Re: Introduction--Nina

March 5, 2008

Nina, Welcome. You have been through so much girl. I cannot imagine. I do

know that migraines are common with fibro and alot of people here have them. I

really don't. But it is common with this diagnosis.

Also, I completely understand the waking up feeling like you were run over. I

have not had a dream about it, but it sounds like your brain was literally

trying to figure out why you are hurting so much and well... you had a dream of

being run over. I sure understand that. Many of us describe this feeling as

being run over by a truck or being beaten with a board. It is all over pain and

sorenss. I am the same way with the muscles around the knees and not in the

joints themselves. This is so classic of fibro. Also muscles around other

joints too.

Welcome again,

Debra V. (east TX)

Nina Houston wrote: Hi

everyone, i just joined the board. A bit of info on me. I would say

quick but i tend to ramble unintentionally.

My name is Nina, I live in Hawaii with my husband and 3 kids(7,5 and

3). Husband is active duty in the Navy, submarines. I am currently 26.

I was just recently, a few months ago, diagnosed with fibromyalgia.

It didn't come as a huge surprise, however, as I have had (what i had

thought of them as anyways not real sure of all the terminology yet)

body pains during most especially illness , since I was 10, as well as

a variety of other things. i just thought i was odd. My family would

make the joke that I was early 20s and 'falling apart'(not harshly),

because I had a number of weird things, the " less than 5% " , and its

always me..

At any rate when all this REALLY started, i had of course the aches

but just when i was sick with like a flu bug starting at 10.. I got

really sick with the flu and i remember getting just.. agonizing..

pains. I couldnt move, i couldnt walk.. I had no way to describe it

except that I hurt. I used to think of them as joint aches because it

hurt worse when i moved although as Ive had them for longer ive come

to realize it isnt the joints themselves but the muscles, but of

course as a child i had no better way to explain it. For a long time

it was like I said just when i was ill. and even now, when I get the

flu, the flu is really a miniscule part of it.

Then about six years ago, i woke up one day with a horrible. nasty.

debilitating. migraine. And have had one basicaly every day since. I

knew what that was, id had migraines before , even as a child, before

they said kids can even get migraines, my school used to tell me i

just wanted free time off. But I had never been medically diagnosed

with one, because I had never had one so bad i felt i needed medical

attention for it. I went in, and from that day on they have just been

non stop. And also the focus. Becuase they were constant. Neurology,

MRIs, this med that med.. Nothing works. And because my husband is

military, its tricare insurance so over six years I have probably had

about as many primary care doctors, and neurologists. I finally found

good ones, that arent transfering. After years of digging, they have

found some of the migraine triggers..

Sinus problems(chronic sinus infections), allergy triggers, stress..

But then along with the migraines came consistantly more.. fatigue..

Aches when i wasnt sick.. Excersize intolerance.. And for a while i

was thinking well okay am i just so out of shape from so many years of

migraines? But id go and do five minutes on an elliptical and be

literally knocked out for two days, because I hurt so bad. Then I got

sick, and i had the flu for a day, and I couldnt walk for a week and a

half. I hadn't ever really talked to my doctors recently about the

body aches because we had gone in years ago when itw as just with the

flu or illnesses, and gotten shrugged at. I had happened to bring it

up to a friend when i was ill recently and she actually has fibro, and

she told me that it sounded alot like what happened to her, and I

should talk to a doctor again. I ended up seeing a rheumatologist, etc.

This is a fairly truncated, shortened version Im trying not to ramble

too much.

But i wanted to give an intro.

at the moment my medical diagnosis are

fibromyalgia

chronic migraines

chronic fatigue

chronic sinus infections

bipolar 1

asthma

I may be forgetting something. who knows. cant keep my head on

straight these days.

At any rate I also had a question.

This hasnt happened before, ive been under alot of stress the last

weekend or so and aching alot. Ended up having this.. really odd

dream. that I got hit by a car, i dont know if anyone here ever wakes

up feeling like that.. " I feel like I got hit by a truck " but i had a

dream that i got hit by a car, the whole sequence, in the hosp after

with the sensations of it, and i woke up feelin like i do in the

mornings , but i actually had a dream about it cause im aching really

bad at the moment. Anyone ever get that? just under alot of stress and

hurting cause youre so stressed and have a vivid dream that enacts

that feeling you get when you wake up and just feel like somethin ran

you over?

Anyways time for me to stop rambling.

*waves*

-Nina

---------------------------------

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March 5, 2008

Hi, thankyou.

I was definitely trying to be brief, I have a tendency to tell my life

story. Then go woops, didn't mean to rant.

The migraines started several years ago and were so prominent that the

daily aches just kinda " snuck " up on me if that sounds believeable, we

started to get the migraines less somewhat, and i went to try to have

a normal life and found that i still couldnt cause it still hurt. To

me the diagnosis just puts pieces together though, and it gives the

doctors a solid reason. Ive gotten so much less hassle since they said

" You have fibromyalgia " when needing medication for pain, than before.

before it was 'Why do you get headaches, youve had them for years why

dont you know " ... well cause there are so many stupid reasons for

migraines sometimes you just dont know!

Now i can look at them and say my neuro and rheumatologist feel theyre

related to my fibromyalgia. and the doctor just goes " Oh okay, what do

you take for it " .

(keeping in mind that being military you get scheduled with whatever

doctor is free that day. Not your doctor, or your doctors team. so you

see alot of random people unless you schedule weeks out or get lucky)

Thanks so much for the warm welcome. It may not make the aches better

but i know that having people around who understand makes dealing with

it better and I would imagine with something as hard to live with as

this is/has been.. its so important to have support, people who

understand!

-Nina

> Nina, Welcome. You have been through so much girl. I cannot imagine.

> I do know that migraines are common with fibro and alot of people

> here have them. I really don't. But it is common with this diagnosis.

> Also, I completely understand the waking up feeling like you were

> run over. I have not had a dream about it, but it sounds like your

> brain was literally trying to figure out why you are hurting so much

> and well... you had a dream of being run over. I sure understand

> that. Many of us describe this feeling as being run over by a truck

> or being beaten with a board. It is all over pain and sorenss. I am

> the same way with the muscles around the knees and not in the joints

> themselves. This is so classic of fibro. Also muscles around other

> joints too.

> Welcome again,

> Debra V. (east TX)

>

March 5, 2008

Hi Nina,

Welcome to the group.

It's not unbelievable that migraines could keep you from recognizing other

pains coming on. I used to get bad migraines (cluster type) years ago. They

were debilitating and I was among one of the first groups to use Imitrex in a

self-given shot. It was a horrible medication for me with side effects, but I

didn't even care because they lessened the pain some. At least enough to come

out of the dark and unbury my head under the pillows. I don't think I would

have noticed that I was gradually hurting somewhere else.

I'm sorry that after you survived migraines, you ended up with Fibromyalgia.

I am happy that you have found a doctor, or doctors, that seems to really

believe in Fibromyalgia and in you. A lot of us have trouble with doctors not

believing and we hear about Fibro what you heard about your migraines.

I hope you get the wonderful support from the group that I have.. I look

forward to getting to know you.

Marti

Nina Houston wrote: