Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Sherry, I don't see anything obvious about your face being crooked. You look pretty nice in you picture. I have a crooked mouth and look like I'm sneering when I smile. I can't get a good job because " no one wants someone that looks like " me " working for them. " That is a quote from an employer. I've been told when getting on a bus " God, you're ugly. " That is not going to stop me from trying to make things work for me. I go to the job I have and work as hard as I can. I can't do as much as some people because I don't have the physical capabilities, so I try to do things I can do to make me more valuable. When I was diagnosed the first thing I did when I got home was go through my cupboards and refrigerator and freezer and get rid of just about everything that had any added sugar. I did keep a couple of jars of jelly, both with low sugar. I had bought candy around Halloween and all of that went to friends or the food bank. Later I found more and that went next door, where one person could eat it (I found out then that one person there has diabetes) and they had a food bank at their church. They were nice enough to pay for some of it, because I make very little from my job. Some more that I found went to the food bank at my church. After that, I got some books on diabetes and what I could eat. I started checking the labels on what I bought. I got on the internet and joined this list and have been learning what I can from it. I knew it would be a while before I could get to a doctor or training in anything, because I had no kind of insurance or money to pay. Luckily, they have a program here that I was able to get on and I have had my first lesson with the diabetes nurse. I found out that it was the carbs I had to watch most in the food I ate and she told me how many carbs she wanted me to eat at meals and snacks. I started trying to take my dogs on walks. That isn't easy for me because I have neuropathy in my feet and they really hurt a lot when I walk. We also have a dog that is always loose in the neighborhood and my dogs don't like other dogs around. Lately, the walks have been halted because of a bad cold, but I am hoping that my feet will straighten up some and I can get started again. With help and support from this list and with training, I'm sure that you will be able to make it. I am looking forward to the day when I will be at the point Eunice and a few other are and can control this completely with diet. Darlene > My face is still crooked and it's very obvious. I hate being stared at in that way. I hate being stared at because of my weight too. So, I just avoid it as much as possible. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Sherry, I don't see anything obvious about your face being crooked. You look pretty nice in you picture. I have a crooked mouth and look like I'm sneering when I smile. I can't get a good job because " no one wants someone that looks like " me " working for them. " That is a quote from an employer. I've been told when getting on a bus " God, you're ugly. " That is not going to stop me from trying to make things work for me. I go to the job I have and work as hard as I can. I can't do as much as some people because I don't have the physical capabilities, so I try to do things I can do to make me more valuable. When I was diagnosed the first thing I did when I got home was go through my cupboards and refrigerator and freezer and get rid of just about everything that had any added sugar. I did keep a couple of jars of jelly, both with low sugar. I had bought candy around Halloween and all of that went to friends or the food bank. Later I found more and that went next door, where one person could eat it (I found out then that one person there has diabetes) and they had a food bank at their church. They were nice enough to pay for some of it, because I make very little from my job. Some more that I found went to the food bank at my church. After that, I got some books on diabetes and what I could eat. I started checking the labels on what I bought. I got on the internet and joined this list and have been learning what I can from it. I knew it would be a while before I could get to a doctor or training in anything, because I had no kind of insurance or money to pay. Luckily, they have a program here that I was able to get on and I have had my first lesson with the diabetes nurse. I found out that it was the carbs I had to watch most in the food I ate and she told me how many carbs she wanted me to eat at meals and snacks. I started trying to take my dogs on walks. That isn't easy for me because I have neuropathy in my feet and they really hurt a lot when I walk. We also have a dog that is always loose in the neighborhood and my dogs don't like other dogs around. Lately, the walks have been halted because of a bad cold, but I am hoping that my feet will straighten up some and I can get started again. With help and support from this list and with training, I'm sure that you will be able to make it. I am looking forward to the day when I will be at the point Eunice and a few other are and can control this completely with diet. Darlene > My face is still crooked and it's very obvious. I hate being stared at in that way. I hate being stared at because of my weight too. So, I just avoid it as much as possible. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Sherry, I don't see anything obvious about your face being crooked. You look pretty nice in you picture. I have a crooked mouth and look like I'm sneering when I smile. I can't get a good job because " no one wants someone that looks like " me " working for them. " That is a quote from an employer. I've been told when getting on a bus " God, you're ugly. " That is not going to stop me from trying to make things work for me. I go to the job I have and work as hard as I can. I can't do as much as some people because I don't have the physical capabilities, so I try to do things I can do to make me more valuable. When I was diagnosed the first thing I did when I got home was go through my cupboards and refrigerator and freezer and get rid of just about everything that had any added sugar. I did keep a couple of jars of jelly, both with low sugar. I had bought candy around Halloween and all of that went to friends or the food bank. Later I found more and that went next door, where one person could eat it (I found out then that one person there has diabetes) and they had a food bank at their church. They were nice enough to pay for some of it, because I make very little from my job. Some more that I found went to the food bank at my church. After that, I got some books on diabetes and what I could eat. I started checking the labels on what I bought. I got on the internet and joined this list and have been learning what I can from it. I knew it would be a while before I could get to a doctor or training in anything, because I had no kind of insurance or money to pay. Luckily, they have a program here that I was able to get on and I have had my first lesson with the diabetes nurse. I found out that it was the carbs I had to watch most in the food I ate and she told me how many carbs she wanted me to eat at meals and snacks. I started trying to take my dogs on walks. That isn't easy for me because I have neuropathy in my feet and they really hurt a lot when I walk. We also have a dog that is always loose in the neighborhood and my dogs don't like other dogs around. Lately, the walks have been halted because of a bad cold, but I am hoping that my feet will straighten up some and I can get started again. With help and support from this list and with training, I'm sure that you will be able to make it. I am looking forward to the day when I will be at the point Eunice and a few other are and can control this completely with diet. Darlene > My face is still crooked and it's very obvious. I hate being stared at in that way. I hate being stared at because of my weight too. So, I just avoid it as much as possible. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Darlene, that picture was made long before I got bells! That picture was made at Christmas 2004 not last Christmas. I'm the one next to the tree holding the little white dog. I've gained about 35 pounds since then. My face is very crooked now. I got bells nearly 3 months ago. It got better to a certain point then stopped. I still can't even wink my left eye. I still have to drink with a straw because the left side of my lips don't work good enough. I was once told that they didn't want me to work for them, because I never smiled. Believe it or not, I laugh and smile more now than I ever have in my life! I lost my entire family by the time I was 40. I lived through many many corrective surgeries for the first 16 years of my life due to some birth defects and I lived through them all. I can handle this, I know I can, it's just a little hard right now and I have a LOT to learn and I will learn it, but it will take time. I'm sorry about your feet. I have 5 dogs but only one knows how to go down the steps and shes the littlest one of all. We live on a small 10 acres and it's mostly wooded. I don't let them out of my site. Did you see my fur-babies on my website? They keep me going all day long. I'm sorry that someone was saying something so mean like that to you. I DO know how it feels, but having other things said. I'm sure that you ARE a beautiful person!! Blessings! Sherry and The Snow Angels Biscuit, Peppy, Piper, Abby and Sugar http://www.picturetrail.com/gabluebird Re: Sherry Sherry, I don't see anything obvious about your face being crooked. You look pretty nice in you picture. I have a crooked mouth and look like I'm sneering when I smile. I can't get a good job because " no one wants someone that looks like " me " working for them. " That is a quote from an employer. I've been told when getting on a bus " God, you're ugly. " That is not going to stop me from trying to make things work for me. I go to the job I have and work as hard as I can. I can't do as much as some people because I don't have the physical capabilities, so I try to do things I can do to make me more valuable. When I was diagnosed the first thing I did when I got home was go through my cupboards and refrigerator and freezer and get rid of just about everything that had any added sugar. I did keep a couple of jars of jelly, both with low sugar. I had bought candy around Halloween and all of that went to friends or the food bank. Later I found more and that went next door, where one person could eat it (I found out then that one person there has diabetes) and they had a food bank at their church. They were nice enough to pay for some of it, because I make very little from my job. Some more that I found went to the food bank at my church. After that, I got some books on diabetes and what I could eat. I started checking the labels on what I bought. I got on the internet and joined this list and have been learning what I can from it. I knew it would be a while before I could get to a doctor or training in anything, because I had no kind of insurance or money to pay. Luckily, they have a program here that I was able to get on and I have had my first lesson with the diabetes nurse. I found out that it was the carbs I had to watch most in the food I ate and she told me how many carbs she wanted me to eat at meals and snacks. I started trying to take my dogs on walks. That isn't easy for me because I have neuropathy in my feet and they really hurt a lot when I walk. We also have a dog that is always loose in the neighborhood and my dogs don't like other dogs around. Lately, the walks have been halted because of a bad cold, but I am hoping that my feet will straighten up some and I can get started again. With help and support from this list and with training, I'm sure that you will be able to make it. I am looking forward to the day when I will be at the point Eunice and a few other are and can control this completely with diet. Darlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Darlene, that picture was made long before I got bells! That picture was made at Christmas 2004 not last Christmas. I'm the one next to the tree holding the little white dog. I've gained about 35 pounds since then. My face is very crooked now. I got bells nearly 3 months ago. It got better to a certain point then stopped. I still can't even wink my left eye. I still have to drink with a straw because the left side of my lips don't work good enough. I was once told that they didn't want me to work for them, because I never smiled. Believe it or not, I laugh and smile more now than I ever have in my life! I lost my entire family by the time I was 40. I lived through many many corrective surgeries for the first 16 years of my life due to some birth defects and I lived through them all. I can handle this, I know I can, it's just a little hard right now and I have a LOT to learn and I will learn it, but it will take time. I'm sorry about your feet. I have 5 dogs but only one knows how to go down the steps and shes the littlest one of all. We live on a small 10 acres and it's mostly wooded. I don't let them out of my site. Did you see my fur-babies on my website? They keep me going all day long. I'm sorry that someone was saying something so mean like that to you. I DO know how it feels, but having other things said. I'm sure that you ARE a beautiful person!! Blessings! Sherry and The Snow Angels Biscuit, Peppy, Piper, Abby and Sugar http://www.picturetrail.com/gabluebird Re: Sherry Sherry, I don't see anything obvious about your face being crooked. You look pretty nice in you picture. I have a crooked mouth and look like I'm sneering when I smile. I can't get a good job because " no one wants someone that looks like " me " working for them. " That is a quote from an employer. I've been told when getting on a bus " God, you're ugly. " That is not going to stop me from trying to make things work for me. I go to the job I have and work as hard as I can. I can't do as much as some people because I don't have the physical capabilities, so I try to do things I can do to make me more valuable. When I was diagnosed the first thing I did when I got home was go through my cupboards and refrigerator and freezer and get rid of just about everything that had any added sugar. I did keep a couple of jars of jelly, both with low sugar. I had bought candy around Halloween and all of that went to friends or the food bank. Later I found more and that went next door, where one person could eat it (I found out then that one person there has diabetes) and they had a food bank at their church. They were nice enough to pay for some of it, because I make very little from my job. Some more that I found went to the food bank at my church. After that, I got some books on diabetes and what I could eat. I started checking the labels on what I bought. I got on the internet and joined this list and have been learning what I can from it. I knew it would be a while before I could get to a doctor or training in anything, because I had no kind of insurance or money to pay. Luckily, they have a program here that I was able to get on and I have had my first lesson with the diabetes nurse. I found out that it was the carbs I had to watch most in the food I ate and she told me how many carbs she wanted me to eat at meals and snacks. I started trying to take my dogs on walks. That isn't easy for me because I have neuropathy in my feet and they really hurt a lot when I walk. We also have a dog that is always loose in the neighborhood and my dogs don't like other dogs around. Lately, the walks have been halted because of a bad cold, but I am hoping that my feet will straighten up some and I can get started again. With help and support from this list and with training, I'm sure that you will be able to make it. I am looking forward to the day when I will be at the point Eunice and a few other are and can control this completely with diet. Darlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 I didn't realize at the time that the picture was before you got bells. I lost my dad when I was 40. Mom ran to bed and wouldn't get up for the next 7 years or so. Just told me to do everything and then I got accused of abusing her. I didn't have surgeries or anything to try to correct things, just was always called ugly and stupid (people think if I am ugly I have to be stupid). My parents were even told that their daughter who read at age 2 was retarded. My dogs and horses have been what has kept me sane for most of my years. They are what I live for. I have never had a man who loved me. I do have a friend who I've had for many years who is a blessing to have for a friend (like I can call him for help or to pick me up dinner when I have to work 14 1/2 hour days like yesterday). Most of my friends dumped me when Mom passed away because I didn't have access to money any more (I took care of Mom and we mostly ended up living on her retirement). Can you carry your dogs down the steps and then walk with them around the property? My dogs are much bigger than yours, so would be difficult to carry. Of course, when I get some strength back, I guess I could use them for weight lifting. They are from 40-60 pounds each. I wish I had some acreage like that. I'd like to live a little ways out in the country, but close enough to town to get in to a job or to decent shopping. I'd have to change medical clinics, though, cause the one I go to is for Denver residents only, I think. It might extend to the suburbs, though. Darlene Re: Sherry Sherry, I don't see anything obvious about your face being crooked. You look pretty nice in you picture. I have a crooked mouth and look like I'm sneering when I smile. I can't get a good job because " no one wants someone that looks like " me " working for them. " That is a quote from an employer. I've been told when getting on a bus " God, you're ugly. " That is not going to stop me from trying to make things work for me. I go to the job I have and work as hard as I can. I can't do as much as some people because I don't have the physical capabilities, so I try to do things I can do to make me more valuable. When I was diagnosed the first thing I did when I got home was go through my cupboards and refrigerator and freezer and get rid of just about everything that had any added sugar. I did keep a couple of jars of jelly, both with low sugar. I had bought candy around Halloween and all of that went to friends or the food bank. Later I found more and that went next door, where one person could eat it (I found out then that one person there has diabetes) and they had a food bank at their church. They were nice enough to pay for some of it, because I make very little from my job. Some more that I found went to the food bank at my church. After that, I got some books on diabetes and what I could eat. I started checking the labels on what I bought. I got on the internet and joined this list and have been learning what I can from it. I knew it would be a while before I could get to a doctor or training in anything, because I had no kind of insurance or money to pay. Luckily, they have a program here that I was able to get on and I have had my first lesson with the diabetes nurse. I found out that it was the carbs I had to watch most in the food I ate and she told me how many carbs she wanted me to eat at meals and snacks. I started trying to take my dogs on walks. That isn't easy for me because I have neuropathy in my feet and they really hurt a lot when I walk. We also have a dog that is always loose in the neighborhood and my dogs don't like other dogs around. Lately, the walks have been halted because of a bad cold, but I am hoping that my feet will straighten up some and I can get started again. With help and support from this list and with training, I'm sure that you will be able to make it. I am looking forward to the day when I will be at the point Eunice and a few other are and can control this completely with diet. Darlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 I didn't realize at the time that the picture was before you got bells. I lost my dad when I was 40. Mom ran to bed and wouldn't get up for the next 7 years or so. Just told me to do everything and then I got accused of abusing her. I didn't have surgeries or anything to try to correct things, just was always called ugly and stupid (people think if I am ugly I have to be stupid). My parents were even told that their daughter who read at age 2 was retarded. My dogs and horses have been what has kept me sane for most of my years. They are what I live for. I have never had a man who loved me. I do have a friend who I've had for many years who is a blessing to have for a friend (like I can call him for help or to pick me up dinner when I have to work 14 1/2 hour days like yesterday). Most of my friends dumped me when Mom passed away because I didn't have access to money any more (I took care of Mom and we mostly ended up living on her retirement). Can you carry your dogs down the steps and then walk with them around the property? My dogs are much bigger than yours, so would be difficult to carry. Of course, when I get some strength back, I guess I could use them for weight lifting. They are from 40-60 pounds each. I wish I had some acreage like that. I'd like to live a little ways out in the country, but close enough to town to get in to a job or to decent shopping. I'd have to change medical clinics, though, cause the one I go to is for Denver residents only, I think. It might extend to the suburbs, though. Darlene Re: Sherry Sherry, I don't see anything obvious about your face being crooked. You look pretty nice in you picture. I have a crooked mouth and look like I'm sneering when I smile. I can't get a good job because " no one wants someone that looks like " me " working for them. " That is a quote from an employer. I've been told when getting on a bus " God, you're ugly. " That is not going to stop me from trying to make things work for me. I go to the job I have and work as hard as I can. I can't do as much as some people because I don't have the physical capabilities, so I try to do things I can do to make me more valuable. When I was diagnosed the first thing I did when I got home was go through my cupboards and refrigerator and freezer and get rid of just about everything that had any added sugar. I did keep a couple of jars of jelly, both with low sugar. I had bought candy around Halloween and all of that went to friends or the food bank. Later I found more and that went next door, where one person could eat it (I found out then that one person there has diabetes) and they had a food bank at their church. They were nice enough to pay for some of it, because I make very little from my job. Some more that I found went to the food bank at my church. After that, I got some books on diabetes and what I could eat. I started checking the labels on what I bought. I got on the internet and joined this list and have been learning what I can from it. I knew it would be a while before I could get to a doctor or training in anything, because I had no kind of insurance or money to pay. Luckily, they have a program here that I was able to get on and I have had my first lesson with the diabetes nurse. I found out that it was the carbs I had to watch most in the food I ate and she told me how many carbs she wanted me to eat at meals and snacks. I started trying to take my dogs on walks. That isn't easy for me because I have neuropathy in my feet and they really hurt a lot when I walk. We also have a dog that is always loose in the neighborhood and my dogs don't like other dogs around. Lately, the walks have been halted because of a bad cold, but I am hoping that my feet will straighten up some and I can get started again. With help and support from this list and with training, I'm sure that you will be able to make it. I am looking forward to the day when I will be at the point Eunice and a few other are and can control this completely with diet. Darlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 I didn't realize at the time that the picture was before you got bells. I lost my dad when I was 40. Mom ran to bed and wouldn't get up for the next 7 years or so. Just told me to do everything and then I got accused of abusing her. I didn't have surgeries or anything to try to correct things, just was always called ugly and stupid (people think if I am ugly I have to be stupid). My parents were even told that their daughter who read at age 2 was retarded. My dogs and horses have been what has kept me sane for most of my years. They are what I live for. I have never had a man who loved me. I do have a friend who I've had for many years who is a blessing to have for a friend (like I can call him for help or to pick me up dinner when I have to work 14 1/2 hour days like yesterday). Most of my friends dumped me when Mom passed away because I didn't have access to money any more (I took care of Mom and we mostly ended up living on her retirement). Can you carry your dogs down the steps and then walk with them around the property? My dogs are much bigger than yours, so would be difficult to carry. Of course, when I get some strength back, I guess I could use them for weight lifting. They are from 40-60 pounds each. I wish I had some acreage like that. I'd like to live a little ways out in the country, but close enough to town to get in to a job or to decent shopping. I'd have to change medical clinics, though, cause the one I go to is for Denver residents only, I think. It might extend to the suburbs, though. Darlene Re: Sherry Sherry, I don't see anything obvious about your face being crooked. You look pretty nice in you picture. I have a crooked mouth and look like I'm sneering when I smile. I can't get a good job because " no one wants someone that looks like " me " working for them. " That is a quote from an employer. I've been told when getting on a bus " God, you're ugly. " That is not going to stop me from trying to make things work for me. I go to the job I have and work as hard as I can. I can't do as much as some people because I don't have the physical capabilities, so I try to do things I can do to make me more valuable. When I was diagnosed the first thing I did when I got home was go through my cupboards and refrigerator and freezer and get rid of just about everything that had any added sugar. I did keep a couple of jars of jelly, both with low sugar. I had bought candy around Halloween and all of that went to friends or the food bank. Later I found more and that went next door, where one person could eat it (I found out then that one person there has diabetes) and they had a food bank at their church. They were nice enough to pay for some of it, because I make very little from my job. Some more that I found went to the food bank at my church. After that, I got some books on diabetes and what I could eat. I started checking the labels on what I bought. I got on the internet and joined this list and have been learning what I can from it. I knew it would be a while before I could get to a doctor or training in anything, because I had no kind of insurance or money to pay. Luckily, they have a program here that I was able to get on and I have had my first lesson with the diabetes nurse. I found out that it was the carbs I had to watch most in the food I ate and she told me how many carbs she wanted me to eat at meals and snacks. I started trying to take my dogs on walks. That isn't easy for me because I have neuropathy in my feet and they really hurt a lot when I walk. We also have a dog that is always loose in the neighborhood and my dogs don't like other dogs around. Lately, the walks have been halted because of a bad cold, but I am hoping that my feet will straighten up some and I can get started again. With help and support from this list and with training, I'm sure that you will be able to make it. I am looking forward to the day when I will be at the point Eunice and a few other are and can control this completely with diet. Darlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 Hi and welcome to the group. it is easy. Just hit reply to any messages you want to answer, or email that person directly by inserting their email into the " TO " slot. also can use im, if you have that person's id. Hope that helps. Hugs, Sherry wrote: I know I will enjoy this group soon as I figure out how to use it. Like Messages, Post, Files...etc. And can you IM with others if they are online...can you e-mail an individual. Not sure how this all works....but I am eager to learn. I need to go to bed ....so tired. Stayed Up Late (pushing it) just trying to get the most of another wasted day. I'm not going to vacuum 'til Sears makes one you can ride on. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 Sherry, Thank you for the refresher on what habits have kept you as healthy for so long. I will stop shaking hands and think about the hugging more carefully. You are also a very good example for steady exercise and keeping at an appropriate weight. I can't believe I was on here whining about losing 20 pounds months ago. I have now gained it back, plus some. I am on the treadmill every night for 20 minutes, but my appetite is still huge. The last time I heard from you, you were wondering if your autoimmune liver disease was going to keep you from transplant listing. I'm glad to know you've overcome that obstacle!! I'm so happy for you! We would have loved to meet you for dinner, Sherry. My uncle lives near Nashville, and if I ever visit him, I will look you up for sure. Elisa Subject: Germ Free Habits or How To Stay HealthyTo: Breathe-Support Date: Monday, November 17, 2008, 7:17 AM I am replying to all those who might like to add other habits to staying healthy with this disease. Since I am on a high dosage of Imuran (200mg) & have been for NINE years now, I have to be careful not to pick up anything! I will NOT shake hands with anyone - sorry about that Bruce - but when you end up getting sick from doing that habit, you may change your mind also. Dr. Milstone at Vanderbilt shook his finger at me & told me NOT to shake hands with people. I've followed that advice ever since. My Pastor at church started bumping elbows with me, & others have followed. It works! As for hugs, well that isn't the best thing to do either - too close of contact for me at this stage of my disease. I didn't get this far along - ten years now - from taking chances after I learned better. Also, , do NOT take anything like herbal medications. You do not know what is in those medications as they are not FDA approved. A pulmonogist at Univ of TN told me not to take anything like that - some things have been found in those medications that would literally kill you & have done so to others. So I am very careful about that too - afterall a Chiropractor is not a medical doctor. I certainly would've loved to have been along on that lunch Bruce, Elisa, & Gynne had in Arlington, TX. I lived in Colleyville, TX, from 1999 until 2003, so I know the area fairly well. Also, I think Gynne still goes to my former pulmonary dr, Dr. Rosenblatt, at UT Southwestern in Dallas. I still haven't met anyone up close & personal who has this disease. Perhaps now that I am being listed for a lung transplant at Vanderbilt, I will at sometime meet others with this disease Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 > > Subject: Germ Free Habits or How To Stay Healthy> To: Breathe-Support > Date: Monday, November 17, 2008, 7:17 AM> > > > > > > > > I am replying to all those who might like to add other habits to staying healthy with this disease. Since I am on a high dosage of Imuran (200mg) & have been for NINE years now, I have to be careful not to pick up anything! > > I will NOT shake hands with anyone - sorry about that Bruce - but when you end up getting sick from doing that habit, you may change your mind also. Dr. Milstone at Vanderbilt shook his finger at me & told me NOT to shake hands with people. I've followed that advice ever since. My Pastor at church started bumping elbows with me, & others have followed. It works! As for hugs, well that isn't the best thing to do either - too close of contact for me at this stage of my disease. I didn't get this far along - ten years now - from taking chances after I learned better. > > Also, , do NOT take anything like herbal medications. You do not know what is in those medications as they are not FDA approved. A pulmonogist at Univ of TN told me not to take anything like that - some things have been found in those medications that would literally kill you & have done so to others. So I am very careful about that too - afterall a Chiropractor is not a medical doctor.> > I certainly would've loved to have been along on that lunch Bruce, Elisa, & Gynne had in Arlington, TX. I lived in Colleyville, TX, from 1999 until 2003, so I know the area fairly well. Also, I think Gynne still goes to my former pulmonary dr, Dr. Rosenblatt, at UT Southwestern in Dallas. I still haven't met anyone up close & personal who has this disease. Perhaps now that I am being listed for a lung transplant at Vanderbilt, I will at sometime meet others with this disease.> > Hope these couple of suggestions help others to maintain their fragile health. It only takes one bad episode of an illness to take you down a notch to where you may need a transplant. That is what happened to me, so be very careful. You can't prevent all illness, but you certainly don't want to invite them!> > Sherry , Age 64> NSIP, PH, PBS, Bronchiectasis> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 Sherry did you have a liver transplant?Pink Joyce IPF 3/06 Pennsylvania Subject: Re: SherryTo: Breathe-Support Date: Tuesday, November 18, 2008, 9:54 AM Elisa,Yes, you have a great chance, well even more than chance, of having lots of years left living with this disease, so take care of yourself. I was happy to hear you were able to return to teaching this year. I know you were concerned about that. I had to have another liver biopsy & ct scan of the abdomen/liver, but passed with flying colors. The liver transplant dr I had been seeing at Vanderbilt said I was good to go on the lung transplant.Yesterday, I was sort of moved 'UP' as I received another call from the transplant office at Vanderbilt, asking if I could come in for the evaluation tests on the 5th, 6th & 7th of Jan. No more appts with new drs necessary before the big tests. I foresee no physical problems that would prevent me from a listing. I was told the reason was that I have pulmonary fibrosis, something that could "crash" at any time. I'm remembering our former member, Fay. So sad.Sherry > > From: Sherry <sherryjohnson16@ ...>> Subject: Germ Free Habits or How To Stay Healthy> To: Breathe-Support@ yahoogroups. com> Date: Monday, November 17, 2008, 7:17 AM> > > > > > > > > I am replying to all those who might like to add other habits to staying healthy with this disease. Since I am on a high dosage of Imuran (200mg) & have been for NINE years now, I have to be careful not to pick up anything! > > I will NOT shake hands with anyone - sorry about that Bruce - but when you end up getting sick from doing that habit, you may change your mind also. Dr. Milstone at Vanderbilt shook his finger at me & told me NOT to shake hands with people. I've followed that advice ever since. My Pastor at church started bumping elbows with me, & others have followed. It works! As for hugs, well that isn't the best thing to do either - too close of contact for me at this stage of my disease. I didn't get this far along - ten years now - from taking chances after I learned better. > > Also, , do NOT take anything like herbal medications. You do not know what is in those medications as they are not FDA approved. A pulmonogist at Univ of TN told me not to take anything like that - some things have been found in those medications that would literally kill you & have done so to others. So I am very careful about that too - afterall a Chiropractor is not a medical doctor.> > I certainly would've loved to have been along on that lunch Bruce, Elisa, & Gynne had in Arlington, TX. I lived in Colleyville, TX, from 1999 until 2003, so I know the area fairly well. Also, I think Gynne still goes to my former pulmonary dr, Dr. Rosenblatt, at UT Southwestern in Dallas. I still haven't met anyone up close & personal who has this disease. Perhaps now that I am being listed for a lung transplant at Vanderbilt, I will at sometime meet others with this disease.> > Hope these couple of suggestions help others to maintain their fragile health. It only takes one bad episode of an illness to take you down a notch to where you may need a transplant. That is what happened to me, so be very careful. You can't prevent all illness, but you certainly don't want to invite them!> > Sherry , Age 64> NSIP, PH, PBS, Bronchiectasis> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 -Hi Joyce, No, I haven't had a liver transplant. Since I have Primary Biliary Cirrhosis (PBC) an autoimmune liver disease affecting the bile ducts & thus bile flow, I was referred also to the liver transplant dr at Vanderbilt the same time I was referred to the lung transplant dr at Vanderbilt. However, the PBC is a very slow moving disease; one you are more inclined to die " with " rather than " from. " Also, with the immunosuppressant medication & also a medication called Actigal, which helps with bile flow, the progress of the liver disease has been slowed way down. Hope this answers your question. My NSIP was diagnosed by a Rheumatologist in Texas as an " associated " autoimmune disease with the liver disease. Sherry -- In Breathe-Support , Joyce T Rosenberg wrote: > > Sherry > did you have a liver transplant? > > Pink Joyce IPF 3/06 Pennsylvania > > > > > Subject: Re: Sherry > To: Breathe-Support > Date: Tuesday, November 18, 2008, 9:54 AM > > > > > > > Elisa, > > Yes, you have a great chance, well even more than chance, of having > lots of years left living with this disease, so take care of > yourself. I was happy to hear you were able to return to teaching > this year. I know you were concerned about that. > > I had to have another liver biopsy & ct scan of the abdomen/liver, > but passed with flying colors. The liver transplant dr I had been > seeing at Vanderbilt said I was good to go on the lung transplant. > > Yesterday, I was sort of moved 'UP' as I received another call from > the transplant office at Vanderbilt, asking if I could come in for > the evaluation tests on the 5th, 6th & 7th of Jan. No more appts > with new drs necessary before the big tests. I foresee no physical > problems that would prevent me from a listing. I was told the reason > was that I have pulmonary fibrosis, something that could " crash " at > any time. I'm remembering our former member, Fay. So sad. > > Sherry > > > > > > From: Sherry <sherryjohnson16@ ...> > > Subject: Germ Free Habits or How To Stay Healthy > > To: Breathe-Support@ yahoogroups. com > > Date: Monday, November 17, 2008, 7:17 AM > > > > > > > > > > > > > > > > > > I am replying to all those who might like to add other habits to > staying healthy with this disease. Since I am on a high dosage of > Imuran (200mg) & have been for NINE years now, I have to be careful > not to pick up anything! > > > > I will NOT shake hands with anyone - sorry about that Bruce - but > when you end up getting sick from doing that habit, you may change > your mind also. Dr. Milstone at Vanderbilt shook his finger at me & > told me NOT to shake hands with people. I've followed that advice > ever since. My Pastor at church started bumping elbows with me, & > others have followed. It works! As for hugs, well that isn't the > best thing to do either - too close of contact for me at this stage > of my disease. I didn't get this far along - ten years now - from > taking chances after I learned better. > > > > Also, , do NOT take anything like herbal medications. You do > not know what is in those medications as they are not FDA approved. > A pulmonogist at Univ of TN told me not to take anything like that - > some things have been found in those medications that would literally > kill you & have done so to others. So I am very careful about that > too - afterall a Chiropractor is not a medical doctor. > > > > I certainly would've loved to have been along on that lunch Bruce, > Elisa, & Gynne had in Arlington, TX. I lived in Colleyville, TX, > from 1999 until 2003, so I know the area fairly well. Also, I think > Gynne still goes to my former pulmonary dr, Dr. Rosenblatt, at UT > Southwestern in Dallas. I still haven't met anyone up close & > personal who has this disease. Perhaps now that I am being listed > for a lung transplant at Vanderbilt, I will at sometime meet others > with this disease. > > > > Hope these couple of suggestions help others to maintain their > fragile health. It only takes one bad episode of an illness to take > you down a notch to where you may need a transplant. That is what > happened to me, so be very careful. You can't prevent all illness, > but you certainly don't want to invite them! > > > > Sherry , Age 64 > > NSIP, PH, PBS, Bronchiectasis > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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