Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 Welcome to the group first of all . I will try to answer your questions from my own experiences. The first thing I want to address is the attitude of your doctor. It makes me sick. It goes back to the doubts of fibromyalgia's existence. I KNOW it exists. She obviously does not or thinks it is " all in your head " . No doctor would say this about any other illness. They would not say " lets not talk about cancer, because then you will think you have it " ... Or " lets not talk about multiple sclerosis, or you will think you have it " ... or " lets not talk about diabetes, because you will think you have it " ... It sucks to have doctors in this world who refuse to believe this illness exists. Anyway, some of your questions. I do have flares and everyone does with fibromyalgia. These are the times when the pain is unrelentless and worse than other times and seems that we cannot hardly pull ourselves out of bed for the horrible exhaustion and increased pain, stiffness, and fog of the brain that makes it almost impossible to concentrate or function. Flares happen to me worse with the winter weather and weather changes from hot to cold and rainy damp weather. Flares are a part of fibro. (I must add that increased stress really sets it off). I do not have the TMJ, but alot of people do have it with fibromyalgia. I don't get redness or rashes to my neck or chest or anywhere. I think some people do though. My face DOES get puffy when I am in a really bad flare. I look in the mirror and see the puffiness around the eyes and cheeks that is really bad. I don't even look like the same person sometimes. I do not have tinnitis. Now the pain in the collar bone area is common with me. It is one of my very tender points that hurts badly when just a LITTLE bit of pressure is applied. The pain does not radiate to my ears. My knees ache alot of the time. The pain is not in the knee joint itself, but in the muscles around the knee to the sides of the knee. It hurts bad sometimes. It is a deep horrible ache. I do not have arhtritis. Welcome to the group. I am glad you found us. I wish you could find a doctor who will listen though. Fibro is a REAL disease and just because they have not figured it all out and have little or no data they can see, many still believe we are a bunch of hypochondriacs or liars. Hugs, Debra V. --------------------------------- Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 Hi Debra, Thank you so very much for all of the information. I am crying like a fool right now because so much of what happens to you, happens to me. I am in the process of seeing another Rheumatologist, but she only takes referrals and I need to see my doctor for that referral. After that I am sure she is booked in advance, but I am hoping when I do see her, she listens to me. She worked at Mayo Clinic before coming here and from what I have read, Mayo certain recognizes Fibro as a disease. So hopefully, she will not be so close-minded. Thank you again. You have helped me a lot. Quote Link to comment Share on other sites More sharing options...
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