Re: Re: Positive ANC and elevated sed rate in bloodwork

[Guest guest]

My 10 year old son, has been struggling with UC that could not get under control even with high dose prednisone. His poor little body was deteriorating from the effects of the prednisone. It is very hard on your bones, joints, teeth and not to mention your weight. Anyway, he did develop osteoporosis and arthritis from the prednisone combined with the PSC. Bottom, line, he went off the prednisone after a year and started Remicade infusions and he has lost weight, his joints do not hurt, Sed rate went down, Liver tests are normal. Hemoglobins back up!!! Remicade is working. Just have to be careful because it can cause a lymphoma but generally that is with older people combined w/Chrons versus younger people w UC.. He is feeling the best he has in over a year. We still worry what the PSC will bring but it seems the PSC all started after his first colonscope which landed him in the hospital with an infection. In the hospital his liver tests were fine and within a week, all of a sudden his GGT out of nowhere was in the 1000's and he had intense pain in his right side, tired fatigued and so on. That is when he was diagnosed with PSC after ERCP. I swear it was a result of his UC or the colonscope.

Stephnaie Ostos-Gedgaudas