Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 Ellen, I feel so much the same way. I wish all these " in your mind " posts would go away. I am a psych student who wrote a paper last year on blushing and embarrasibility. Do you know what " Psychosomatic " means? It means more than a mind body connection. It means that we are a bunch of neurotic people who through worry have created our illness. I may be neurotic today, but only because a very real disease has robbed me of a third of my life! Everyone here doesn't flush and blush. Everyone can't control it! It just creeps up insidiously! To reduce cea to worry to prepostrous! I also agree that cea is very serious. You wouldn't tell a Cancer patient to forget about the tumour in their lung. That's barbaric! And when you minimise our refusal to agree with you as mis-directed anger- that is only adding salt to the wound! I believe in the mind-body connection. But I also believe a few of us should look up " support " in the dictionary and see what it means!! > I am very confused with all of these posts about your mind. Stop > posting!! My face is not my mind! I am a victim of this very cruel > disease. I dont care what my husband or my derm says " Its all in your > head " Thats a load of crap! I cant control my flushing and if it was > in your mind you could control it, right? Its common sense that your > mind doesnt create diseases. That is a fact my friend. Everyone on > this board would agree with me too. 90 percent of posts come from > peole who are suffering and 10 percent are people who dont suffer. We > are the unlucky people because rosacea is just as bad as cancer in > many ways. Lets all band together guys and tell those crazy people > who say its our fault to go away. sincerly > Ellen L Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 > Ellen, I feel so much the same way. I wish all these " in your mind " > posts would go away. I am a psych student who wrote a paper last year > on blushing and embarrasibility. Do you know what " Psychosomatic " > means? It means more than a mind body connection. It means that we > are a bunch of neurotic people who through worry have created our > illness. > > I may be neurotic today, but only because a very real disease has > robbed me of a third of my life! Everyone here doesn't flush and > blush. Everyone can't control it! It just creeps up insidiously! To > reduce cea to worry to prepostrous! > > I also agree that cea is very serious. You wouldn't tell a Cancer > patient to forget about the tumour in their lung. That's barbaric! > And when you minimise our refusal to agree with you as mis-directed > anger- that is only adding salt to the wound! > > I believe in the mind-body connection. But I also believe a few of us > should look up " support " in the dictionary and see what it means!! > > > Thank you , I wish you could tell my doctor and husband this LOL They assume that it is my mind making me flare up. You seem to know by fact that this disease is physical and not mental which is wonderful news. Please send me your research on blushing and rosacea so I can confirm and share this with my doctor, it would mean a great deal to me. I also agree with you that its barbaric to say that cea is not as serious as Cancer. I would bet most of us would rather have Cancer then rosacea like the view and I share. Once again from reading this wonderful suppport board over the months I come to understand that rosacea is not my fault and I definatly may need many many laser treatments. Im not crazy yet but I'll probably be crazy soon like you say you are in a few months if this progresses. Thanks again Sincerly, Ellen L ps If I see another " mind " post Im writing the monitor and saying its harrasment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 Ellen, I'm not sure my paper relates to cea, and I honestly don't know where it is now. It was just a review of 4 papers which said that if you're prone to being anxious and embaressed you're more likely to blush. So, I do think there is a huge mental component to this illness. But so is there with other diseases. Not controlling our emotions may worsen the symptoms for SOME of us. But I can't agree that emotion control is the cure for this entire group, even if it was for an isolated few. What is happening now is bordering on harrasment. > > Ellen, I feel so much the same way. I wish all these " in your mind " > > posts would go away. I am a psych student who wrote a paper last > year > > on blushing and embarrasibility. Do you know what " Psychosomatic " > > means? It means more than a mind body connection. It means that we > > are a bunch of neurotic people who through worry have created our > > illness. > > > > I may be neurotic today, but only because a very real disease has > > robbed me of a third of my life! Everyone here doesn't flush and > > blush. Everyone can't control it! It just creeps up insidiously! To > > reduce cea to worry to prepostrous! > > > > I also agree that cea is very serious. You wouldn't tell a > Cancer > > patient to forget about the tumour in their lung. That's barbaric! > > And when you minimise our refusal to agree with you as mis- directed > > anger- that is only adding salt to the wound! > > > > I believe in the mind-body connection. But I also believe a few of > us > > should look up " support " in the dictionary and see what it means!! > > > > > > > Thank you , > I wish you could tell my doctor and husband this LOL > They assume that it is my mind making me flare up. You seem to know > by fact that this disease is physical and not mental which is > wonderful news. Please send me your research on blushing and rosacea > so I can confirm and share this with my doctor, it would mean a great > deal to me. I also agree with you that its barbaric to say that > cea is not as serious as Cancer. I would bet most of us would > rather have Cancer then rosacea like the view and I share. > Once again from reading this wonderful suppport board over the months > I come to understand that rosacea is not my fault and I definatly may > need many many laser treatments. Im not crazy yet but I'll probably > be crazy soon like you say you are in a few months if this > progresses. Thanks again > Sincerly, > Ellen L > ps If I see another " mind " post Im writing the monitor and > saying its harrasment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 I have to agree with you Ellen. I am very wary of anybody hanging a convenient label on a disease as " all in your mind " simply because they don't understand it, don't know what it is and how to fix it. I learned this lesson the hard way when my mom lay dying of cancer, and doctors, because they did not know how serious her condition had become, told me, to her dying day, that her condition was all in her mind, and she was depressed. One doctor went so far as to say that he's seen this before, a patient just " gives up " , and then dies. Well, he was right. She died a week later -- but not because she gave up. Because the disease overtook her. So, from now on, when someone tells me they don't feel well, or something is bothering them, the last thing I will consider is that its " all in their mind " . So, you are right, Ellen. Hang in there and try not to let them get you down. Please help me! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 Come on! rosacea is not as bad as cancer if you had to pick, which one would you pick? its a skin disorder and its a pain in the ass. Is what it is, but I would not compare it to cancer. cea can not kill you it might kill your self esteem and your money for skin products that do not work but it will not kill you. Bite your tongue. Carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2011 Report Share Posted November 18, 2011 : You are currently in Georgia? i dont know about the resources there but every county has a public mental health facitlity where they can treat you on a sliding scale fee or if you have medicaid. Have you considered this? They could help with medication and you could likely see a therapist every week for some guidance. Have you thought about your diet at all? maybe you have become too sensitive to certain foods? have you tried any vitamins or an elimination diet where you remove something like dairy or wheat or corn for 2 weeks and see if things improve? this is something you can do that doesnt require money. Also, why not try calling the somewhere like national autism society or autism society of georgia? http://www.asaga.com/ . I would tell them just what you said here, you cannot find adult supprt and you need them to please help you. Please keep in touch here if those resources do not provide any help to you. Clara To: sList Sent: Friday, November 18, 2011 6:52:38 PMSubject: Please help me! I posted this in another group and got no response, I need help and hope someone out there can give me some helpful feedback.I am a 30 yr old female with Asperger Syndrome and I am having some serious issues lately, and need some advice on how to cope. You see, for some reason I have been having serious fits back to back and cant quite seem to get myself under control (my poor husband has received the blunt of this, and that makes me sad). Going into public has been extremely difficult as well, I start stimming almost immediately ...which my husband does yell at me for and that DOES NOT help. I have NO relationships other than my husband (not even with my parents, I have to mention they could care less), people say they like me and are my friend but i'm not theirs. I want company, but at the same time people just don't understand so I push them out. My poor husband tries so hard but I have so many rules its ridiculous...I cant even keep up with them some times. Please, anyone with any ideas help me. I moved to Georgia from Louisiana in hopes that their might be more resources here, but I cant affordhelp...and most of the resources are for children with AS. PLEASE HELP.k-j Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2011 Report Share Posted November 18, 2011 : there may also be something here to help you: http://foundationforautismsupportandtraining.org/resources.html To: sList Sent: Friday, November 18, 2011 6:52:38 PMSubject: Please help me! I posted this in another group and got no response, I need help and hope someone out there can give me some helpful feedback.I am a 30 yr old female with Asperger Syndrome and I am having some serious issues lately, and need some advice on how to cope. You see, for some reason I have been having serious fits back to back and cant quite seem to get myself under control (my poor husband has received the blunt of this, and that makes me sad). Going into public has been extremely difficult as well, I start stimming almost immediately ...which my husband does yell at me for and that DOES NOT help. I have NO relationships other than my husband (not even with my parents, I have to mention they could care less), people say they like me and are my friend but i'm not theirs. I want company, but at the same time people just don't understand so I push them out. My poor husband tries so hard but I have so many rules its ridiculous...I cant even keep up with them some times. Please, anyone with any ideas help me. I moved to Georgia from Louisiana in hopes that their might be more resources here, but I cant affordhelp...and most of the resources are for children with AS. PLEASE HELP.k-j Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2011 Report Share Posted November 18, 2011 Hi ,Thanks for opening up with us. It is an honor to have you sharing so authentically here. Look... remember to breathe from time to time, first of all.Do you have a facebook account? I have a female adult friend with Aspergers, that has been blogging and I know it would be great for you to connect with her. Let me know. Her name is Annette Stanton-Harkness.And you can email me privately if you want someone to confine too. Much love and light, to you and to your situation!Fabiola To: sList Sent: Friday, November 18, 2011 6:52 PM Subject: Please help me! I posted this in another group and got no response, I need help and hope someone out there can give me some helpful feedback. I am a 30 yr old female with Asperger Syndrome and I am having some serious issues lately, and need some advice on how to cope. You see, for some reason I have been having serious fits back to back and cant quite seem to get myself under control (my poor husband has received the blunt of this, and that makes me sad). Going into public has been extremely difficult as well, I start stimming almost immediately ...which my husband does yell at me for and that DOES NOT help. I have NO relationships other than my husband (not even with my parents, I have to mention they could care less), people say they like me and are my friend but i'm not theirs. I want company, but at the same time people just don't understand so I push them out. My poor husband tries so hard but I have so many rules its ridiculous...I cant even keep up with them some times. Please, anyone with any ideas help me. I moved to Georgia from Louisiana in hopes that their might be more resources here, but I cant affordhelp...and most of the resources are for children with AS. PLEASE HELP. k-j Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2011 Report Share Posted November 18, 2011 Recommend a psychologist that has experience with adults with autism, bring your husband too, at least to start.Sent from my Samsung Epicâ„¢ 4G wrote: I posted this in another group and got no response, I need help and hope someone out there can give me some helpful feedback. I am a 30 yr old female with Asperger Syndrome and I am having some serious issues lately, and need some advice on how to cope. You see, for some reason I have been having serious fits back to back and cant quite seem to get myself under control (my poor husband has received the blunt of this, and that makes me sad). Going into public has been extremely difficult as well, I start stimming almost immediately ...which my husband does yell at me for and that DOES NOT help. I have NO relationships other than my husband (not even with my parents, I have to mention they could care less), people say they like me and are my friend but i'm not theirs. I want company, but at the same time people just don't understand so I push them out. My poor husband tries so hard but I have so many rules its ridiculous...I cant even keep up with them some times. Please, anyone with any ideas help me. I moved to Georgia from Louisiana in hopes that their might be more resources here, but I cant affor dhelp...and most of the resources are for children with AS. PLEASE HELP. k-j Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2011 Report Share Posted November 18, 2011 Do you have any transportation? If so, there is a great Dr. in Melbourne FL that can help you. He has a financial aid so you can concentrate on recovering and not on mounting bills. The important thing is that you not give up. Are you on any meds? There are natural supplements you can take for your anxiety you can contact me off list if you like I will be happy to talk to you. My first suggestion would be to contact Dr. Rossignal in Melbourne for a consultation. his # is . Please help me! I posted this in another group and got no response, I need help and hope someone out there can give me some helpful feedback. I am a 30 yr old female with Asperger Syndrome and I am having some serious issues lately, and need some advice on how to cope. You see, for some reason I have been having serious fits back to back and cant quite seem to get myself under control (my poor husband has received the blunt of this, and that makes me sad). Going into public has been extremely difficult as well, I start stimming almost immediately ...which my husband does yell at me for and that DOES NOT help. I have NO relationships other than my husband (not even with my parents, I have to mention they could care less), people say they like me and are my friend but i'm not theirs. I want company, but at the same time people just don't understand so I push them out. My poor husband tries so hard but I have so many rules its ridiculous...I cant even keep up with them some times. Please, anyone with any ideas help me. I moved to Georgia from Louisiana in hopes that their might be more resources here, but I cant affor dhelp...and most of the resources are for children with AS. PLEASE HELP. k-j Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2011 Report Share Posted November 18, 2011 Honey, I'm sorry you're having a tough time and I wish I could help but I live in FL and have no idea of the resources available where you are. I can, and will, pray for you so just try to hang on. I wish you peace.Subject: Please help me!To: sList Date: Friday, November 18, 2011, 6:52 PM I posted this in another group and got no response, I need help and hope someone out there can give me some helpful feedback. I am a 30 yr old female with Asperger Syndrome and I am having some serious issues lately, and need some advice on how to cope. You see, for some reason I have been having serious fits back to back and cant quite seem to get myself under control (my poor husband has received the blunt of this, and that makes me sad). Going into public has been extremely difficult as well, I start stimming almost immediately ...which my husband does yell at me for and that DOES NOT help. I have NO relationships other than my husband (not even with my parents, I have to mention they could care less), people say they like me and are my friend but i'm not theirs. I want company, but at the same time people just don't understand so I push them out. My poor husband tries so hard but I have so many rules its ridiculous...I cant even keep up with them some times. Please, anyone with any ideas help me. I moved to Georgia from Louisiana in hopes that their might be more resources here, but I cant affordhelp...and most of the resources are for children with AS. PLEASE HELP. k-j Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2011 Report Share Posted November 19, 2011 I'm very sorry that you are going through this alone. There is a website called spectrum mentor that is great. Here is the website: http://spectrummentor.com/ He talks about a variety of topics, there are message boards for people on the spectrum and their families; but it is not just kids: there are lots of topics adressing the issues of life on the spectrum as an adult. His blogs are fantastic, he has a degree in social work, and he 'gets it', since he is on the spectrum himself. He offers services for a fee, but there are a lot of free resources on his website that are very helpful. Look him up on Facebook, too ( R. King). A lot of discussions come up on his facebook page. Hope this helps, and wish you the best. > > I posted this in another group and got no response, I need help and hope someone out there can give me some helpful feedback. > > I am a 30 yr old female with Asperger Syndrome and I am having some serious issues lately, and need some advice on how to cope. You see, for some reason I have been having serious fits back to back and cant quite seem to get myself under control (my poor husband has received the blunt of this, and that makes me sad). Going into public has been extremely difficult as well, I start stimming almost immediately ...which my husband does yell at me for and that DOES NOT help. I have NO relationships other than my husband (not even with my parents, I have to mention they could care less), people say they like me and are my friend but i'm not theirs. I want company, but at the same time people just don't understand so I push them out. My poor husband tries so hard but I have so many rules its ridiculous...I cant even keep up with them some times. Please, anyone with any ideas help me. I moved to Georgia from Louisiana in hopes that their might be more resources here, but I cant affordhelp...and most of the resources are for children with AS. PLEASE HELP. > > k-j > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2011 Report Share Posted November 19, 2011 I called a friend in GA and she suggested you contact one or all of the following. She works at a hospital near Alpharetta and says that these are very helpful people. I hope you will get in touch w/ them. DBSA Metropolitan Atlanta - info@... (If you aren't near Atlanta they can direct you to your local DBSA group) The Georgia Aspbergers Organization has a good list of resources http://georgiaaspergersorganization.org/ OCD Support Group 3534 Old Milton Parkway Alpharetta,Georgia Contact: Schultheis, LPC Phone: Email: stresslessatl@... Sometimes just the fact that you have moved and are no longer in your " comfort zone " , can make things worse. Good luck to you. Glenda > > I posted this in another group and got no response, I need help and hope someone out there can give me some helpful feedback. > > I am a 30 yr old female with Asperger Syndrome and I am having some serious issues lately, and need some advice on how to cope. You see, for some reason I have been having serious fits back to back and cant quite seem to get myself under control (my poor husband has received the blunt of this, and that makes me sad). Going into public has been extremely difficult as well, I start stimming almost immediately ...which my husband does yell at me for and that DOES NOT help. I have NO relationships other than my husband (not even with my parents, I have to mention they could care less), people say they like me and are my friend but i'm not theirs. I want company, but at the same time people just don't understand so I push them out. My poor husband tries so hard but I have so many rules its ridiculous...I cant even keep up with them some times. Please, anyone with any ideas help me. I moved to Georgia from Louisiana in hopes that their might be more resources here, but I cant affordhelp...and most of the resources are for children with AS. PLEASE HELP. > > k-j > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2011 Report Share Posted November 20, 2011 I wish I had more advice for you, but this is one suggestion to get you started. Communicate with your husband. He needs to know that you acknowledge your behavior and how it is impacting the relationship. Since your husband is the one who gets the brunt of it, ask HIM what he would like to see different. If you can understand him better, you may be more likely to try to move on past your " rules " as best you can. After listening to your husband's suggestions, you might want to assure him that you will try your best, but that it will take time, support from him, and encouragement. Tell your husband what you need from him. Once you two have communicated regarding the problem, set small goals for yourself...like running one errand with your husband while " keeping it together " . Once you can handle these mini-goals, you will feel more confident working through more difficult times like dinner dates. Best of luck. Remember, keep your hubby on your team...he may very well end up being your biggest cheerleader Sent from my iPod Quote Link to comment Share on other sites More sharing options...
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