Re: MIA -- To from Debra V.

[Guest guest]

, I say do what you have to in order to take care of the pain. It seems the

damn doctors won't listen. So I say do the taboo stuff. Hell, no body needs to

suffer like that.

By the way, I have missed ya guy. I have probably missed some posts though

because I had to delete about 400 of them today. I don't mind the mail though.

I just go through what part of it I can. The more mail, it mean more people are

seeking and giving support in the invisible hell..... And anyone with this crap

needs to vent and have support from folks that can understand it.

love and hugs,

Debra V.

Honeycutt wrote:

Hi Sharon, Yes I am on SSD for 15yrs. due to having had osteomyolitis as a

teensager followed by 1 total hip replacement the 9 yrs. later a major revision

to the hip replacement leaving me no more surgical options as there isn't enough

bone left to work with.

It has been a year almost since my long awaited DX of FM. I've only been on

hydrocodon for 6 wks. and it took

a Fibro specialist to give me hydro. My pain has been DISmissed by countless

Drs. over the past 20 yrs.

I know from expierence what I need to treat my pain as I have taken

Hydramorphone(Dilauded) Demerol,

morphine, oxycodone following the surgical procedures I've had over the years.

BUT no Dr. is going to allow me to tell them what I need, nevermind my personal

expierence!!! This issue has been the most frustrating aspect

of having this invisable HELLacious DISease !!!!!! I get frustrated just

thinking about it!!!

THC, POT, Taboo but YES it werx, HOWEVER !!!!!!! i can't go there!

NOW YOU take care ! ! !...................................................

GOD grant me the serenityto accept the things I cannot

change the courage to change the things I canand the wisdom to know the

difference. Amen ! ! !

To: Fibromyalgia_Support_Group@...: seescallop@...:

Thu, 6 Mar 2008 04:44:56 -0800Subject: Re: Hello Everyone ! I've ben MIA

Hello I am glad to see u back. I think of how u are all the time I don't see u

post for awhile. I took a liking to u right away with your spunky posts, when I

first joined. I am sorry it is not going to work moving out on your own. What

part of this big world are you in? I hope that since you decided the move was

not a choice, you will find somehow to block out the negitivatey of your

surroundings with your bro, which I know can be hard as it is right in your

face, but keep up with us, and hopefully we can help you through your tough

times. It is to bad that the only places they want to put somone who needs a

lower income living arrangement is to dump them in the middle of a infested

lowlife area! Are you on disability? Can you not go into senior housing? I know

you are a bit young, but my mom has a young man who lives in there apts, and she

is lucky enough to have got into a really nice place out of the ones she applied

for, also there is a younger woman, asif you have

disability u can qualify for these places also. You are right to keep your new

med well hidden from the bro, wouldn't he have a ball, would surley feel like he

won the lottery. Now for your pain, why won't they up you to a stronger

regimine? My Dr. is trying to convince me that it may be time to go see Pain

clinic and get on a stronger med, as I have been on Vicodin 7.5 q6 hrs for as

long as I can remember, to long, and believe u me, latley it is just that q 6

hr, as I am awake with excruciating pain in my rt lower back, hip pelvic area

now!!!! Sounds like you need your meds up'd do they not believe in if pain is

oleveated some, it decreases your anxiety level, and all else may start to give

you a little break? I see my Dr. on the 11th and probably now will agree I need

the stronger, as this has been this way since Nov. and I am going out of my

mind! I had a friend yesterday tell me he found a book on pot and it''s use for

medicial purposes, and it lays itright out, how

much what kind, etc for each disease, also says if you use to much than

recommended it will cause the pains to increase! So still maybe you should

think of moving to a State where this is used for med. reasons.lol I hope you a

lighter day and good hope with your new med. and tell the dr. the pain meds need

to be increased!! Take Care Sharon Honeycutt

wrote: Hi ! ! !I don't remeber the last time I

posted. I'm still alive but not really living life to it's fullest. I've been

living from one flare to another as most of US seem to be doing as well. I had

my second round of Trigger Point injections yesterday and so far I'm not very

pleased w/results. 2 Vicodan and 4 darvacet per day just isn't enough to give me

much relief on top of 450mg. Lyrica per day.My FM Dr. has given me Adderal for

ME/CFS, I will give it a try today. I've been on Strattera for ADD for about 2

years but it does nothing for fatigue. I can't let my meth head bro.

know about the Adderal for obvios reasons.I've decided not to get my own

apartment as it would be in a low income Crime Ridden part of town in one of the

most violents towns in the USA!!! A few years ago my city was rated nationally

as the 4rth most dangerous Cities in America so there for I'll not subject

myself to the potiential PARANOIA that I know would go w/living in fear every

day and night.I don't know what else to say for now other that I have missed the

fellowship WE have ! ! !GOD Bless ! ! ! . . . ............................. . .

.. S.E. Arkansas GOD grant me the serenityto accept the things I cannot

change the courage to change the things I canand the wisdom to know the

difference. Amen ! !

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