Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 I have had my local doc and my hep doc at my transplant center say that to me too. I have cirrhosis from PSC and ductopenia. What my doc explained what they meant was that years ago no one got the diagnosis of PSC as early on as we do now with blood work and ERCP's. Most patients did not know they had it until they were in end stage liver disease and need a transplant ASAP. What they said to me was to Just to try to go one living my life to the fullest as if I did not know about the PSC (easier said than done). I also have nearly constant RUQ pain and many days severe fatigue. What the docs say about that is Well that is part of having PSC and is most likely will only get worse! Frustrating,huh! I do think it is frustrating for them too since they don't have much if anything to help us with PSC. One day at a time, PSC 5/07 Listed > > I visited my gastro doctor recently to schedule my yearly colonoscopy. > I mentioned my fatigue and RUQ pain, as I do every time I see him. On > this occasion however, he said to me: " You're young and healthy, and if > it wasn't for the lab tests, you wouldn't even know you had liver > disease. " (My hepatologist has dx me as Stage 2 PSC, by the way). I > couldn't believe my ears! I told him I strongly disagreed. My RUQ > pain is almost constant and the fatigue can be debilitating at times. > I've been seeing this doctor for almost 20 years, and respect him a > great deal. I just can't figure what would make him say that all of a > sudden. Maybe he was trying to give me some positive reinforcement or > something? He did have an intern with him at the time, so maybe that > swayed his judgement; I don't know. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2008 Report Share Posted January 13, 2008 Even though you've seen this doctor for a long time, it's time to get a new doctor, as sooner rather than later. I had a similar experience with a GI doctor, and I'm so glad I changed doctor's. You have too much going on to have such a lame doctor.Marie To: From: stephenmay@...Date: Sat, 12 Jan 2008 01:33:47 +0000Subject: GI Doctor in Denial I visited my gastro doctor recently to schedule my yearly colonoscopy. I mentioned my fatigue and RUQ pain, as I do every time I see him. On this occasion however, he said to me: "You're young and healthy, and if it wasn't for the lab tests, you wouldn't even know you had liver disease." (My hepatologist has dx me as Stage 2 PSC, by the way). I couldn't believe my ears! I told him I strongly disagreed. My RUQ pain is almost constant and the fatigue can be debilitating at times. I've been seeing this doctor for almost 20 years, and respect him a great deal. I just can't figure what would make him say that all of a sudden. Maybe he was trying to give me some positive reinforcement or something? He did have an intern with him at the time, so maybe that swayed his judgement; I don't know. Get the power of Windows + Web with the new Windows Live. Get it now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 , I wouldn't read too much into that statement unless you ask him to clarify and he sticks to his guns. My GP and I laugh that my Hep always begins his reports with the statement, " Mr. Wise, an otherwise healthy male,... " . The hep though is excellent and very cognizant of the PSC symptoms that don't show up in his lab work. Technically, your doc is probably correct in that any physician doing a cursory physical on you would confidently pronounce you healthy. I'd just ask him for clarification next time you're in. Peace, Bill Wise PSC '00, Listed Tx '04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 - Well said, Bill. My new GI asked if I was SURE I had PSC considering my absolutely " normal " labs and the fact that most of my hospitalizations were due to iatrogenic or nosocomial infections. Penny -- In , " gmoobad " wrote: > > , > > I wouldn't read too much into that statement unless you ask him to > clarify and he sticks to his guns. My GP and I laugh that my Hep > always begins his reports with the statement, " Mr. Wise, an otherwise > healthy male,... " . The hep though is excellent and very cognizant of > the PSC symptoms that don't show up in his lab work. Technically, your > doc is probably correct in that any physician doing a cursory physical > on you would confidently pronounce you healthy. I'd just ask him for > clarification next time you're in. > > Peace, > > Bill Wise > PSC '00, Listed Tx '04 > Quote Link to comment Share on other sites More sharing options...
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