Re: Does Anyone NOT take RX!??? For what ever reason...side effects, $, etc.....

[Guest guest]

Sherry,

I think you should talk to your doctor again and tell him/her what you said.

All the medications have side effects; if you are not too sick to tolerate the

pain; then good for you.

I was when I was first dx'd with Lupus. Went on for a while getting by with

only Plaquenil (an immunosuppresant). It was just a few months ago the pain got

to be too much for me.

Also, alot of the 'zombie' effect of some of the meds decreases with time.

Angie Harley Mama Double-D

Carson City, NV; Single, five children (3 at home), 2 dogs, 4 cats, snow skiing,

camping, Harley Rider, Lone Wolf, Blue Thong Society/High Sierra Thong Snappers

member, LFA Advocate, independent, opinionated, outspoken, and open minded.

" It's always something. " ~~~Gilda Radner

" While we have the gift of life, it seems to me the only tragedy is to allow

part of us to die - whether it is our spirit,our creativity, or our glorious

uniqueness. " ~~~Gilda Radner

http://www.mybloglog.com/buzz/members/AGBlog/

http://360.yahoo.com/lovinglifeinnv

http://www.myspace.com/amkg

http://doripost.agrato.info/

http://wine-and-chocolate.blogspot.com/

http://weblog.xanga.com/purplepassionate

http://www.revolutionhealth.com/blogs/angiemg

http://www.facebook.com/profile.php?id=592316375

http://health.groups.yahoo.com/group/LupusSurvivorsU/

Does Anyone NOT take RX!??? For what ever reason...side

effects, $, etc.....

I have taken a few RX given to me by my doctor. I did not

like! One

made me a zombie, one made me hyperventalate( sp?). And, they were just

too much $$$$ to keep trying. Fibro Fog is enough to deal with. DO they

really the RX that is, stop the pain. I think I'd rather hurt than be a

Zombie all drugged up! What is your opion?

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[Guest guest]

I had to make that decision when the pain doctors told

me last year, well we can go in to your spine and

inject a medication that will stop the nerves from

communicating to the muscles and you will feel no pain

for about 6 months. However ... chances of it working

are difficult to tell and it could also stay that way.

I asked them so how do I know when I am worse and

that the nerves to my bulging disks are hernating.

they just looked at me and said well this is our

offer, or you can go back to the pain meds and hurt.

well since i am anaphalactily allergic to numbing

meds that are injected I bowed out.

So I alternate now between, oxycodone, hydrocodone,

valium, tramadol, ultracet. skelaxian, or flexiril.

and my water and physical/massage therapy.

I feel like I should own stock in wal-mart and cvs

pharmacies.lol

Diane

--- Sherry wrote:

> I have taken a few RX given to me by my doctor. I

> did not like! One

> made me a zombie, one made me hyperventalate(sp?).

> And, they were just

> too much $$$$ to keep trying. Fibro Fog is enough to

> deal with. DO they

> really the RX that is, stop the pain. I think I'd

> rather hurt than be a

> Zombie all drugged up! What is your opion?

>

>

>

> 1. While it is wonderful to share our experiences

> with everyone on the list as to what treatments do

> and don't work for us, pls always check with your

> dr. Some treatments are dangerous when given along

> with other meds as well as to certain health

> conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't

> matter what it is) pls don't be afraid to ask for

> help. It is the first step to trying to make that

> situation better.

>

> 3. To unsubscribe the e-mail is:

>

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member

> to be feeling bad at the same time when it comes to

> flares and b/c of that potentially take something

> another member says the wrong way. And that

> includes the things that one member may find funny

> (even if it's laughing at fibro itself) even though

> we who deal with illness whether one such as fibro

> or multiple illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you

> are having a bad day pls let us know so that we can

> do our best to offer our support.

>

> Have a nice day everyone.

>

>

[Guest guest]

I take hydrocodone which has fortunately never affected me that way. I am not a

zombie at all on this medication. It never once made me sleepy or high. It

does, however, give me some energy and take the pain away for a while. I guess

medications just affect different people in different ways. And the pain got so

bad before I went on the hydrocodone that I would have been willing to be a

zombie to kill the pain. However, as I said, it affects me the opposite and

actually helps the fibro fog.

Debra V.

Sherry wrote: I have

taken a few RX given to me by my doctor. I did not like! One

made me a zombie, one made me hyperventalate(sp?). And, they were just

too much $$$$ to keep trying. Fibro Fog is enough to deal with. DO they

really the RX that is, stop the pain. I think I'd rather hurt than be a

Zombie all drugged up! What is your opion?

---------------------------------

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Sherry,

Long before I was dx'd with fibro, I had those mysterious low back

pains, back spasms, etc., and for a long time, flexeril worked (10

mg) because it wasn't that often. Then I started to notice that

before I could vacuum/mop, I would have to take one and before I was

done, I would have to take a 2nd one to be able to finish.

When my PCP (no dx yet) heard that, they gave me robaxin, which

helped a little bit more. Also, naproxyn (sp?) for inflammation and

as a last resort, darvocet (which I literally only take as a last

resort).

I got dx'd January '08 by a rheum and he started me on lyrica (low

dose 75 mg 2x/day) for 2 weeks. I did not notice any sides except the

initial few days when I felt " punch drunk " like many on this list.

Since that time, I am up to the 150 mg 2x a day and not noticing too

many side effects (drowsiness, etc.).

Of course, every single one of us is different. Your doctor may have

to tinker and tweak your meds. The best person to speak with is your

doctor. None of us want to be a zombie and merely travel thru life,

we all want to live the best possible life we can, dealing with this

disease, which attacks each one of us a little differently and yet oh

so much the same, its scary.

I hope that helps; wanted to give you my experiences.....

(((Hugs)))

Darlene

>

> I have taken a few RX given to me by my doctor. I did not like! One

> made me a zombie, one made me hyperventalate(sp?). And, they were

just

> too much $$$$ to keep trying. Fibro Fog is enough to deal with. DO

they

> really the RX that is, stop the pain. I think I'd rather hurt than

be a

> Zombie all drugged up! What is your opion?

>

[Guest guest]

A lot of the time I do. I have to fight tooth and nail to get any pain

relief and the pain specialist was a joke.

Tigger (Ruth) in Rhode Island

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of ddean228

Sent: Saturday, March 08, 2008 11:32 AM

To: Fibromyalgia_Support_Group

Subject: Re: Does Anyone NOT take RX!??? For what ever reason...side

effects, $, etc.....

Sherry,

Long before I was dx'd with fibro, I had those mysterious low back

pains, back spasms, etc., and for a long time, flexeril worked (10

mg) because it wasn't that often. Then I started to notice that

before I could vacuum/mop, I would have to take one and before I was

done, I would have to take a 2nd one to be able to finish.

When my PCP (no dx yet) heard that, they gave me robaxin, which

helped a little bit more. Also, naproxyn (sp?) for inflammation and

as a last resort, darvocet (which I literally only take as a last

resort).

I got dx'd January '08 by a rheum and he started me on lyrica (low

dose 75 mg 2x/day) for 2 weeks. I did not notice any sides except the

initial few days when I felt " punch drunk " like many on this list.

Since that time, I am up to the 150 mg 2x a day and not noticing too

many side effects (drowsiness, etc.).

Of course, every single one of us is different. Your doctor may have

to tinker and tweak your meds. The best person to speak with is your

doctor. None of us want to be a zombie and merely travel thru life,

we all want to live the best possible life we can, dealing with this

disease, which attacks each one of us a little differently and yet oh

so much the same, its scary.

I hope that helps; wanted to give you my experiences.....

(((Hugs)))

Darlene

>

> I have taken a few RX given to me by my doctor. I did not like! One

> made me a zombie, one made me hyperventalate(sp?). And, they were

just

> too much $$$$ to keep trying. Fibro Fog is enough to deal with. DO

they

> really the RX that is, stop the pain. I think I'd rather hurt than

be a

> Zombie all drugged up! What is your opion?

>

[Guest guest]

Tigger,

Who did you end up seeing?

JudyMer

Today is a good day to be a mermaid because it just keeps pouring!

---- Tigger wrote:

> A lot of the time I do. I have to fight tooth and nail to get any pain

> relief and the pain specialist was a joke.

>

>

>

> Tigger (Ruth) in Rhode Island

>

>

>

>

>

> _____

>

> From: Fibromyalgia_Support_Group

> [mailto:Fibromyalgia_Support_Group ] On Behalf Of ddean228

> Sent: Saturday, March 08, 2008 11:32 AM

> To: Fibromyalgia_Support_Group

> Subject: Re: Does Anyone NOT take RX!??? For what ever reason...side

> effects, $, etc.....

>

>

>

> Sherry,

> Long before I was dx'd with fibro, I had those mysterious low back

> pains, back spasms, etc., and for a long time, flexeril worked (10

> mg) because it wasn't that often. Then I started to notice that

> before I could vacuum/mop, I would have to take one and before I was

> done, I would have to take a 2nd one to be able to finish.

>

> When my PCP (no dx yet) heard that, they gave me robaxin, which

> helped a little bit more. Also, naproxyn (sp?) for inflammation and

> as a last resort, darvocet (which I literally only take as a last

> resort).

>

> I got dx'd January '08 by a rheum and he started me on lyrica (low

> dose 75 mg 2x/day) for 2 weeks. I did not notice any sides except the

> initial few days when I felt " punch drunk " like many on this list.

> Since that time, I am up to the 150 mg 2x a day and not noticing too

> many side effects (drowsiness, etc.).

>

> Of course, every single one of us is different. Your doctor may have

> to tinker and tweak your meds. The best person to speak with is your

> doctor. None of us want to be a zombie and merely travel thru life,

> we all want to live the best possible life we can, dealing with this

> disease, which attacks each one of us a little differently and yet oh

> so much the same, its scary.

>

> I hope that helps; wanted to give you my experiences.....

>

> (((Hugs)))

> Darlene

>

>

> >

> > I have taken a few RX given to me by my doctor. I did not like! One

> > made me a zombie, one made me hyperventalate(sp?). And, they were

> just

> > too much $$$$ to keep trying. Fibro Fog is enough to deal with. DO

> they

> > really the RX that is, stop the pain. I think I'd rather hurt than

> be a

> > Zombie all drugged up! What is your opion?

> >

>

>

>

>

>

>

[Guest guest]

The Spine and Pain clinic at the Westerly Hospital. It was a total waste of

my time.

Tigger (Ruth) in Rhode Island

> Re: Does Anyone NOT take RX!??? For what ever

reason...side

> > effects, $, etc.....

> >

> >

> >

> > Sherry,

> > Long before I was dx'd with fibro, I had those mysterious low back

> > pains, back spasms, etc., and for a long time, flexeril worked (10

> > mg) because it wasn't that often. Then I started to notice that

> > before I could vacuum/mop, I would have to take one and before I was

> > done, I would have to take a 2nd one to be able to finish.

> >

> > When my PCP (no dx yet) heard that, they gave me robaxin, which

> > helped a little bit more. Also, naproxyn (sp?) for inflammation and

> > as a last resort, darvocet (which I literally only take as a last

> > resort).

> >

> > I got dx'd January '08 by a rheum and he started me on lyrica (low

> > dose 75 mg 2x/day) for 2 weeks. I did not notice any sides except the

> > initial few days when I felt " punch drunk " like many on this list.

> > Since that time, I am up to the 150 mg 2x a day and not noticing too

> > many side effects (drowsiness, etc.).

> >

> > Of course, every single one of us is different. Your doctor may have

> > to tinker and tweak your meds. The best person to speak with is your

> > doctor. None of us want to be a zombie and merely travel thru life,

> > we all want to live the best possible life we can, dealing with this

> > disease, which attacks each one of us a little differently and yet oh

> > so much the same, its scary.

> >

> > I hope that helps; wanted to give you my experiences.....

> >

> > (((Hugs)))

> > Darlene

> >

> >

> > >

> > > I have taken a few RX given to me by my doctor. I did not like! One

> > > made me a zombie, one made me hyperventalate(sp?). And, they were

> > just

> > > too much $$$$ to keep trying. Fibro Fog is enough to deal with. DO

> > they

> > > really the RX that is, stop the pain. I think I'd rather hurt than

> > be a

> > > Zombie all drugged up! What is your opion?

> > >

> >

> >

> >

> >

> >

> >

[Guest guest]

Tigger,

Let me guess, they wanted you to use alternate therapies instead of pain meds.

It seems they don't want us to eliminate pain or at leate reduce it so we can

function. I agree in using it to increase our quality of life but they don'y

understand that if the pain isn't reduced then we an't participate in other

forms of therapy and daily activities. I don't think that they read the latest

literature that says chronic pain changes the brain.

JudyMer.

Ps The weather has got to get better so we can get together; It's a good thing

I'm a mermaid with all this rain and later tonight there will be coastal

floodining with the high tide.

Don't forget to change your clocks tonight. 1 hr less of sleep, like we need

that.

---- Tigger wrote:

> The Spine and Pain clinic at the Westerly Hospital. It was a total waste of

> my time.

>

> Tigger (Ruth) in Rhode Island

>

>

>

> > Re: Does Anyone NOT take RX!??? For what ever

> reason...side

> > > effects, $, etc.....

> > >

> > >

> > >

> > > Sherry,

> > > Long before I was dx'd with fibro, I had those mysterious low back

> > > pains, back spasms, etc., and for a long time, flexeril worked (10

> > > mg) because it wasn't that often. Then I started to notice that

> > > before I could vacuum/mop, I would have to take one and before I was

> > > done, I would have to take a 2nd one to be able to finish.

> > >

> > > When my PCP (no dx yet) heard that, they gave me robaxin, which

> > > helped a little bit more. Also, naproxyn (sp?) for inflammation and

> > > as a last resort, darvocet (which I literally only take as a last

> > > resort).

> > >

> > > I got dx'd January '08 by a rheum and he started me on lyrica (low

> > > dose 75 mg 2x/day) for 2 weeks. I did not notice any sides except the

> > > initial few days when I felt " punch drunk " like many on this list.

> > > Since that time, I am up to the 150 mg 2x a day and not noticing too

> > > many side effects (drowsiness, etc.).

> > >

> > > Of course, every single one of us is different. Your doctor may have

> > > to tinker and tweak your meds. The best person to speak with is your

> > > doctor. None of us want to be a zombie and merely travel thru life,

> > > we all want to live the best possible life we can, dealing with this

> > > disease, which attacks each one of us a little differently and yet oh

> > > so much the same, its scary.

> > >

> > > I hope that helps; wanted to give you my experiences.....

> > >

> > > (((Hugs)))

> > > Darlene

> > >

> > >

> > > >

> > > > I have taken a few RX given to me by my doctor. I did not like! One

> > > > made me a zombie, one made me hyperventalate(sp?). And, they were

> > > just

> > > > too much $$$$ to keep trying. Fibro Fog is enough to deal with. DO

> > > they

> > > > really the RX that is, stop the pain. I think I'd rather hurt than

> > > be a

> > > > Zombie all drugged up! What is your opion?

> > > >

> > >

> > >

> > >

> > >

> > >

> > >