Re: Blood in stool

[Guest guest]

> I have heard the numbers are high for those

> with PSC developing IBD - how true is this?

A Mayo Clinic (Rochester) study a few years ago indicated that 43 of

52 children (84%) with PSC also had an IBD. The study's conclusion:

" Among pediatric patients (1) PSC without IBD is uncommon; (2)

asymptomatic IBD may be associated with PSC; (3) because the time to

dysplasia may be accelerated, once the diagnosis of IBD is made in the

setting of PSC, heightened endoscopic surveillance may be indicated. "

http://cat.inist.fr/?aModele=afficheN & cpsidt=14075231

[Guest guest]

Although fairly unusual in someone her age, it could also be something as

simple as hemorrhoids of a superficial fissure. Bright red on the tissue is

most likely (in my experience) UC, hemorrhoids or a superficial fissure.

With her bowel habits, I'd guess the latter. Still needs to be checked out.

I think it's the other way around. Those with IBD are far more likely to

develop PSC, and as Tom pointed out, the IBD may be not be readily evident.

One more thing - early onset of menses is not unheard of at that age.

http://www.usatoday.com/news/health/2001-02-12-early-puberty.htm

Arne

56 - UC 1977, PSC 2000

Alive and (mostly) well in Minnesota

________________________________

From: [mailto: ] On

Behalf Of s

My daughter started screaming the other day when she was in the bathroom.

By the time I got there she had thrown the tissue in the toilet that she was

screaming about. She said there were blood spots on the tissue when she

wiped her bottom. This is the first time this has happened. She does not

have regular bowel movements (never has) and only goes a couple times a

week. I have heard the numbers are high for those with PSC developing IBD -

how true is this?

[Guest guest]

Thank you all for your kind words for my daughter. Like everyone she has her good days and bad days. On top of the PSC she also has emotional issues so, her life is like a roller coaster. I haven't been able to get her to go poop since her last movement (almost a week ago) as she is afraid now that she is going to BLEED to death (she is very dramatic and obsessed about everything). I know she needs to go but she keeps holding it in - we are expecting to her blow any day now. The search for a pediatric GI in South Florida (or anywhere in the state) continues. (mommy to Lynna Grace 8 yrs - PSC 04/05)

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