Alternative medicine and management of PSC

January 7, 2008

We are in the Chicago area. My husband has had PSC for 11 years now.

He is under the medical care of Joeseph Geenen in Mil. WI for repeat

ERCPs with dilatations, takes Actigall regularly, however he appears

to be getting worse. I have heard that many individuals have had

success w/alternative and complimentary medicine to manage this

disease. I would be interested in finding the best practioner for my

husband to consult with. Would appreciate any feedback. Thank you.

January 10, 2008

Kate,

Many of us here have tried alternative and complementary methods for

managing our symptoms and disease with varying degrees of success. I

personally have done milk thistle and beets as well as fish oil, which

I still take but don't consider " alternative " thanks to Dave . I

didn't find any of the other treatments more helpful than my

traditional ones (Urso, Cholestyramine, Hydroxizine, Cipro, etc.).

That having been said, if you told me that bathing in yak saliva cured

the itching, I'd give it a shot. Others can chime in with their

experiences.

As for other providers, I am on the list at University Hospital in

Madison and am very pleased with the care I've received. It's not

Chicago or Milwaukee and they're not alternative or complimentary, but

they will discuss anything you bring to them and have been very

receptive to trying new things. I can provide direct contact info if

you desire.

Regards,

Bill Wise

PSC '00, Listed Tx '04

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