Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 Hi Sharon, Yes I am on SSD for 15yrs. due to having had osteomyolitis as a teensager followed by 1 total hip replacement the 9 yrs. later a major revision to the hip replacement leaving me no more surgical options as there isn't enough bone left to work with. It has been a year almost since my long awaited DX of FM. I've only been on hydrocodon for 6 wks. and it took a Fibro specialist to give me hydro. My pain has been DISmissed by countless Drs. over the past 20 yrs. I know from expierence what I need to treat my pain as I have taken Hydramorphone(Dilauded) Demerol, morphine, oxycodone following the surgical procedures I've had over the years. BUT no Dr. is going to allow me to tell them what I need, nevermind my personal expierence!!! This issue has been the most frustrating aspect of having this invisable HELLacious DISease !!!!!! I get frustrated just thinking about it!!! THC, POT, Taboo but YES it werx, HOWEVER !!!!!!! i can't go there! NOW YOU take care ! ! !................................................... GOD grant me the serenityto accept the things I cannot change the courage to change the things I canand the wisdom to know the difference. Amen ! ! ! To: Fibromyalgia_Support_Group@...: seescallop@...: Thu, 6 Mar 2008 04:44:56 -0800Subject: Re: Hello Everyone ! I've ben MIA Hello I am glad to see u back. I think of how u are all the time I don't see u post for awhile. I took a liking to u right away with your spunky posts, when I first joined. I am sorry it is not going to work moving out on your own. What part of this big world are you in? I hope that since you decided the move was not a choice, you will find somehow to block out the negitivatey of your surroundings with your bro, which I know can be hard as it is right in your face, but keep up with us, and hopefully we can help you through your tough times. It is to bad that the only places they want to put somone who needs a lower income living arrangement is to dump them in the middle of a infested lowlife area! Are you on disability? Can you not go into senior housing? I know you are a bit young, but my mom has a young man who lives in there apts, and she is lucky enough to have got into a really nice place out of the ones she applied for, also there is a younger woman, asif you have disability u can qualify for these places also. You are right to keep your new med well hidden from the bro, wouldn't he have a ball, would surley feel like he won the lottery. Now for your pain, why won't they up you to a stronger regimine? My Dr. is trying to convince me that it may be time to go see Pain clinic and get on a stronger med, as I have been on Vicodin 7.5 q6 hrs for as long as I can remember, to long, and believe u me, latley it is just that q 6 hr, as I am awake with excruciating pain in my rt lower back, hip pelvic area now!!!! Sounds like you need your meds up'd do they not believe in if pain is oleveated some, it decreases your anxiety level, and all else may start to give you a little break? I see my Dr. on the 11th and probably now will agree I need the stronger, as this has been this way since Nov. and I am going out of my mind! I had a friend yesterday tell me he found a book on pot and it''s use for medicial purposes, and it lays itright out, how much what kind, etc for each disease, also says if you use to much than recommended it will cause the pains to increase! So still maybe you should think of moving to a State where this is used for med. reasons.lol I hope you a lighter day and good hope with your new med. and tell the dr. the pain meds need to be increased!! Take Care Sharon Honeycutt wrote: Hi ! ! !I don't remeber the last time I posted. I'm still alive but not really living life to it's fullest. I've been living from one flare to another as most of US seem to be doing as well. I had my second round of Trigger Point injections yesterday and so far I'm not very pleased w/results. 2 Vicodan and 4 darvacet per day just isn't enough to give me much relief on top of 450mg. Lyrica per day.My FM Dr. has given me Adderal for ME/CFS, I will give it a try today. I've been on Strattera for ADD for about 2 years but it does nothing for fatigue. I can't let my meth head bro. know about the Adderal for obvios reasons.I've decided not to get my own apartment as it would be in a low income Crime Ridden part of town in one of the most violents towns in the USA!!! A few years ago my city was rated nationally as the 4rth most dangerous Cities in America so there for I'll not subject myself to the potiential PARANOIA that I know would go w/living in fear every day and night.I don't know what else to say for now other that I have missed the fellowship WE have ! ! !GOD Bless ! ! ! . . . ............................. . . . S.E. Arkansas GOD grant me the serenityto accept the things I cannot change the courage to change the things I canand the wisdom to know the difference. Amen ! ! !__________________________________________________________Helping your favorite cause is as easy as instant messaging. You IM, we give.http://im.live.com/Messenger/IM/Home/?source=text_hotmail_join[Non-text portions of this message have been removed][Non-text portions of this message have been removed] _________________________________________________________________ Helping your favorite cause is as easy as instant messaging. You IM, we give. http://im.live.com/Messenger/IM/Home/?source=text_hotmail_join Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 Hey you know funny you mention those drugs,as a couple wks ago things came up of people who can't take the vicodin, and the worry of liver damage over long time use, which I should be there about now, but anyway I quesioned why aren' dilauded, being used more in place of, this was a very much used pain med in my teenage yrs., not that I every had them, but I have worked in the med field and distributed meds. Last yr my bro had a motorcylce accident and he can not use vicodin or percocet as his liver is not functioning 100% and they gave him the dilauded, and it last longer and less damage to the liver. I may adress this with my Dr. on the 11th, as she is very understanding to my pain needs, but says I am really out of there juristiction now, if I am at the point of needing a higher potent drug, which I believe, I am but then again don't want to admit, or give into it. Maybe over time your Dr. will see you need more help in getting relief as you sure have had alot go on. hoping you find lighter day ahead. Ya Right, but maybe. Sharon Honeycutt wrote: Hi Sharon, Yes I am on SSD for 15yrs. due to having had osteomyolitis as a teensager followed by 1 total hip replacement the 9 yrs. later a major revision to the hip replacement leaving me no more surgical options as there isn't enough bone left to work with. It has been a year almost since my long awaited DX of FM. I've only been on hydrocodon for 6 wks. and it took a Fibro specialist to give me hydro. My pain has been DISmissed by countless Drs. over the past 20 yrs. I know from expierence what I need to treat my pain as I have taken Hydramorphone(Dilauded) Demerol, morphine, oxycodone following the surgical procedures I've had over the years. BUT no Dr. is going to allow me to tell them what I need, nevermind my personal expierence!!! This issue has been the most frustrating aspect of having this invisable HELLacious DISease !!!!!! I get frustrated just thinking about it!!! THC, POT, Taboo but YES it werx, HOWEVER !!!!!!! i can't go there! NOW YOU take care ! ! !................................................... GOD grant me the serenityto accept the things I cannot change the courage to change the things I canand the wisdom to know the difference. Amen ! ! ! To: Fibromyalgia_Support_Group@...: seescallop@...: Thu, 6 Mar 2008 04:44:56 -0800Subject: Re: Hello Everyone ! I've ben MIA Hello I am glad to see u back. I think of how u are all the time I don't see u post for awhile. I took a liking to u right away with your spunky posts, when I first joined. I am sorry it is not going to work moving out on your own. What part of this big world are you in? I hope that since you decided the move was not a choice, you will find somehow to block out the negitivatey of your surroundings with your bro, which I know can be hard as it is right in your face, but keep up with us, and hopefully we can help you through your tough times. It is to bad that the only places they want to put somone who needs a lower income living arrangement is to dump them in the middle of a infested lowlife area! Are you on disability? Can you not go into senior housing? I know you are a bit young, but my mom has a young man who lives in there apts, and she is lucky enough to have got into a really nice place out of the ones she applied for, also there is a younger woman, asif you have disability u can qualify for these places also. You are right to keep your new med well hidden from the bro, wouldn't he have a ball, would surley feel like he won the lottery. Now for your pain, why won't they up you to a stronger regimine? My Dr. is trying to convince me that it may be time to go see Pain clinic and get on a stronger med, as I have been on Vicodin 7.5 q6 hrs for as long as I can remember, to long, and believe u me, latley it is just that q 6 hr, as I am awake with excruciating pain in my rt lower back, hip pelvic area now!!!! Sounds like you need your meds up'd do they not believe in if pain is oleveated some, it decreases your anxiety level, and all else may start to give you a little break? I see my Dr. on the 11th and probably now will agree I need the stronger, as this has been this way since Nov. and I am going out of my mind! I had a friend yesterday tell me he found a book on pot and it''s use for medicial purposes, and it lays itright out, how much what kind, etc for each disease, also says if you use to much than recommended it will cause the pains to increase! So still maybe you should think of moving to a State where this is used for med. reasons.lol I hope you a lighter day and good hope with your new med. and tell the dr. the pain meds need to be increased!! Take Care Sharon Honeycutt wrote: Hi ! ! !I don't remeber the last time I posted. I'm still alive but not really living life to it's fullest. I've been living from one flare to another as most of US seem to be doing as well. I had my second round of Trigger Point injections yesterday and so far I'm not very pleased w/results. 2 Vicodan and 4 darvacet per day just isn't enough to give me much relief on top of 450mg. Lyrica per day.My FM Dr. has given me Adderal for ME/CFS, I will give it a try today. I've been on Strattera for ADD for about 2 years but it does nothing for fatigue. I can't let my meth head bro. know about the Adderal for obvios reasons.I've decided not to get my own apartment as it would be in a low income Crime Ridden part of town in one of the most violents towns in the USA!!! A few years ago my city was rated nationally as the 4rth most dangerous Cities in America so there for I'll not subject myself to the potiential PARANOIA that I know would go w/living in fear every day and night.I don't know what else to say for now other that I have missed the fellowship WE have ! ! !GOD Bless ! ! ! . . . ............................. . . .. S.E. Arkansas GOD grant me the serenityto accept the things I cannot change the courage to change the things I canand the wisdom to know the difference. Amen ! ! !__________________________________________________________Helping your favorite cause is as easy as instant messaging. You IM, we give.http://im.live.com/Messenger/IM/Home/?source=text_hotmail_join[Non-text portions of this message have been removed][Non-text portions of this message have been removed] __________________________________________________________ Helping your favorite cause is as easy as instant messaging. You IM, we give. http://im.live.com/Messenger/IM/Home/?source=text_hotmail_join Quote Link to comment Share on other sites More sharing options...
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