Re: interested in live donor transplant. looking for info

[Guest guest]

The timing of living donor transplants is very difficult with several

factors to weigh.

1. The likelyhood of dying from the liver disease. Variceal bleeding

and any bleeding from low clotting factors and low platelets.

Cholangitis can be deadly. Cholangiocarcinoma can develop while

waiting. The MELD score and the Mayo model can give a rough but

inprecise estimate.

2. The risks of death or complications from surgery and risks anti-

rejections medications (infection, diabetes, kidney disease) If

you've read this long you have seen what Ken and his family have been

through in this year. His is not the typical transplant course.

3. The risks to the donor. 1/200 death rate. Frequent minor

complications.

In my case, my brother's work scedule turned into the deciding factor

as he wanted to be recovered before the first of the year when he had

to manage a bunch of spring construction projects.

Von

[Guest guest]

They have to balance the risk of dying from the symptoms with the risk of dying from the tx. In our son's case he had unbearable pain for years but the surgery was done when he had bleeding varices 4 times in 4 weeks. Where do you live? I am a huge advocate for the program at Lahey in Boston. Martieversole3 wrote: my daughter who is 26 was diagnosed with psc in 1997,and with stage three cirrhoses in 2003. her platelett count is running between 50 and 31. bilirubin 2.0 creatinine 0.6, inr 1.6 the

itching was getting unbearable, so the dr. put her on rifampin last week , this helped alot. i think that it might not be too long untill she will need her transplant. there are three ready and willing family members with blood matches that could be used. how long do you wait to do this __________________________________________________