Getting harder and harder to work

[Guest guest]

Well group, don't know where else to vent about this. I just wanted to touch

base and gripe a little bit. I am finding that it is harder and harder to work

now. I just don't have a clue what I am going to do in the future with these

two young children to raise. I am delighted to have them in my life and love

them with all my heart and soul. I just wish it had not have been so late when

I had them. Because they don't get the best mom I could have been years ago.

Ironic, huh?

The changes that have occured in me in just the last 3 years is unbelievable. I

was literally on auto pilot at work this week. The exhaustion is so horrible

and debilitating. I find I have to take the hydrocodone to function. It is not

only a great pain killer for me, but it somehow lets the exhaustion up some. I

hate this though. I have to be dependent on some pills to keep going. That is

not the way I ever wanted my life to be. I almost feel guilty sometimes because

I feel I should be stronger than that. If I did not work full time, I could cut

the vicodin back at least to 3/4's or 1/2 the dose I take now.

At work when I get as if I cannot take another step because it feels like 20

pounds of weights are tied to my arms and legs, I have to take the medication.

At home, at least I can lay down and deal with it better. I rest more on my

days off of course, so I don't take as much pain meds.

This is a long post I know. I won't blame you if you don't have time to read it

all.

I feel so trapped. If I applied for disability they would say " well you are

working now " ... but if I quit working to apply.... then what the hell do we live

on until all the red tape of disability gets done? I mean some people apply 5

to 10 times and they still turn them down.

Just wonder what I am going to do? I just can't see standing up to this for

another 20 years or so. I am only 43.

Thanks for listening. I don't really think anyone has an answer to fix it, but

I just wanted to have someone listen I guess.

love and hugs,

Debra V.

---------------------------------

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[Guest guest]

I completely understand. I have the same problem right now. I work

35 hours a week, and we need the money to support ourselves and our

children.

I love the question when applying, How much work have you missed

because of this illness? Uh, I can't afford to not go to work! If I

could afford not to work, I wouldn't be applying for disability, now,

would I?!?!

I know exactly how you feel, and no, I don't have the answers your

looking for. Just keep on trying...keep your head up.

Dodie

>

> Well group, don't know where else to vent about this. I just

wanted to touch base and gripe a little bit. I am finding that it is

harder and harder to work now. I just don't have a clue what I am

going to do in the future with these two young children to raise. I

am delighted to have them in my life and love them with all my heart

and soul. I just wish it had not have been so late when I had them.

Because they don't get the best mom I could have been years ago.

Ironic, huh?

> The changes that have occured in me in just the last 3 years is

unbelievable. I was literally on auto pilot at work this week. The

exhaustion is so horrible and debilitating. I find I have to take

the hydrocodone to function. It is not only a great pain killer for

me, but it somehow lets the exhaustion up some. I hate this though.

I have to be dependent on some pills to keep going. That is not the

way I ever wanted my life to be. I almost feel guilty sometimes

because I feel I should be stronger than that. If I did not work

full time, I could cut the vicodin back at least to 3/4's or 1/2 the

dose I take now.

> At work when I get as if I cannot take another step because it

feels like 20 pounds of weights are tied to my arms and legs, I have

to take the medication. At home, at least I can lay down and deal

with it better. I rest more on my days off of course, so I don't

take as much pain meds.

>

> This is a long post I know. I won't blame you if you don't have

time to read it all.

> I feel so trapped. If I applied for disability they would

say " well you are working now " ... but if I quit working to apply....

then what the hell do we live on until all the red tape of disability

gets done? I mean some people apply 5 to 10 times and they still

turn them down.

>

> Just wonder what I am going to do? I just can't see standing up to

this for another 20 years or so. I am only 43.

>

> Thanks for listening. I don't really think anyone has an answer to

fix it, but I just wanted to have someone listen I guess.

>

> love and hugs,

> Debra V.

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

[Guest guest]

Well Debra I just don't know what to say except if you don't take care of your

body now what does the future hold for you. I wish you could get disability. I

thank god i have it and it's definately easier to get the needed rest and deal

with the pain better. I know how you feel about taking all those med's tho. We

just have to do it i guess.

Hope things get better for you soon sweetie.

Your friend

Little

LINDA

---------------------------------

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[Guest guest]

Debra,

I understand completely. I am in the exact same situation. And like

you, i don't have any answer to fix it.

**hugs**

N.

[Guest guest]

I heard you, Debra...loud and clear!!!! I was about your age when the fibro

made me have to quit working. If it weren't for my kids being grown and

then and Demian to take care of me, I don't know what I would have

done...and I'd hate to imagine what would have happened to me.

Take strength in knowing that we are here for you.

Love and gentle hugs,

Debi/Central Cal.-55

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[Guest guest]

Your husband is a vet, right? Can he get some disability for his health

problems? I think you should maybe talk to an attorney or financial advisor or

something. You can see the writing on the wall, so to speak, so it makes sense

to try to understand what steps you could take now. Hope this helps. We are

about the same age, and I've been disabled for 10 years now.

Jeanne in WI

Well group, don't know where else to vent about this. I just wanted to touch

base and gripe a little bit. I am finding that it is harder and harder to work

now. I just don't have a clue what I am going to do in the future with these

two young children to raise. I am delighted to have them in my life and love

them with all my heart and soul. I just wish it had not have been so late when

I had them. Because they don't get the best mom I could have been years ago.

Ironic, huh?

The changes that have occured in me in just the last 3 years is unbelievable.

I was literally on auto pilot at work this week. The exhaustion is so horrible

and debilitating. I find I have to take the hydrocodone to function. It is not

only a great pain killer for me, but it somehow lets the exhaustion up some. I

hate this though. I have to be dependent on some pills to keep going. That is

not the way I ever wanted my life to be. I almost feel guilty sometimes because

I feel I should be stronger than that. If I did not work full time, I could cut

the vicodin back at least to 3/4's or 1/2 the dose I take now.

At work when I get as if I cannot take another step because it feels like 20

pounds of weights are tied to my arms and legs, I have to take the medication.

At home, at least I can lay down and deal with it better. I rest more on my

days off of course, so I don't take as much pain meds.

This is a long post I know. I won't blame you if you don't have time to read

it all.

I feel so trapped. If I applied for disability they would say " well you are

working now " ... but if I quit working to apply.... then what the hell do we live

on until all the red tape of disability gets done? I mean some people apply 5

to 10 times and they still turn them down.

Just wonder what I am going to do? I just can't see standing up to this for

another 20 years or so. I am only 43.

Thanks for listening. I don't really think anyone has an answer to fix it,

but I just wanted to have someone listen I guess.

love and hugs,

Debra V.

[Guest guest]

hi Debra

I know what you are feeling, I have been out of work a

lot this year too. I have used my FMLA 12 weeks and

the doctors have said you can no longer do the

job.(i'm a paramedic/emt instructor). I want to say NO

S___

so I am now on a doctors statment can not return to

work for another 12wks or until medically able. we all

know that is not going to happen.

I have filed for my disability retirement from the

Federal Gov. DOD, and now we wait, with all the

savings we had dwindled and me not working it has

become a nightmare.

But i had to realize my job is a big contributor to my

health and after 30 years I am having to do a

disabilty retirement instead of a full retirement due

to of course my age .

God help us all as I have noticed not only are we all

here struggleing just to get through a day feeling

okay we have to struggle on how do we live just with

basics.

with gas and food prices rising it is just not

seeming we can get that horse behind his cart..

Diane

--- Jeanne and Dave

wrote:

> Your husband is a vet, right? Can he get some

> disability for his health problems? I think you

> should maybe talk to an attorney or financial

> advisor or something. You can see the writing on

> the wall, so to speak, so it makes sense to try to

> understand what steps you could take now. Hope this

> helps. We are about the same age, and I've been

> disabled for 10 years now.

> Jeanne in WI

>

>

> Well group, don't know where else to vent about

> this. I just wanted to touch base and gripe a

> little bit. I am finding that it is harder and

> harder to work now. I just don't have a clue what I

> am going to do in the future with these two young

> children to raise. I am delighted to have them in

> my life and love them with all my heart and soul. I

> just wish it had not have been so late when I had

> them. Because they don't get the best mom I could

> have been years ago. Ironic, huh?

> The changes that have occured in me in just the

> last 3 years is unbelievable. I was literally on

> auto pilot at work this week. The exhaustion is so

> horrible and debilitating. I find I have to take

> the hydrocodone to function. It is not only a great

> pain killer for me, but it somehow lets the

> exhaustion up some. I hate this though. I have to

> be dependent on some pills to keep going. That is

> not the way I ever wanted my life to be. I almost

> feel guilty sometimes because I feel I should be

> stronger than that. If I did not work full time, I

> could cut the vicodin back at least to 3/4's or 1/2

> the dose I take now.

> At work when I get as if I cannot take another

> step because it feels like 20 pounds of weights are

> tied to my arms and legs, I have to take the

> medication. At home, at least I can lay down and

> deal with it better. I rest more on my days off of

> course, so I don't take as much pain meds.

>

> This is a long post I know. I won't blame you if

> you don't have time to read it all.

> I feel so trapped. If I applied for disability

> they would say " well you are working now " ... but if

> I quit working to apply.... then what the hell do we

> live on until all the red tape of disability gets

> done? I mean some people apply 5 to 10 times and

> they still turn them down.

>

> Just wonder what I am going to do? I just can't

> see standing up to this for another 20 years or so.

> I am only 43.

>

> Thanks for listening. I don't really think anyone

> has an answer to fix it, but I just wanted to have

> someone listen I guess.

>

> love and hugs,

> Debra V.

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

> 1. While it is wonderful to share our experiences

> with everyone on the list as to what treatments do

> and don't work for us, pls always check with your

> dr. Some treatments are dangerous when given along

> with other meds as well as to certain health

> conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't

> matter what it is) pls don't be afraid to ask for

> help. It is the first step to trying to make that

> situation better.

>

> 3. To unsubscribe the e-mail is:

>

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member

> to be feeling bad at the same time when it comes to

> flares and b/c of that potentially take something

> another member says the wrong way. And that

> includes the things that one member may find funny

> (even if it's laughing at fibro itself) even though

> we who deal with illness whether one such as fibro

> or multiple illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you

> are having a bad day pls let us know so that we can

> do our best to offer our support.

>

> Have a nice day everyone.

>

>

[Guest guest]

All I can say is keep trying to get some kind of help....After 3 1/2 yrs of

fighting the bureaucrats of Social Security Disability I was notified yesterday

that I have been wholly approved for benefits....It does happen....I was lucky

that my employer offered Long Term Disability Insurance that I took advantage of

when I was first employed at this company. If not for that I am not sure what I

would have done with no income either.

Pat Ripley

---------------------------------

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[Guest guest]

Debra you might be in the same situation I am in when it comes to

disablity at work. Where I work offers neither long term nor short

term disability and I can not get approved for an individual

disability policy. And if you can use FMLA it doesn't help the money

situation because FMLA is unpaid leave.

I know how hard it is to feel like you are trapped in a job with no

options and it gets harder and harder every day to make it to work

while trying to deal wtih a family.

Good luck Debra. I wish I had some answers!!

N.

[Guest guest]

Hello Debra, I know all to well how you feel about working and taking

your pain meds. I have been in chronic pain for 10 years now and am

only 35 years old. I have a 12 year old daughter that I love to death

unconditionally with all my heart. Some days I just feel so bad, and

not that many people understand how bad you feel when you have to

take a pill(or two) just to get out the bed, to go to the bathroom,

make breakfast, cook dinner, go to the store etc. I take my pain

meds to help with fatigue as well I thought I was the only one that

did that, or at least thought that I was crazy when i found out that

it helps me relax and takes the sleepy edge off when need be. My dr

is starting to drug test me know and I just feel like a criminal! I

started taking the " new " drug LYRICA! The side effects where not

worth the cost and pain. I don't have insurance so I paid $129 for a

mnt supply and my arms, legs, my whole body swelled up, I started

having stomach problems. I had to stop taking it and the side effects

went away. I was in pain from the side effects which caused me to

take more pain meds from the pain med Lyrica! So don't feel bad, The

only thing that works for me is my Lortabs and I will keep taking

them untill I find something else that works, but for now that is the

only thing! I wish you all the best sweetheart, keep your head up!---

In Fibromyalgia_Support_Group , " Jeanne and Dave "

wrote:

>

> Your husband is a vet, right? Can he get some disability for his

health problems? I think you should maybe talk to an attorney or

financial advisor or something. You can see the writing on the wall,

so to speak, so it makes sense to try to understand what steps you

could take now. Hope this helps. We are about the same age, and I've

been disabled for 10 years now.

> Jeanne in WI

>

>

> Well group, don't know where else to vent about this. I just

wanted to touch base and gripe a little bit. I am finding that it is

harder and harder to work now. I just don't have a clue what I am

going to do in the future with these two young children to raise. I

am delighted to have them in my life and love them with all my heart

and soul. I just wish it had not have been so late when I had them.

Because they don't get the best mom I could have been years ago.

Ironic, huh?

> The changes that have occured in me in just the last 3 years is

unbelievable. I was literally on auto pilot at work this week. The

exhaustion is so horrible and debilitating. I find I have to take

the hydrocodone to function. It is not only a great pain killer for

me, but it somehow lets the exhaustion up some. I hate this though.

I have to be dependent on some pills to keep going. That is not the

way I ever wanted my life to be. I almost feel guilty sometimes

because I feel I should be stronger than that. If I did not work

full time, I could cut the vicodin back at least to 3/4's or 1/2 the

dose I take now.

> At work when I get as if I cannot take another step because it

feels like 20 pounds of weights are tied to my arms and legs, I have

to take the medication. At home, at least I can lay down and deal

with it better. I rest more on my days off of course, so I don't

take as much pain meds.

>

> This is a long post I know. I won't blame you if you don't have

time to read it all.

> I feel so trapped. If I applied for disability they would

say " well you are working now " ... but if I quit working to apply....

then what the hell do we live on until all the red tape of disability

gets done? I mean some people apply 5 to 10 times and they still

turn them down.

>

> Just wonder what I am going to do? I just can't see standing up

to this for another 20 years or so. I am only 43.

>

> Thanks for listening. I don't really think anyone has an answer

to fix it, but I just wanted to have someone listen I guess.

>

> love and hugs,

> Debra V.

>

>

>