man & told he was going to see me pronto...2 days later, in fact! You must be reeling, you're much younger than me & your kids are still youngsters too.....but hey hang in here with us... you'll find loads of support & you'll gather courage by the bucket loads....there IS lots of life to be had..... Crikey, howse this lot gonna cope with 2 of us! regards, in Oz IPF: Fibrotic NSIP/ UIP??? Reynauds' May 2007 >> Hi all,> I'm Sharon, 33yr old mother of 3 from Australia.  I'm currently 13mths away from graduating university as a registered nurse and three days ago I was told I have fibrosis & areas of collaspe. > My story starts May 07, with my first episode of crackles, shortness of breath. The hospital put it down to an acute asthma attack (first ever) and treated me with nebs & after a few hours I went home ok. As the months progressed I had the occasional repeat episode which only came on after a specific exercise. Fast forward to the end of 07 and I was now waking at night with these episodes and they were lasting up to 12hours. In December 07 I had a CTPA (ct scan with contrast dye to check for pulmonary embolisms) they concuded the ground glass appearance at the bases was due to broncho pneumonia & treated for such.> Since then I have had more and more episodes and gradual worsening. After a wisdom tooth extraction on friday I had another, what I called "Mild" episode but at least my local doctor was open so I went to him (most other attacks were at night or when he was shut) so he could see for himself what was happening. He sent me straight to the hospital, who after keeping me for several hours sent me home with instructions for my local doctor to refer me to a lung specialist & arrange a high resolution CT. After I left the local doctor my dad was next to see him about his own health issue, the doctor said to my dad that he thought it was just an anxiety attack from the tooth extraction.> My high res CT stated I have bilateral pulmonary effusions, areas of collaspe in the middle lobe & lingular, septal thickening in the middle lobe & ground glass or air trapping in the bases. To which my local doctor said "YOU HAVE FIBROSIS & AREAS OF COLLASPE" and then wrote me a referral to a lung specialist. We've had a few public holidays here so I'm waiting until Tuesday next week to chase up the appointment but I left my local doctor with no guidence, medication or instructions aside from "JUST WAIT" till I get the appointment. > I have never smoked but both my parents smoked heavily all my life, my mother has passed away so I moved in with dad 2yrs ago to help him and moved back into the smoke environment. I'm numb, trying not to freak out and if I didn't have false nails I would have bitten my nails down to the knuckle. > I know there are various types of fibrosis and considering I have had radiation treatment (radioactive iodine 15yrs ago) for thyroid disease that puts me at a high "risk" category for some types. But I'm still hoping that my local doctor has made an grasping at sraws diagnosis, and know that I will know more when I see the specialist. > Just wanted to blurt my "story" out and say hi.> take care> Sharon.> > > Win a MacBook Air or iPod touch with Yahoo!7. http://au.docs.yahoo.com/homepageset> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2008 Report Share Posted August 22, 2008 Maybe she's not as crazy an Aussie as you? lol Oh i've missed you. So glad to see your post. And i know its helpful to her to talk to someone else dealing with the same system of care. > > > > Hi all, > > I'm Sharon, 33yr old mother of 3 from Australia.  I'm > currently 13mths away from graduating university as a registered nurse > and three days ago I was told I have fibrosis & areas of collaspe. > > My story starts May 07, with my first episode of crackles, shortness > of breath. The hospital put it down to an acute asthma attack > (first ever) and treated me with nebs & after a few hours I went home > ok. As the months progressed I had the occasional repeat episode > which only came on after a specific exercise. Fast forward to the end of > 07 and I was now waking at night with these episodes and they were > lasting up to 12hours. In December 07 I had a CTPA (ct scan with > contrast dye to check for pulmonary embolisms) they concuded the ground > glass appearance at the bases was due to broncho pneumonia & treated for > such. > > Since then I have had more and more episodes and gradual > worsening. After a wisdom tooth extraction on friday I had another, > what I called " Mild " episode but at least my local doctor was open so I > went to him (most other attacks were at night or when he was shut) so he > could see for himself what was happening. He sent me straight to > the hospital, who after keeping me for several hours sent me home with > instructions for my local doctor to refer me to a lung specialist & > arrange a high resolution CT. After I left the local doctor my dad > was next to see him about his own health issue, the doctor said to my > dad that he thought it was just an anxiety attack from the tooth > extraction. > > My high res CT stated I have bilateral pulmonary effusions, areas of > collaspe in the middle lobe & lingular, septal thickening in the middle > lobe & ground glass or air trapping in the bases. To which my local > doctor said " YOU HAVE FIBROSIS & AREAS OF COLLASPE " and then wrote me a > referral to a lung specialist. We've had a few public holidays here so > I'm waiting until Tuesday next week to chase up the appointment but I > left my local doctor with no guidence, medication or instructions aside > from " JUST WAIT " till I get the appointment. > > I have never smoked but both my parents smoked heavily all my life, my > mother has passed away so I moved in with dad 2yrs ago to help him and > moved back into the smoke environment. I'm numb, trying not to > freak out and if I didn't have false nails I would have bitten my nails > down to the knuckle. > > I know there are various types of fibrosis and considering I have had > radiation treatment (radioactive iodine 15yrs ago) for thyroid disease > that puts me at a high " risk " category for some types. But I'm still > hoping that my local doctor has made an grasping at sraws diagnosis, and > know that I will know more when I see the specialist. > > Just wanted to blurt my " story " out and say hi. > > take care > > Sharon. > > > > > > Win a MacBook Air or iPod touch with Yahoo!7. > http://au.docs.yahoo.com/homepageset > > > Quote Link to comment Share on other sites More sharing options...
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